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X-WR-CALDESC:Events for Patient Worthy
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DTSTART:20190310T070000
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DTSTART;VALUE=DATE:20190724
DTEND;VALUE=DATE:20190730
DTSTAMP:20261111T112317
CREATED:20190516T195107Z
LAST-MODIFIED:20190516T195107Z
UID:140714-1563926400-1564444799@patientworthy.com
SUMMARY:PMD Family Support's PMD Family Support Conference
DESCRIPTION:The 30th Annual PMD Family Support Conference 2019\nIndianapolis\, Indiana \nThis event is a valuable opportunity for Pelizaeus-Merzbacher disease patients and their families to come together for a valuable time of mutual support\, community building\, and education. \nThis conference will include plenty of time to kick back and socialize as well as plenty of opportunities to hear from Pelizaeus-Merzbacher disease experts. \nTo register for this event\, click here.
URL:https://patientworthy.com/event/pmd-family-supports-pmd-family-support-conference/
LOCATION:Embassy Suites Indianapolis Downtown\, 110 W Washington Street\, Indianapolis\, IN\, 46204\, United States
CATEGORIES:Pelizaeus-Merzbacher Disease
ORGANIZER;CN="PMD%20Family%20Support":MAILTO:PMDFS.Indy@gmail.com
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BEGIN:VEVENT
DTSTART;VALUE=DATE:20190725
DTEND;VALUE=DATE:20190728
DTSTAMP:20261111T112317
CREATED:20190417T211002Z
LAST-MODIFIED:20190418T160555Z
UID:137231-1564012800-1564271999@patientworthy.com
SUMMARY:ISMRD The International Advocate for Glycoprotein Storage Diseases' 6th International Conference on Glycoproteinoses
DESCRIPTION:The 6th International Conference of Glycoproteinoses\n“Translating Scientific Discovery Into Therapies” \nThis international event will include researchers\, patients\, and caregivers that are involved in the international glycoprotein disease communities. This event will be a tremendous opportunity for the sharing of both knowledge and inspiration that will help improve the lives of people affected by glycoprotein diseases. \nRegistration for this conference is free for patients. Registration pricing info for other attendees can be found here.
URL:https://patientworthy.com/event/international-glycoprotein-storage-diseases-international-glycoproteinoses/
LOCATION:Atlanta Marriott Alpharetta\, 5750 Windward Parkway\, Alpharetta\, GA\, 30005\, United States
CATEGORIES:Glycoprotein Diseases,Rare Disease
ORGANIZER;CN="The%20International%20Advocate%20for%20Glycoprotein%20Storage%20Diseases":MAILTO:info@ismrd.org
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DTSTART;TZID=America/Denver:20190727T100000
DTEND;TZID=America/Denver:20190727T160000
DTSTAMP:20261111T112317
CREATED:20190116T231303Z
LAST-MODIFIED:20190116T232648Z
UID:117286-1564221600-1564243200@patientworthy.com
SUMMARY:The Foundation for Sarcoidosis Research's Denver Patient Education Conference
DESCRIPTION:The Denver Patient Education Conference 2019\nAre you a sarcoidosis patient? Well don’t miss this important patient event. At this conference\, sarcoidosis patients and their families will have the opportunity to learn the latest about clinical care and treatment options for sarcoidosis as well as hear about the latest research initiatives supported by the FSR. \nRegistration for this event will open on May 6th\, 2019. Check this link for the latest updates for this event as they are posted.\nConference Registration: $10
URL:https://patientworthy.com/event/the-foundation-for-sarcoidosis-researchs-denver-patient-education-conference/
LOCATION:IN
CATEGORIES:Sarcoidosis
ORGANIZER;CN="Foundation%20for%20Sarcoidosis%20Research":MAILTO:info@stopsarcoidosis.org
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