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X-WR-CALNAME:Patient Worthy
X-ORIGINAL-URL:https://patientworthy.com
X-WR-CALDESC:Events for Patient Worthy
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TZID:America/New_York
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TZOFFSETFROM:-0500
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TZNAME:EDT
DTSTART:20180311T070000
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TZOFFSETTO:-0500
TZNAME:EST
DTSTART:20181104T060000
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TZID:America/Los_Angeles
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DTSTART:20180311T100000
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BEGIN:VEVENT
DTSTART;VALUE=DATE:20181009
DTEND;VALUE=DATE:20181014
DTSTAMP:20261111T131007
CREATED:20180420T214121Z
LAST-MODIFIED:20180420T214121Z
UID:88675-1539043200-1539475199@patientworthy.com
SUMMARY:American Academy for Cerebral Palsy and Developmental Medicine's Annual Meeting
DESCRIPTION:AACPDM 72nd Annual Meeting\n“Transformative Journeys” \nThis event is aimed at all researchers\, medical professionals\, and caregivers focused on cerebral palsy. \nThe conference will present new information on cerebral palsy pertaining to research\, treatments\, and diagnostics. \nRegistration for this event should open in late May. Keep tabs on the conference website for updates.
URL:https://patientworthy.com/event/american-academy-cerebral-palsy-developmental-medicines-meeting/
LOCATION:Duke Energy Convention Center\, 525 Elm Street\, Cincinnati\, OH\, United States
CATEGORIES:Cerebral Palsy,Rare Disease
ORGANIZER;CN="American%20Academy%20for%20Cerebral%20Palsy%20and%20Developmental%20Medicine":MAILTO:info@aacpdm.org
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20181010
DTEND;VALUE=DATE:20181015
DTSTAMP:20261111T131007
CREATED:20180420T220352Z
LAST-MODIFIED:20180420T220352Z
UID:88685-1539129600-1539561599@patientworthy.com
SUMMARY:The National Hemophilia Foundation's Factor XIII Family Conference
DESCRIPTION:“Strength in Numbers”\nThis conference will be geared towards the families of those affected by factor XIII deficiency. \nThis event will feature educational sessions that will allow patients to learn more about this rare blood disorder. \nRegistration for the conference has not opened yet\, so check the conference website for updates. More in-depth conference information should be available nearer the time. If you have questions\, please email Meagan Richards.  (mrichards@hemophilia.org) \n  \n  \n 
URL:https://patientworthy.com/event/kallmann-syndrome-u-s-patient-meeting/
LOCATION:OH
CATEGORIES:Factor XIII Deficiency,Rare Disease
ORGANIZER;CN="National%20Hemophilia%20Foundation":MAILTO: handi@hemophilia.org
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20181012T074500
DTEND;TZID=America/New_York:20181014T124000
DTSTAMP:20261111T131007
CREATED:20180828T185156Z
LAST-MODIFIED:20180828T185156Z
UID:99946-1539330300-1539520800@patientworthy.com
SUMMARY:The International Pemphigus and Pemphigoid Foundation's Annual Patient Conference
DESCRIPTION:The 21st Annual IPPF Patient Conference\nThe annual conference for pemphigus and pemphigoid patients will offer several different tracks focusing on different topics related to these conditions that will allow patients to come away with a feeling of community and a new wealth of knowledge about the disease that affects them. \nLearn more about how to manage these conditions from fellow patients and pemphigus and pemphigoid experts. \nRegistration\n$250/$150/$100 (Regular/ Conference Only/ Awards Dinner Only)
URL:https://patientworthy.com/event/international-pemphigus-pemphigoid-patient-conference/
LOCATION:Doubletree Raleigh-Durham Airport\, 4810 Page Creek Lane\, Durham\, NC\, 27703\, United States
CATEGORIES:Pemphigoid,Pemphigus,Rare Disease
ORGANIZER;CN="International%20Pemphigus%20and%20Pemphigoid%20Foundation":MAILTO:info@pemphigus.org
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20181013
DTEND;VALUE=DATE:20181014
DTSTAMP:20261111T131007
CREATED:20180420T224227Z
LAST-MODIFIED:20180420T224227Z
UID:88705-1539388800-1539475199@patientworthy.com
SUMMARY:The Spinal CSF Leak Foundation's Annual Cedars-Sinai Intracranial Hypertension Symposium
DESCRIPTION:Intercranial Hypotension Symposium\nThis conference will feature scientific research presentations about intercranial hypotension and spinal CSF leaks. \nKeep tabs on the conference announcement page for more details\, which should be posted soon. \n 
URL:https://patientworthy.com/event/csf-leak-foundations-cedars-sinai-intracranial-hypertension/
LOCATION:OH
CATEGORIES:CSF Leak,Rare Disease
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20181013
DTEND;VALUE=DATE:20181014
DTSTAMP:20261111T131007
CREATED:20180913T204414Z
LAST-MODIFIED:20180913T204414Z
UID:101609-1539388800-1539475199@patientworthy.com
SUMMARY:The Amyloidosis Foundation's Annual Run For Your Life 5K/10K
DESCRIPTION:The 2nd Annual Run For Your Life 5K/10K\nPatient Worthy is delighted to be a platinum sponsor of this exciting fundraiser for the Amyloidosis Foundation. This Halloween themed event will feature handsome rewards for the race winners and for participants with the best Halloween costumes. Enjoy food and drink which will be provided after the races. \nProceeds will go towards amyloidosis research and programs to help patients and their families. Register early to guarantee a t-shirt and participation medal. Learn more about the event here. \nRegistration\n$35/$45 (5K/10K)
URL:https://patientworthy.com/event/amyloidosis-foundations-annual-run-life-5k-10k/
LOCATION:Independence Oaks County Park\, 9501 Sashabaw Road\, Clarkston\, MI\, 48348\, United States
CATEGORIES:Amyloidosis
ORGANIZER;CN="Amyloidosis%20Foundation":MAILTO:info@amyloidosis.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20181013T083000
DTEND;TZID=America/Los_Angeles:20181013T151500
DTSTAMP:20261111T131007
CREATED:20180807T191911Z
LAST-MODIFIED:20180807T191911Z
UID:98330-1539419400-1539443700@patientworthy.com
SUMMARY:Aplastic Anemia and MDS International Foundation's Living with Aplastic Anemia\, MDS\, or PNH Patient Conference in Los Angeles
DESCRIPTION:Living with Aplastic Anemia\, MDS\, or PNH Patient Conference\nJoin us and connect with patients\, families\, and caregivers who are living with aplastic anemia\, PNH\, MDS\, and AML.  Meet and hear top medical experts discuss what is the latest in a treatment and empower you with information about living with a bone marrow failure disease. \nRegistration for this event is FREE.
URL:https://patientworthy.com/event/aplastic-anemia-mds-international-foundations-pnh-conference/
LOCATION:The Westin Los Angeles Export\, 5400 W. Century Blvd.\, Los Angeles\, VA\, 90045\, United States
CATEGORIES:Aplastic Anemia,Myelodysplastic Syndromes,paroxysmal nocturnal hemoglobinuria
ORGANIZER;CN="Aplastic%20Anemia%20and%20MDS%20International%20Foundation":MAILTO:conference@aamds.org
END:VEVENT
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