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X-WR-CALNAME:Patient Worthy
X-ORIGINAL-URL:https://patientworthy.com
X-WR-CALDESC:Events for Patient Worthy
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TZID:America/New_York
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TZOFFSETFROM:-0500
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DTSTART:20180311T070000
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DTSTART:20181104T060000
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DTSTART;VALUE=DATE:20180921
DTEND;VALUE=DATE:20180923
DTSTAMP:20261111T134608
CREATED:20180419T215611Z
LAST-MODIFIED:20180419T215611Z
UID:88530-1537488000-1537660799@patientworthy.com
SUMMARY:The Castleman Disease Collaborative Network's Patient and Loved One Summit
DESCRIPTION:“Beating Castleman’s\, Together”\nThis unique event allows for patients and families affected by Castleman disease to converge and learn more about the latest research and treatment information related to this disease. \nIn addition\, patient families will be able to network\, build community\, and share with each other. \nKeep your eye on the conference announcement webpage to learn logistical information\, which should be posted soon.
URL:https://patientworthy.com/event/castleman-disease-collaborative-networks-patient-loved-summit/
LOCATION:Hospital of the University of Pennsylvania\, 3400 Spruce Street\, Philadelphia\, PA\, United States
CATEGORIES:Castleman Disease,Rare Disease
ORGANIZER;CN="Castleman%20Disease%20Collaborative%20Network":MAILTO:info@castlemannetwork.org
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20180922T080000
DTEND;TZID=America/New_York:20180922T170000
DTSTAMP:20261111T134608
CREATED:20180907T194602Z
LAST-MODIFIED:20180907T194602Z
UID:100914-1537603200-1537635600@patientworthy.com
SUMMARY:The Histiocytosis Association's Paula's Purple Passion Walk
DESCRIPTION:The Inaugural 2018 Paula’s Purple Passion Walk\nThe family fun walk is a fundraiser that will benefit the Histiocytosis Association. The event will also honor the memory of Paula Marie Wagman Ewing. Her friends and family will be in attendance. Help support the organization’s goals to provide community support\, fund research\, spread awareness\, and educate the public about histiocytosis \nThe event will include a prize drawing. With each ticket\, the purchaser will receive a T- shirt\, a goodie bag\, color splash (at the end of the walk)\, and light refreshments. \nTickets\nAdults: $25/$35 (Online/On-site) \nKids: $15/$25
URL:https://patientworthy.com/event/histiocytosis-associations-paulas-purple-passion-walk/
LOCATION:Harford Community College\, 401 Thomas Run Rd\, Bel Air\, MD\, 21015\, United States
CATEGORIES:Histiocytosis,Rare Disease
ORGANIZER;CN="Histiocytosis%20Association":MAILTO:info@histio.org
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20180922T083000
DTEND;TZID=America/New_York:20180922T151500
DTSTAMP:20261111T134608
CREATED:20180807T185251Z
LAST-MODIFIED:20180807T185251Z
UID:98328-1537605000-1537629300@patientworthy.com
SUMMARY:Aplastic Anemia and MDS International Foundation's Living with Aplastic Anemia\, MDS\, or PNH Patient Conference in Providence\, RI
DESCRIPTION:Living With Aplastic Anemia\, MDS\, or PNH\nJoin us and connect with patients\, families\, and caregivers who are living with aplastic anemia\, PNH\, MDS\, and AML.  Meet and hear top medical experts discuss what is the latest in a treatment and empower you with information about living with a bone marrow failure disease. \nRegistration is FREE
URL:https://patientworthy.com/event/aplastic-anemia-aplastic-anemia-mds-pnh-patient/
LOCATION:Crowne Plaza Providence-Warwick\, 801 Greenwich Ave.\, Providence\, RI\, 02886\, United States
CATEGORIES:Aplastic Anemia,Myelodysplastic Syndromes,paroxysmal nocturnal hemoglobinuria
ORGANIZER;CN="Aplastic%20Anemia%20and%20MDS%20International%20Foundation":MAILTO:conference@aamds.org
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