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X-WR-CALNAME:Patient Worthy
X-ORIGINAL-URL:https://patientworthy.com
X-WR-CALDESC:Events for Patient Worthy
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TZID:America/New_York
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TZOFFSETFROM:-0500
TZOFFSETTO:-0400
TZNAME:EDT
DTSTART:20190310T070000
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DTSTART:20191103T060000
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DTSTART;VALUE=DATE:20190918
DTEND;VALUE=DATE:20190921
DTSTAMP:20260629T005434
CREATED:20190429T191831Z
LAST-MODIFIED:20190429T191831Z
UID:138535-1568764800-1569023999@patientworthy.com
SUMMARY:Global Genes' RARE Patient Advocacy Summit
DESCRIPTION:The Global Genes RARE Patient Advocacy Summit\nThis conference will be a convergence of a variety of rare disease stakeholders\, such as rare disease patients\, world renowned experts\, and caregivers. Attendees will leave this event with the skills necessary to be effective rare disease advocates as well as the latest knowledge about the latest in rare disease research and treatment. \n\nTo register for this event\, click here.
URL:https://patientworthy.com/event/global-genes-rare-patient-advocacy-summit/
LOCATION:Sheraton San Diego Hotel & Marina\, 1380 Harbor Island Drive\, San Diego\, CA\, 92101\, United States
CATEGORIES:Rare Disease
ORGANIZER;CN="Global%20Genes":MAILTO:events@globalgenes.org
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20190919T183000
DTEND;TZID=America/New_York:20190919T200000
DTSTAMP:20260629T005434
CREATED:20190807T200740Z
LAST-MODIFIED:20190807T211131Z
UID:149270-1568917800-1568923200@patientworthy.com
SUMMARY:Manhattan\, NY Crohn's and Colitis Live Patient Program
DESCRIPTION:Speakers: Michele Kissous-Hunt\, PA\, Fifth Avenue GI\nMichelle\, living with moderate CD \nLearn More About a Treatment Option for Adults with Moderate to Severe Ulcerative Colitis and Crohn’s Disease\nRegister to attend a free program by calling 1-833-885-8571 or visiting www.crohnscolitisprograms.com. \nAcknowledgment: This event post is sponsored by Takeda as a part of our Patient Worthy Collaborative Content program. We only publish content that embodies our mission of providing relevant\, vetted and valuable information to the rare community.
URL:https://patientworthy.com/event/manhattan-ny-crohns-colitis-live-patient-program/
LOCATION:New York Marriott Marquis\, 1535 Broadway\, New York\, NY\, 10036\, United States
CATEGORIES:Crohn's Disease,Ulcerative Colitis
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20190919T190000
DTEND;TZID=America/New_York:20190919T200000
DTSTAMP:20260629T005434
CREATED:20190821T215449Z
LAST-MODIFIED:20190821T215449Z
UID:150568-1568919600-1568923200@patientworthy.com
SUMMARY:Corpus Christi\, TX Live Event: Primary Immunodeficiency Patient Speaker Program
DESCRIPTION:Speakers: Darlene Madore\, MSN\, APRN\, CPNP-PC\, BSN\, RN\nEric Nixon\nTo register for this live event\, click here.  \nFor information on PI Webinar Wednesdays with this PW collaborator\, click here. And to register\, click here. \nAcknowledgment: This event post is sponsored by CSL Behring and is promoted through the Patient Worthy Collaborative Content program. We only publish content that embodies our mission of providing relevant\, vetted and valuable information to the rare disease community.
URL:https://patientworthy.com/event/corpus-christi-event-pi-patient-speaker-program/
LOCATION:Katz 21\, 5702 Spohn Drive\, Corpus Christi\, TX\, 78414\, United States
CATEGORIES:Primary Immunodeficiencies
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