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X-WR-CALNAME:Patient Worthy
X-ORIGINAL-URL:https://patientworthy.com
X-WR-CALDESC:Events for Patient Worthy
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DTSTART:20190310T070000
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DTSTART:20191103T060000
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DTSTART;VALUE=DATE:20190924
DTEND;VALUE=DATE:20190926
DTSTAMP:20260627T145527
CREATED:20190610T140806Z
LAST-MODIFIED:20190610T140806Z
UID:143375-1569283200-1569455999@patientworthy.com
SUMMARY:Kisaco Research's Rare Disease Diagnostics Summit
DESCRIPTION:Rare Disease Diagnostics Summit\n“Reducing the Diagnostic Odyssey to Improve Patient Outcomes” \nBoston\, Massachusetts \nThe diagnostic component of genetic rare diseases must be addressed. More than 350 million people are living with a rare disease. On average it takes 7 different consultations before an initial referral to a clinical geneticist and a minimum of 5 years to completely diagnose a patient\, with 70-90% of cases going undiagnosed. With roughly 7\,000 known rare diseases\, 80% have a genetic crisis. \nThe numbers are clear\, and it’s time to act now. \nThis event will bring together drug companies\, patient advocacies\, diagnostic providers\, insurance companies\, and other key stakeholders to facilitate earlier and better diagnosis of rare genetic diseases. \nThis event will enable partnerships between diagnostic and pharma companies for companion diagnostics\, provide a platform for industry to build the much-needed relationships with patient advocacies\, and facilitate knowledge-sharing on genetic discovery\, biomarkers\, disease mechanisms\, and novel strategies to improve early rare genetic disease diagnosis. \nFor registration info\, click here.\nStay tuned for more information about this event.
URL:https://patientworthy.com/event/kisaco-researchs-rare-disease-diagnostics-summit/
CATEGORIES:Rare Disease
ORGANIZER;CN="Kisaco%20Research":MAILTO:events@kisacoresearch.com
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20190925T183000
DTEND;TZID=America/New_York:20190925T193000
DTSTAMP:20260627T145527
CREATED:20190812T213635Z
LAST-MODIFIED:20190812T213635Z
UID:149648-1569436200-1569439800@patientworthy.com
SUMMARY:New York\, NY Live Event: CIDP Patient Speaker Program
DESCRIPTION:Speakers: Carla Mendoza\, LVN\, RN\, BSN\nToby Rodney\nTo register for this live event\, click here.  \nFor information on CIDP Webinar Wednesdays with this PW collaborator\, click here. And to register\, click here. \nAcknowledgment: This event post is sponsored by CSL Behring and is promoted through the Patient Worthy Collaborative Content program. We only publish content that embodies our mission of providing relevant\, vetted and valuable information to the rare disease community.
URL:https://patientworthy.com/event/new-york-ny-event-cidp-patient-speaker-program/
LOCATION:Ben & Jack’s Steakhouse\, 219 East 44th Street\, New York\, NY\, 10017\, United States
CATEGORIES:Chronic Inflammatory Demyelinating Polyneuropathy
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20190925T183000
DTEND;TZID=America/New_York:20190925T193000
DTSTAMP:20260627T145527
CREATED:20190819T162154Z
LAST-MODIFIED:20190819T162154Z
UID:150233-1569436200-1569439800@patientworthy.com
SUMMARY:Williamsburg\, VA Live Event: Primary Immunodeficiency Patient Speaker Program
DESCRIPTION:Speakers: Linda Anastasia\, RN\, BSN\, CPN\, IgCN\nMelaine Ziegler\nTo register for this live event\, click here.  \nFor information on PI Webinar Wednesdays with this PW collaborator\, click here. And to register\, click here. \nAcknowledgment: This event post is sponsored by CSL Behring and is promoted through the Patient Worthy Collaborative Content program. We only publish content that embodies our mission of providing relevant\, vetted and valuable information to the rare disease community.
URL:https://patientworthy.com/event/williamsburg-va-event-pi-patient-speaker-program/
LOCATION:Waypoint Seafood & Grill\, 1480 Quarterpath Road\, Williamsburg\, VA\, 23185\, United States
CATEGORIES:Primary Immunodeficiencies
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20190925T190000
DTEND;TZID=America/New_York:20190925T200000
DTSTAMP:20260627T145527
CREATED:20190812T214238Z
LAST-MODIFIED:20190812T214238Z
UID:149651-1569438000-1569441600@patientworthy.com
SUMMARY:Wilmington\, DE Live Event: CIDP Patient Speaker Program
DESCRIPTION:Speakers: Lisa Mandolfo\, MSN\, RN\nPatricia Skinner\nTo register for this live event\, click here.  \nFor information on CIDP Webinar Wednesdays with this PW collaborator\, click here. And to register\, click here. \nAcknowledgment: This event post is sponsored by CSL Behring and is promoted through the Patient Worthy Collaborative Content program. We only publish content that embodies our mission of providing relevant\, vetted and valuable information to the rare disease community.
URL:https://patientworthy.com/event/wilmington-de-event-cidp-patient-speaker-program/
LOCATION:Docklands Riverfront\, 110 S. West Street\, Wilmington\, DE\, 19801\, United States
CATEGORIES:Chronic Inflammatory Demyelinating Polyneuropathy
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