BEGIN:VCALENDAR
VERSION:2.0
PRODID:-//Patient Worthy - ECPv5.12.4//NONSGML v1.0//EN
CALSCALE:GREGORIAN
METHOD:PUBLISH
X-WR-CALNAME:Patient Worthy
X-ORIGINAL-URL:https://patientworthy.com
X-WR-CALDESC:Events for Patient Worthy
BEGIN:VTIMEZONE
TZID:America/New_York
BEGIN:DAYLIGHT
TZOFFSETFROM:-0500
TZOFFSETTO:-0400
TZNAME:EDT
DTSTART:20190310T070000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:-0400
TZOFFSETTO:-0500
TZNAME:EST
DTSTART:20191103T060000
END:STANDARD
END:VTIMEZONE
BEGIN:VEVENT
DTSTART;VALUE=DATE:20190711
DTEND;VALUE=DATE:20190713
DTSTAMP:20260727T003340
CREATED:20190429T210634Z
LAST-MODIFIED:20190429T210634Z
UID:138569-1562803200-1562975999@patientworthy.com
SUMMARY:The Glut1 Deficiency Foundation's 8th Biennial Conference
DESCRIPTION:The 2019 Biennial Conference\nThe Glut1 Deficiency Foundation’s biennial conference is an event that you won’t want to miss. The conference will feature a variety of sessions related to various topics related to Glut1 deficiency. The 2019 conference will also include special sessions dedicated to the adult patient experience of Glut1 deficiency. \n\nRegistration for Glut1 deficiency patients is FREE. For more registration information\, click here.
URL:https://patientworthy.com/event/glut1-deficiency-foundations-8th-biennial-conference/
LOCATION:Hilton Crystal City\, 2399 JEFFERSON DAVIS HIGHWAY\, Arlington\, VA\, 22202\, United States
CATEGORIES:Glut1 Deficiency,Rare Disease
ORGANIZER;CN="Glut1%20Deficiency%20Foundation":MAILTO:​info@G1DFoundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20190712
DTEND;VALUE=DATE:20190714
DTSTAMP:20260727T003340
CREATED:20190605T202633Z
LAST-MODIFIED:20190605T202633Z
UID:143074-1562889600-1563062399@patientworthy.com
SUMMARY:Soft Bones' La Jolla\, California Patient Meeting
DESCRIPTION:2019 Soft Bones Patient Meeting\nLa Jolla\, California \nAre you a hypophosphatasia patient? Well don’t miss this important patient event. At this conference\, hypophosphatasia patients and their families will have the opportunity to learn the latest about clinical care and treatment options for hypophosphotasia as well as hear about the latest research initiatives.
URL:https://patientworthy.com/event/soft-bones-la-jolla-california-patient-meeting/
LOCATION:Sanford Burnham Prebys Medical Discovery Institute\, 10901 North Torrey Pines Road\, La Jolla\, CA\, 92037\, United States
CATEGORIES:Hypophosphatasia
END:VEVENT
END:VCALENDAR