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X-WR-CALDESC:Events for Patient Worthy
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DTSTART:20190331T010000
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DTSTART:20191027T010000
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DTSTART;TZID=Europe/Madrid:20190926T090000
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DTSTAMP:20260628T180520
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SUMMARY:Dravet Syndrome Foundation's Dravet Syndrome Conference 2019
DESCRIPTION:Dravet Syndrome Conference 2019\n\n“From seizures to genes: how Dravet syndrome is changing the way we treat epilepsy” \n\nSeptember 26th\, 2019 \nMadrid\, Spain\nAre you or one of your family members affected by Dravet syndrome? Don’t miss out on this Dravet syndrome conference. Attendees of this event will have the opportunity to hear from disease experts from around the world about the latest developments in research for treating Dravet syndrome and other epilepsies. \nInformación para pacientes: \nLa conferencia  “From seizures to genes: how Dravet syndrome is changing the way we treat epilepsy” es un evento dirigido a profesionales de la industria\, incluyendo médicos\, investigadores o representantes de reguladores  y organismos públicos.  Por lo tanto\, la conferencia será en inglés y con el vocabulario técnico que requiere. Si aún quieres asistir\, te puedes registrar en este enlace.\nLas ponencias se grabarán en video y serán publicadas posteriormente a la reunión. Además\, la Fundación Síndrome de Dravet compartirá con sus familias afiliadas los resultados de la reunión y estará disponible para dudas y preguntas. \nResearchers\, industry officials\, regulators\, and any other stakeholders are encouraged to attend. \nTo register for this FREE event\, click here.
URL:https://patientworthy.com/event/dravet-syndrome-foundations-dravet-syndrome-conference-2019/
LOCATION:Fundación ONCE\, Calle de Sebastián Herrera\, 15\,\, Madrid\, 28012\, Spain
CATEGORIES:Dravet Syndrome
ORGANIZER;CN="Dravet%20Syndrome%20Foundation-%20EU":MAILTO:informacion@dravetfoundation.eu
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DTSTART;TZID=America/New_York:20190926T183000
DTEND;TZID=America/New_York:20190926T193000
DTSTAMP:20260628T180520
CREATED:20190819T203939Z
LAST-MODIFIED:20190821T143347Z
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SUMMARY:Toledo\, OH Live Event: Primary Immunodeficiency Patient Speaker Program
DESCRIPTION:Speakers: Linda Anastasia\, RN\, BSN\, CPN\, IgCN\nCarl Schlacht\nTo register for this live event\, click here.  \nFor information on PI Webinar Wednesdays with this PW collaborator\, click here. And to register\, click here. \nAcknowledgment: This event post is sponsored by CSL Behring and is promoted through the Patient Worthy Collaborative Content program. We only publish content that embodies our mission of providing relevant\, vetted and valuable information to the rare disease community.
URL:https://patientworthy.com/event/toledo-oh-event-pi-patient-speaker-program/
LOCATION:Rockwell’s Steakhouse at the Oliver House\, 27 Broadway Street\, Toledo\, OH\, 43604\, United States
CATEGORIES:Primary Immunodeficiencies
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