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X-WR-CALNAME:Patient Worthy
X-ORIGINAL-URL:https://patientworthy.com
X-WR-CALDESC:Events for Patient Worthy
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TZID:America/New_York
BEGIN:DAYLIGHT
TZOFFSETFROM:-0500
TZOFFSETTO:-0400
TZNAME:EDT
DTSTART:20190310T070000
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DTSTART:20191103T060000
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DTSTART;VALUE=DATE:20190328
DTEND;VALUE=DATE:20190331
DTSTAMP:20261112T131904
CREATED:20190123T231642Z
LAST-MODIFIED:20190123T231642Z
UID:119472-1553731200-1553990399@patientworthy.com
SUMMARY:The Cystinosis Research Foundation's Day of Hope Family Conference
DESCRIPTION:The 2019 Cystinosis Research Foundation Day of Hope Family Conference\nThis conference for cystinosis patients and their families is a unique opportunity for attendees to learn the latest in cystinosis research and other topics related to the disease. Hear directly from CRF funded researchers and build community with fellow cystinosis patients. \nRegistration for the event is FREE.
URL:https://patientworthy.com/event/cystinosis-research-foundations-day-hope-conference/
LOCATION:Fashion Island Hotel\, 690 Newport Center Dr.\, Newport Beach\, CA\, United States
CATEGORIES:Cystinosis,Rare Disease
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20190328T180000
DTEND;TZID=America/New_York:20190328T200000
DTSTAMP:20261112T131904
CREATED:20190304T205205Z
LAST-MODIFIED:20190321T184306Z
UID:130519-1553796000-1553803200@patientworthy.com
SUMMARY:Birmingham\, AL Live Event: CIDP Patient Speaker Program
DESCRIPTION:Speakers: Estelle Helms\nLaura Rohe RN\, BSN\, AE-C\nTo register for this live event\, click here.  \nImportant Safety Information: WARNING: Thrombosis (blood clots) can occur with immune globulin products\, including Hizentra. Please see full safety and prescribing information here: http://bit.ly/HizentraptISI \nFor information on CIDP Webinar Wednesdays with this PW collaborator\, click here. And to register\, click here. \nAcknowledgment: This event is sponsored by CSL Behring as a part of our Patient Worthy Collaborative Content program. We only publish content that embodies our mission of providing relevant\, vetted and valuable information to the rare community.
URL:https://patientworthy.com/event/live-event-cidp-patient-speaker-program-11/
LOCATION:Gianmarco’s Restaurant\, 721 Broadway Street\, Birmingham\, AL\, 35209\, United States
CATEGORIES:Chronic Inflammatory Demyelinating Polyneuropathy
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20190328T183000
DTEND;TZID=America/New_York:20190328T203000
DTSTAMP:20261112T131904
CREATED:20190304T204632Z
LAST-MODIFIED:20190304T204632Z
UID:130516-1553797800-1553805000@patientworthy.com
SUMMARY:Albany\, NY Live Event: CIDP Patient Speaker Program
DESCRIPTION:Speakers: William Blouin\, MSN\, ARNP\, CPNP\nAppolos Laurore\nTo register for this live event\, click here.  \nImportant Safety Information: WARNING: Thrombosis (blood clots) can occur with immune globulin products\, including Hizentra. Please see full safety and prescribing information here: http://bit.ly/HizentraptISI \nFor information on CIDP Webinar Wednesdays with this PW collaborator\, click here. And to register\, click here. \nAcknowledgment: This event is sponsored by CSL Behring as a part of our Patient Worthy Collaborative Content program. We only publish content that embodies our mission of providing relevant\, vetted and valuable information to the rare community.
URL:https://patientworthy.com/event/live-event-cidp-patient-speaker-program-10/
LOCATION:Provence\, 1475 Western Avenue\, Albany\, NY\, 12203\, United States
CATEGORIES:Chronic Inflammatory Demyelinating Polyneuropathy
END:VEVENT
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