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X-WR-CALNAME:Patient Worthy
X-ORIGINAL-URL:https://patientworthy.com
X-WR-CALDESC:Events for Patient Worthy
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DTSTART:20190310T070000
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DTSTART:20191103T060000
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DTSTART;VALUE=DATE:20190924
DTEND;VALUE=DATE:20190926
DTSTAMP:20260627T145439
CREATED:20190610T140806Z
LAST-MODIFIED:20190610T140806Z
UID:143375-1569283200-1569455999@patientworthy.com
SUMMARY:Kisaco Research's Rare Disease Diagnostics Summit
DESCRIPTION:Rare Disease Diagnostics Summit\n“Reducing the Diagnostic Odyssey to Improve Patient Outcomes” \nBoston\, Massachusetts \nThe diagnostic component of genetic rare diseases must be addressed. More than 350 million people are living with a rare disease. On average it takes 7 different consultations before an initial referral to a clinical geneticist and a minimum of 5 years to completely diagnose a patient\, with 70-90% of cases going undiagnosed. With roughly 7\,000 known rare diseases\, 80% have a genetic crisis. \nThe numbers are clear\, and it’s time to act now. \nThis event will bring together drug companies\, patient advocacies\, diagnostic providers\, insurance companies\, and other key stakeholders to facilitate earlier and better diagnosis of rare genetic diseases. \nThis event will enable partnerships between diagnostic and pharma companies for companion diagnostics\, provide a platform for industry to build the much-needed relationships with patient advocacies\, and facilitate knowledge-sharing on genetic discovery\, biomarkers\, disease mechanisms\, and novel strategies to improve early rare genetic disease diagnosis. \nFor registration info\, click here.\nStay tuned for more information about this event.
URL:https://patientworthy.com/event/kisaco-researchs-rare-disease-diagnostics-summit/
CATEGORIES:Rare Disease
ORGANIZER;CN="Kisaco%20Research":MAILTO:events@kisacoresearch.com
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20190924T183000
DTEND;TZID=America/New_York:20190924T193000
DTSTAMP:20260627T145439
CREATED:20190812T210531Z
LAST-MODIFIED:20190812T210531Z
UID:149641-1569349800-1569353400@patientworthy.com
SUMMARY:Minneapolis\, MN Live Event: CIDP Patient Speaker Program
DESCRIPTION:Speakers: Laura Rohe\, RN\, BSN\, IgCN\, AE-C\nElizabeth Thirtyacre\nTo register for this live event\, click here.  \nFor information on CIDP Webinar Wednesdays with this PW collaborator\, click here. And to register\, click here. \nAcknowledgment: This event post is sponsored by CSL Behring and is promoted through the Patient Worthy Collaborative Content program. We only publish content that embodies our mission of providing relevant\, vetted and valuable information to the rare disease community.
URL:https://patientworthy.com/event/minneapolis-mn-event-cidp-patient-speaker-program/
LOCATION:Stella’s Fish Cafe\, 1400 West Lake Street\, Minneapolis\, MN\, 55408\, United States
CATEGORIES:Chronic Inflammatory Demyelinating Polyneuropathy
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20190924T190000
DTEND;TZID=America/New_York:20190924T200000
DTSTAMP:20260627T145439
CREATED:20190812T211825Z
LAST-MODIFIED:20190812T211825Z
UID:149646-1569351600-1569355200@patientworthy.com
SUMMARY:King of Prussia\, PA Live Event: CIDP Patient Speaker Program
DESCRIPTION:Speakers: Robin Yawn\, RN\, BSN\nPatricia Skinner\nTo register for this live event\, click here.  \nFor information on CIDP Webinar Wednesdays with this PW collaborator\, click here. And to register\, click here. \nAcknowledgment: This event post is sponsored by CSL Behring and is promoted through the Patient Worthy Collaborative Content program. We only publish content that embodies our mission of providing relevant\, vetted and valuable information to the rare disease community.
URL:https://patientworthy.com/event/king-prussia-event-cidp-patient-speaker-program/
LOCATION:Maggiano’s Little Italy- King of Prussia\, 205 Mall Boulevard\, King of Prussia\, PA\, 19406\, United States
CATEGORIES:Chronic Inflammatory Demyelinating Polyneuropathy
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20190924T190000
DTEND;TZID=America/New_York:20190924T200000
DTSTAMP:20260627T145439
CREATED:20190821T220131Z
LAST-MODIFIED:20190821T220131Z
UID:150571-1569351600-1569355200@patientworthy.com
SUMMARY:Lakeland\, FL Live Event: Primary Immunodeficiency Patient Speaker Program
DESCRIPTION:Speakers: Carla Duff\, ARNP\, CPNP-PC\, MSN\, CCRP\, IgCN\nCarl Schlacht\nTo register for this live event\, click here.  \nFor information on PI Webinar Wednesdays with this PW collaborator\, click here. And to register\, click here. \nAcknowledgment: This event post is sponsored by CSL Behring and is promoted through the Patient Worthy Collaborative Content program. We only publish content that embodies our mission of providing relevant\, vetted and valuable information to the rare disease community.
URL:https://patientworthy.com/event/lakeland-fl-event-pi-patient-speaker-program/
LOCATION:Abuelo’s Mexican Restaurant\, 3700 Lakeside Village Boulevard\, Lakeland\, FL\, 33803\, United States
CATEGORIES:Primary Immunodeficiencies
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