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X-WR-CALNAME:Patient Worthy
X-ORIGINAL-URL:https://patientworthy.com
X-WR-CALDESC:Events for Patient Worthy
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TZID:America/New_York
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TZOFFSETFROM:-0500
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TZNAME:EDT
DTSTART:20190310T070000
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DTSTART:20191103T060000
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BEGIN:VEVENT
DTSTART;VALUE=DATE:20190626
DTEND;VALUE=DATE:20190701
DTSTAMP:20261013T000454
CREATED:20190514T215135Z
LAST-MODIFIED:20190514T215135Z
UID:140438-1561507200-1561939199@patientworthy.com
SUMMARY:Parent Project Muscular Dystrophy's 2019 Annual Conference
DESCRIPTION:The 2019 Annual Conference\nThis will be the 25th year of PPMD’s annual conference\, which is geared towards Duchenne muscular dystrophy patients\, their families\, researchers\, caregivers\, and physicians. \nDon’t miss this opportunity to join a closely knit community of patients and learn critical information about the latest research\, therapies\, and care methods. Sessions will be held on a variety of essential topics that are relevant to the Duchenne muscular dystrophy community. \nFor registration information\, click here.
URL:https://patientworthy.com/event/parent-project-muscular-dystrophys-2019-annual-conference/
LOCATION:Renaissance Orlando at SeaWorld\, 6677 Sea Harbor Drive\, Orlando\, FL\, United States
CATEGORIES:Duchenne Muscular Dystrophy
ORGANIZER;CN="Parent%20Project%20Muscular%20Dystrophy":MAILTO:info@parentprojectmd.org
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BEGIN:VEVENT
DTSTART;VALUE=DATE:20190628
DTEND;VALUE=DATE:20190701
DTSTAMP:20261013T000454
CREATED:20190515T210531Z
LAST-MODIFIED:20190515T210531Z
UID:140567-1561680000-1561939199@patientworthy.com
SUMMARY:Association for X and Y Variations' AXYS Family Conference
DESCRIPTION:The 2019 AXYS Family Conference\nAtlanta\, Georgia \nAre you or one of your family members affected by Trisomy X or other X and Y chromosome variations? Then this conference is for you. Don’t miss this opportunity to hear from world-renowned researchers and experts about X and Y chromosome conditions like Trisomy X. \nLearn practical information about a variety of different conditions and the effects they can have at various ages. \nFor registration info\, click here.
URL:https://patientworthy.com/event/association-x-y-variations-axys-family-conference/
LOCATION:Emory Conference Center and Hotel\, 1615 Clifton Road\, Atlanta\, GA\, United States
CATEGORIES:Rare Disease,Trisomy X
ORGANIZER;CN="Association%20for%20X%20and%20Y%20Chromosome%20Variations":MAILTO:info@genetic.org
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20190628
DTEND;VALUE=DATE:20190702
DTSTAMP:20261013T000454
CREATED:20190515T212343Z
LAST-MODIFIED:20190515T212343Z
UID:140571-1561680000-1562025599@patientworthy.com
SUMMARY:Cure SMA's Annual SMA Conference
DESCRIPTION:The 2019 Annual SMA Conference\nAnaheim\, California \nCure SMA’s annual conference is the largest conference in world focused on spinal muscular atrophy. The event includes and event for both patient families and researchers\, allowing for a unique environment of collaboration and comradery. \nDon’t miss this opportunity to learn the latest about spinal muscular atrophy\, build community\, and share with each other. \nFor registration information\, click here.
URL:https://patientworthy.com/event/cure-smas-annual-sma-conference-2/
LOCATION:Disneyland Hotel\, 1150 Magic Way\, Anaheim\, CA\, 92802\, United States
CATEGORIES:Rare Disease,Spinal Muscular Atrophy
ORGANIZER;CN="Cure%20SMA":MAILTO:familysupport@curesma.org
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20190628
DTEND;VALUE=DATE:20190706
DTSTAMP:20261013T000455
CREATED:20190516T201821Z
LAST-MODIFIED:20190516T202213Z
UID:140716-1561680000-1562371199@patientworthy.com
SUMMARY:Little People of America's 2019 National Conference
DESCRIPTION:The 2019 LPA 62nd Annual National Conference\nSan Francisco\, California \nThe Little People of America’s annual conference is the ultimate experience for people affected by dwarfism and diastrophic dysplasia. This event will be focused on community\, education\, comradery\, and fun. \nDon’t miss out on the conference’s signature events\, such as the LPA’s Got Talent Show\, the LPA Fashion Show\, and more. The conference will also feature off-site activities that will give participants the opportunity to explore the unique and beautiful San Francisco Bay Area. \nFor registration information\, click here.
URL:https://patientworthy.com/event/little-people-americas-2019-national-conference/
LOCATION:San Francisco Marriot Marquis\, 780 Mission Street\, San Francisco\, CA\, 94103\, United States
CATEGORIES:Diastrophic Dysplasia,Dwarfism
ORGANIZER;CN="Little%20People%20of%20America":MAILTO:info@lpaonline.org
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