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X-WR-CALNAME:Patient Worthy
X-ORIGINAL-URL:https://patientworthy.com
X-WR-CALDESC:Events for Patient Worthy
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TZNAME:EDT
DTSTART:20190310T070000
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DTSTART:20191103T060000
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DTSTART;VALUE=DATE:20190328
DTEND;VALUE=DATE:20190331
DTSTAMP:20261111T120636
CREATED:20190123T231642Z
LAST-MODIFIED:20190123T231642Z
UID:119472-1553731200-1553990399@patientworthy.com
SUMMARY:The Cystinosis Research Foundation's Day of Hope Family Conference
DESCRIPTION:The 2019 Cystinosis Research Foundation Day of Hope Family Conference\nThis conference for cystinosis patients and their families is a unique opportunity for attendees to learn the latest in cystinosis research and other topics related to the disease. Hear directly from CRF funded researchers and build community with fellow cystinosis patients. \nRegistration for the event is FREE.
URL:https://patientworthy.com/event/cystinosis-research-foundations-day-hope-conference/
LOCATION:Fashion Island Hotel\, 690 Newport Center Dr.\, Newport Beach\, CA\, United States
CATEGORIES:Cystinosis,Rare Disease
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BEGIN:VEVENT
DTSTART;VALUE=DATE:20190329
DTEND;VALUE=DATE:20190331
DTSTAMP:20261111T120636
CREATED:20190208T220646Z
LAST-MODIFIED:20190208T220646Z
UID:125425-1553817600-1553990399@patientworthy.com
SUMMARY:The National Ataxia Foundation's Annual Ataxia Conference
DESCRIPTION:The 62nd NAF Annual Ataxia Conference\n“Ataxia: A Treatable Disease” \nAre you affected by ataxia? Then don’t miss out on the largest ataxia themed event in the world where patients learn\, share and network with each other\, and even have a little fun while doing it. Participants will leave this conference with the resources and motivation to tackle their ataxia head on. \nRegistration\nUntil March 23rd: $150/$205 (NAF members/non-members) \nOn-site: $200/$255
URL:https://patientworthy.com/event/national-ataxia-foundations-annual-ataxia-conference/
LOCATION:The Flamingo Las Vegas\, 3555 Las Vegas Boulevard South\, Las Vegas\, NV\, 89109\, United States
CATEGORIES:Ataxia
ORGANIZER;CN="National%20Ataxia%20Foundation":MAILTO:naf@ataxia.org
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BEGIN:VEVENT
DTSTART;VALUE=DATE:20190330
DTEND;VALUE=DATE:20190331
DTSTAMP:20261111T120636
CREATED:20190123T230209Z
LAST-MODIFIED:20190123T230209Z
UID:119458-1553904000-1553990399@patientworthy.com
SUMMARY:The Aplastic Anemia and MDS International Foundation's Living with Aplastic Anemia\, MDS\, PNH Conference
DESCRIPTION:The 2019 Living With Aplastic Anemia\, MDS\, PNH Patient and Family Conference\nThis unique conference\, which will be held in Albuquerque\, New Mexico is an exceptional opportunity for patients with aplastic anemia\, PNH\, or MDS to learn about their diseases from world renowned disease experts\, network and socialize with other patients\, and find inspiration and hope for the future. \nRegistration for this event is FREE and is expected to open soon. Click here to check for updates related to this event.
URL:https://patientworthy.com/event/aplastic-anemia-mds-foundations-conference/
LOCATION:CA
CATEGORIES:Aplastic Anemia
ORGANIZER;CN="Aplastic%20Anemia%20and%20MDS%20International%20Foundation":MAILTO:conference@aamds.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Denver:20190330T080000
DTEND;TZID=America/Denver:20190330T120000
DTSTAMP:20261111T120636
CREATED:20190205T224443Z
LAST-MODIFIED:20190205T224443Z
UID:123917-1553932800-1553947200@patientworthy.com
SUMMARY:The Aplastic Anemia and MDS International Foundation's Patient and Family Conference
DESCRIPTION:The 2019 Patient and Family Conference\nAlbuquerque\, NM \nThis patient conference is open to all patients with aplastic anemia\, myelodysplastic syndromes\, and related diseases such as various leukemias and paroxysmal nocturnal hemoglobinuria. This event is a great opportunity to hear about the latest in treatment and research for aplastic anemia\, myelodysplastic syndromes\, and related diseases. \nRegistration is FREE for patients\, their families\, and caregivers.
URL:https://patientworthy.com/event/aplastic-anemia-mds-international-foundations-patient-conference-2/
LOCATION:Albuquerque Sheraton Uptown\, 2600 Louisiana Blvd. NE\, Albuquerque\, NM\, 87110\, United States
CATEGORIES:Aplastic Anemia,Myelodysplastic Syndromes
ORGANIZER;CN="Aplastic%20Anemia%20and%20MDS%20International%20Foundation":MAILTO:conference@aamds.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20190330T090000
DTEND;TZID=America/New_York:20190330T143000
DTSTAMP:20261111T120636
CREATED:20190218T214304Z
LAST-MODIFIED:20190218T214521Z
UID:127732-1553936400-1553956200@patientworthy.com
SUMMARY:The Myelodysplastic Syndromes Foundation's Patient & Family/Caregiver Forum
DESCRIPTION:The MDS Patient & Family/Caregiver Forum\nat Jacksonville\, Florida \nHave you been affected by myelodysplastic syndromes (MDS)? Perhaps you have just been diagnosed or have been facing your disease for years. Either way\, the this event is an excellent opportunity for myelodysplastic syndromes patients and their families to learn the latest in disease research\, treatments\, and management strategies from acclaimed disease experts. Don’t miss this unique opportunity. \nTo register for this event\, click here.
URL:https://patientworthy.com/event/the-myelodysplastic-syndromes-foundations-patient-forum/
LOCATION:Mayo Clinic Cancer Center\, 4500 San Pablo Road\, Jacksonville\, FL\, 32224\, United States
CATEGORIES:Myelodysplastic Syndromes
ORGANIZER;CN="The%20MDS%20Foundation":MAILTO:patientliaison@mds-foundation.org
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