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X-WR-CALNAME:Patient Worthy
X-ORIGINAL-URL:https://patientworthy.com
X-WR-CALDESC:Events for Patient Worthy
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TZID:America/New_York
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TZOFFSETFROM:-0500
TZOFFSETTO:-0400
TZNAME:EDT
DTSTART:20190310T070000
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DTSTART:20191103T060000
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DTSTART;VALUE=DATE:20190626
DTEND;VALUE=DATE:20190630
DTSTAMP:20260405T195610
CREATED:20190514T151634Z
LAST-MODIFIED:20190514T151634Z
UID:140343-1561507200-1561852799@patientworthy.com
SUMMARY:The United Mitochondrial Disease Foundation's Mitochondrial Medicine 2019
DESCRIPTION:Mitochondrial Medicine 2019\nMitochondrial Medicine 2019 is the annual symposium hosted by the United Mitochondrial Disease Foundation\, an event that has been widely regarded by patient families\, researchers\, and physicians as the premiere annual event dedicated to mitochondrial disease research and treatment. \nWhile this event is focused on scientific research\, patients and their families are encouraged to attend to build community with each other and learn about the latest developments. \nFor registration information\, click here.
URL:https://patientworthy.com/event/united-mitochondrial-disease-foundations-mitochondrial-2019/
LOCATION:Hilton Alexandria Mark Center\, 5000 Seminary Road\, Alexandria\, VA\, 22311\, United States
CATEGORIES:Mitochondrial Disease,Rare Disease
ORGANIZER;CN="United%20Mitochondrial%20Disease%20Foundation":MAILTO:info@umdf.org
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BEGIN:VEVENT
DTSTART;VALUE=DATE:20190626
DTEND;VALUE=DATE:20190701
DTSTAMP:20260405T195610
CREATED:20190514T215135Z
LAST-MODIFIED:20190514T215135Z
UID:140438-1561507200-1561939199@patientworthy.com
SUMMARY:Parent Project Muscular Dystrophy's 2019 Annual Conference
DESCRIPTION:The 2019 Annual Conference\nThis will be the 25th year of PPMD’s annual conference\, which is geared towards Duchenne muscular dystrophy patients\, their families\, researchers\, caregivers\, and physicians. \nDon’t miss this opportunity to join a closely knit community of patients and learn critical information about the latest research\, therapies\, and care methods. Sessions will be held on a variety of essential topics that are relevant to the Duchenne muscular dystrophy community. \nFor registration information\, click here.
URL:https://patientworthy.com/event/parent-project-muscular-dystrophys-2019-annual-conference/
LOCATION:Renaissance Orlando at SeaWorld\, 6677 Sea Harbor Drive\, Orlando\, FL\, United States
CATEGORIES:Duchenne Muscular Dystrophy
ORGANIZER;CN="Parent%20Project%20Muscular%20Dystrophy":MAILTO:info@parentprojectmd.org
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20190627
DTEND;VALUE=DATE:20190630
DTSTAMP:20260405T195610
CREATED:20190514T153527Z
LAST-MODIFIED:20190514T153527Z
UID:140347-1561593600-1561852799@patientworthy.com
SUMMARY:The Huntington's Disease Society of America's Annual Convention
DESCRIPTION:HDSA 34 Boston: The 34th Annual HDSA Convention\nThe 34th annual convention is tailored for Huntington’s disease patients and their families. Join the HDSA for three days of educational sessions\, community building and sharing\, and just plain fun. \nAttendees will have the opportunity to learn about the latest in Huntington’s disease research and treatment and network with others that are affected by Huntington’s. \nFor registration information\, click here.
URL:https://patientworthy.com/event/huntingtons-disease-society-americas-annual-convention/
LOCATION:Boston Marriott Copley Place\, 110 Huntington Avenue\, Boston\, MA\, 02115\, United States
ORGANIZER;CN="Huntington%27s%20Disease%20Society%20of%20America":MAILTO:hdsainfo@hdsa.org
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