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X-WR-CALNAME:Patient Worthy
X-ORIGINAL-URL:https://patientworthy.com
X-WR-CALDESC:Events for Patient Worthy
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TZID:America/New_York
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DTSTART:20190310T070000
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DTSTART:20191103T060000
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DTSTART;VALUE=DATE:20190626
DTEND;VALUE=DATE:20190630
DTSTAMP:20260407T135520
CREATED:20190514T151634Z
LAST-MODIFIED:20190514T151634Z
UID:140343-1561507200-1561852799@patientworthy.com
SUMMARY:The United Mitochondrial Disease Foundation's Mitochondrial Medicine 2019
DESCRIPTION:Mitochondrial Medicine 2019\nMitochondrial Medicine 2019 is the annual symposium hosted by the United Mitochondrial Disease Foundation\, an event that has been widely regarded by patient families\, researchers\, and physicians as the premiere annual event dedicated to mitochondrial disease research and treatment. \nWhile this event is focused on scientific research\, patients and their families are encouraged to attend to build community with each other and learn about the latest developments. \nFor registration information\, click here.
URL:https://patientworthy.com/event/united-mitochondrial-disease-foundations-mitochondrial-2019/
LOCATION:Hilton Alexandria Mark Center\, 5000 Seminary Road\, Alexandria\, VA\, 22311\, United States
CATEGORIES:Mitochondrial Disease,Rare Disease
ORGANIZER;CN="United%20Mitochondrial%20Disease%20Foundation":MAILTO:info@umdf.org
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20190626
DTEND;VALUE=DATE:20190701
DTSTAMP:20260407T135520
CREATED:20190514T215135Z
LAST-MODIFIED:20190514T215135Z
UID:140438-1561507200-1561939199@patientworthy.com
SUMMARY:Parent Project Muscular Dystrophy's 2019 Annual Conference
DESCRIPTION:The 2019 Annual Conference\nThis will be the 25th year of PPMD’s annual conference\, which is geared towards Duchenne muscular dystrophy patients\, their families\, researchers\, caregivers\, and physicians. \nDon’t miss this opportunity to join a closely knit community of patients and learn critical information about the latest research\, therapies\, and care methods. Sessions will be held on a variety of essential topics that are relevant to the Duchenne muscular dystrophy community. \nFor registration information\, click here.
URL:https://patientworthy.com/event/parent-project-muscular-dystrophys-2019-annual-conference/
LOCATION:Renaissance Orlando at SeaWorld\, 6677 Sea Harbor Drive\, Orlando\, FL\, United States
CATEGORIES:Duchenne Muscular Dystrophy
ORGANIZER;CN="Parent%20Project%20Muscular%20Dystrophy":MAILTO:info@parentprojectmd.org
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20190627
DTEND;VALUE=DATE:20190630
DTSTAMP:20260407T135520
CREATED:20190514T153527Z
LAST-MODIFIED:20190514T153527Z
UID:140347-1561593600-1561852799@patientworthy.com
SUMMARY:The Huntington's Disease Society of America's Annual Convention
DESCRIPTION:HDSA 34 Boston: The 34th Annual HDSA Convention\nThe 34th annual convention is tailored for Huntington’s disease patients and their families. Join the HDSA for three days of educational sessions\, community building and sharing\, and just plain fun. \nAttendees will have the opportunity to learn about the latest in Huntington’s disease research and treatment and network with others that are affected by Huntington’s. \nFor registration information\, click here.
URL:https://patientworthy.com/event/huntingtons-disease-society-americas-annual-convention/
LOCATION:Boston Marriott Copley Place\, 110 Huntington Avenue\, Boston\, MA\, 02115\, United States
ORGANIZER;CN="Huntington%27s%20Disease%20Society%20of%20America":MAILTO:hdsainfo@hdsa.org
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20190628
DTEND;VALUE=DATE:20190701
DTSTAMP:20260407T135520
CREATED:20190515T210531Z
LAST-MODIFIED:20190515T210531Z
UID:140567-1561680000-1561939199@patientworthy.com
SUMMARY:Association for X and Y Variations' AXYS Family Conference
DESCRIPTION:The 2019 AXYS Family Conference\nAtlanta\, Georgia \nAre you or one of your family members affected by Trisomy X or other X and Y chromosome variations? Then this conference is for you. Don’t miss this opportunity to hear from world-renowned researchers and experts about X and Y chromosome conditions like Trisomy X. \nLearn practical information about a variety of different conditions and the effects they can have at various ages. \nFor registration info\, click here.
URL:https://patientworthy.com/event/association-x-y-variations-axys-family-conference/
LOCATION:Emory Conference Center and Hotel\, 1615 Clifton Road\, Atlanta\, GA\, United States
CATEGORIES:Rare Disease,Trisomy X
ORGANIZER;CN="Association%20for%20X%20and%20Y%20Chromosome%20Variations":MAILTO:info@genetic.org
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20190628
DTEND;VALUE=DATE:20190702
DTSTAMP:20260407T135520
CREATED:20190515T212343Z
LAST-MODIFIED:20190515T212343Z
UID:140571-1561680000-1562025599@patientworthy.com
SUMMARY:Cure SMA's Annual SMA Conference
DESCRIPTION:The 2019 Annual SMA Conference\nAnaheim\, California \nCure SMA’s annual conference is the largest conference in world focused on spinal muscular atrophy. The event includes and event for both patient families and researchers\, allowing for a unique environment of collaboration and comradery. \nDon’t miss this opportunity to learn the latest about spinal muscular atrophy\, build community\, and share with each other. \nFor registration information\, click here.
URL:https://patientworthy.com/event/cure-smas-annual-sma-conference-2/
LOCATION:Disneyland Hotel\, 1150 Magic Way\, Anaheim\, CA\, 92802\, United States
CATEGORIES:Rare Disease,Spinal Muscular Atrophy
ORGANIZER;CN="Cure%20SMA":MAILTO:familysupport@curesma.org
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20190628
DTEND;VALUE=DATE:20190706
DTSTAMP:20260407T135520
CREATED:20190516T201821Z
LAST-MODIFIED:20190516T202213Z
UID:140716-1561680000-1562371199@patientworthy.com
SUMMARY:Little People of America's 2019 National Conference
DESCRIPTION:The 2019 LPA 62nd Annual National Conference\nSan Francisco\, California \nThe Little People of America’s annual conference is the ultimate experience for people affected by dwarfism and diastrophic dysplasia. This event will be focused on community\, education\, comradery\, and fun. \nDon’t miss out on the conference’s signature events\, such as the LPA’s Got Talent Show\, the LPA Fashion Show\, and more. The conference will also feature off-site activities that will give participants the opportunity to explore the unique and beautiful San Francisco Bay Area. \nFor registration information\, click here.
URL:https://patientworthy.com/event/little-people-americas-2019-national-conference/
LOCATION:San Francisco Marriot Marquis\, 780 Mission Street\, San Francisco\, CA\, 94103\, United States
CATEGORIES:Diastrophic Dysplasia,Dwarfism
ORGANIZER;CN="Little%20People%20of%20America":MAILTO:info@lpaonline.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20190629T100000
DTEND;TZID=America/Los_Angeles:20190629T150000
DTSTAMP:20260407T135520
CREATED:20190531T221335Z
LAST-MODIFIED:20190531T221335Z
UID:142517-1561802400-1561820400@patientworthy.com
SUMMARY:The Hypersomnia Foundation's Educational Meeting
DESCRIPTION:The HF Educational Meeting\nSeattle\, Oregon \nThe conference will be an opportunity for patient families and medical experts to meet and learn about the latest in idiopathic research. \nAdditionally\, families will be able to consult with health professionals\, build communities\, and exchange ideas. \nFor registration information\, click here.\n 
URL:https://patientworthy.com/event/the-hypersomnia-foundations-educational-meeting/
LOCATION:Seattle Airport Marriott\, 3201 South 176th Street\, Seattle\, OR\, 98188\, United States
CATEGORIES:Hypersomnia
ORGANIZER;CN="Hypersomnia%20Foundation":MAILTO:info@hypersomniafoundation.org
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