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X-WR-CALNAME:Patient Worthy
X-ORIGINAL-URL:https://patientworthy.com
X-WR-CALDESC:Events for Patient Worthy
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TZID:America/New_York
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TZOFFSETFROM:-0500
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TZNAME:EDT
DTSTART:20190310T070000
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DTSTART:20191103T060000
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DTSTART;VALUE=DATE:20190712
DTEND;VALUE=DATE:20190714
DTSTAMP:20260726T213027
CREATED:20190605T202633Z
LAST-MODIFIED:20190605T202633Z
UID:143074-1562889600-1563062399@patientworthy.com
SUMMARY:Soft Bones' La Jolla\, California Patient Meeting
DESCRIPTION:2019 Soft Bones Patient Meeting\nLa Jolla\, California \nAre you a hypophosphatasia patient? Well don’t miss this important patient event. At this conference\, hypophosphatasia patients and their families will have the opportunity to learn the latest about clinical care and treatment options for hypophosphotasia as well as hear about the latest research initiatives.
URL:https://patientworthy.com/event/soft-bones-la-jolla-california-patient-meeting/
LOCATION:Sanford Burnham Prebys Medical Discovery Institute\, 10901 North Torrey Pines Road\, La Jolla\, CA\, 92037\, United States
CATEGORIES:Hypophosphatasia
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20190713T120000
DTEND;TZID=America/New_York:20190713T130000
DTSTAMP:20260726T213027
CREATED:20190703T150934Z
LAST-MODIFIED:20190703T150934Z
UID:145904-1563019200-1563022800@patientworthy.com
SUMMARY:Tampa\, FL Live Event: CIDP Patient Speaker Program
DESCRIPTION:Speakers: Carla Duff\, ANP\nDani Ball\nTo register for this live event\, click here.  \nFor information on CIDP Webinar Wednesdays with this PW collaborator\, click here. And to register\, click here. \nAcknowledgment: This event post is sponsored by CSL Behring and is promoted through the Patient Worthy Collaborative Content program. We only publish content that embodies our mission of providing relevant\, vetted and valuable information to the rare disease community.
URL:https://patientworthy.com/event/tampa-fl-event-cidp-patient-speaker-program/
LOCATION:Eddie V’s Prime Seafood\, 4400 West Boy Scout Blvd.\, Tampa\, FL\, 33607\, United States
CATEGORIES:Chronic Inflammatory Demyelinating Polyneuropathy,Rare Disease
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