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X-WR-CALNAME:Patient Worthy
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X-WR-CALDESC:Events for Patient Worthy
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DTSTART:20190310T070000
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DTSTART:20191103T060000
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DTSTART;VALUE=DATE:20190918
DTEND;VALUE=DATE:20190921
DTSTAMP:20260628T234445
CREATED:20190429T191831Z
LAST-MODIFIED:20190429T191831Z
UID:138535-1568764800-1569023999@patientworthy.com
SUMMARY:Global Genes' RARE Patient Advocacy Summit
DESCRIPTION:The Global Genes RARE Patient Advocacy Summit\nThis conference will be a convergence of a variety of rare disease stakeholders\, such as rare disease patients\, world renowned experts\, and caregivers. Attendees will leave this event with the skills necessary to be effective rare disease advocates as well as the latest knowledge about the latest in rare disease research and treatment. \n\nTo register for this event\, click here.
URL:https://patientworthy.com/event/global-genes-rare-patient-advocacy-summit/
LOCATION:Sheraton San Diego Hotel & Marina\, 1380 Harbor Island Drive\, San Diego\, CA\, 92101\, United States
CATEGORIES:Rare Disease
ORGANIZER;CN="Global%20Genes":MAILTO:events@globalgenes.org
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20190920
DTEND;VALUE=DATE:20190923
DTSTAMP:20260628T234445
CREATED:20190429T202150Z
LAST-MODIFIED:20190429T202150Z
UID:138550-1568937600-1569196799@patientworthy.com
SUMMARY:The Chinese Organization for Rare Disorders' 8th China Rare Disease Summit
DESCRIPTION:The Eighth China Rare Disease Summit\nThe China Rare Disease Summit is the largest rare disease focused event held in China. A variety of rare disease stakeholders from across the country will converge for an event of research presentations and collaboration. \n\nFor registration information\, click here.
URL:https://patientworthy.com/event/chinese-organization-rare-disorders-china-rare-disease/
LOCATION:The Coli Hotel\, Dayun Rd\, Long Gang Zhong Xin Cheng\, Longgang Qu\, Shenzhen Shi\, Guangdong Sheng\, Shenzen\, Guangdong\, 518172\, China
CATEGORIES:Rare Disease
ORGANIZER;CN="The%20Chinese%20Organization%20for%20Rare%20Disorders":MAILTO:public@cord.org.cn
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DTSTART;TZID=America/Los_Angeles:20190920T080000
DTEND;TZID=America/Los_Angeles:20190921T170000
DTSTAMP:20260628T234445
CREATED:20190827T211822Z
LAST-MODIFIED:20190827T211822Z
UID:151137-1568966400-1569085200@patientworthy.com
SUMMARY:The Cure GM1 Foundation's GM1 Family Meeting
DESCRIPTION:The GM1 Family Meeting\nSeptember 20th\, 2019 \nSan Diego\, CA \nThis GM1 Family Meeting is intended for all GM1 patients and their families. Don’t miss this opportunity to learn about the latest research\, advocate with fellow patients\, and build community. The event will also be taking place near the same time and place as the Global Genes Rare Patient Advocacy Summit. \nTo register for the FREE GM1 Family Meeting\, click here.
URL:https://patientworthy.com/event/cure-gm1-foundations-gm1-family-meeting/
LOCATION:Holiday Inn Bayside\, 4875 N Harbor Dr\, San Diego\, CA\, 92106\, United States
CATEGORIES:GM1 Gangliosidoses
ORGANIZER;CN="Cure%20GM1%20Foundation":MAILTO:info@curegm1.org
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