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X-WR-CALNAME:Patient Worthy
X-ORIGINAL-URL:https://patientworthy.com
X-WR-CALDESC:Events for Patient Worthy
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TZID:America/New_York
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TZOFFSETFROM:-0500
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TZNAME:EDT
DTSTART:20190310T070000
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DTSTART:20191103T060000
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BEGIN:VEVENT
DTSTART;VALUE=DATE:20191004
DTEND;VALUE=DATE:20191006
DTSTAMP:20261017T010313
CREATED:20190903T220911Z
LAST-MODIFIED:20190903T221025Z
UID:151716-1570147200-1570319999@patientworthy.com
SUMMARY:Connecting Families UCD Foundation's UCD Meetup 2019
DESCRIPTION:UCD Meetup 2019\nOctober 4-5\, 2019 \nSalt Lake City  \nThis year’s meetup will be a valuable educational event designed to benefit the entire urea cycle disorder (UCD) community. Open to not just patients but caregivers and family members as well\, don’t miss this opportunity to hear from a variety of speakers on a diverse array of topics that are relevant to UCD patients. \nTo register\, click here.
URL:https://patientworthy.com/event/connecting-families-ucd-foundations-meetup-2019/
LOCATION:Doubletree Salt Lake City Downtown\, 110 West 600 South\, Salt Lake City\, UT\, 84101\, United States
CATEGORIES:Urea Cycle Disorders
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20191005T080000
DTEND;TZID=America/New_York:20191005T170000
DTSTAMP:20261017T010313
CREATED:20190815T151658Z
LAST-MODIFIED:20190815T151658Z
UID:149959-1570262400-1570294800@patientworthy.com
SUMMARY:GRYT Health's Annual Global Virtual Cancer Conference
DESCRIPTION:The 2019 Global Virtual Cancer Conference\n“Everyone’s Experience Matters”\nCancer treatment choices are most often a doctor-directed affair with only minimal input from caregivers and patients. The Global Virtual Cancer Conference—which will be hosted on GRYT’s digital platform—aims to bring together a diversity of voices including patients\, cancer survivors\, nonprofits\, caregivers\, and many more in order to have a constructive dialogue about the future of cancer treatment and revolutionizing the relationship between patients and their physicians. \nTo register for this event\, click here.
URL:https://patientworthy.com/event/gryt-healths-annual-global-virtual-cancer-conference/
LOCATION:UT
CATEGORIES:cancer
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20191005T090000
DTEND;TZID=America/New_York:20191005T160000
DTSTAMP:20261017T010313
CREATED:20190118T225329Z
LAST-MODIFIED:20190118T225329Z
UID:118155-1570266000-1570291200@patientworthy.com
SUMMARY:The GBS/CIDP Foundation International’s Boston One-Day Regional Conference
DESCRIPTION:  \nThe 2019 Boston One-Day Regional Conference\nAre you a GBS or CIDP patient? Then don’t miss this one day patient conference. At this event\, GBS and CIDP patients and their families will have the opportunity to learn from disease experts about the latest in disease research and treatment. Meet and share your experiences with other members of the GBS and CIDP patient community. \nRegistration: $40 (Opens May 1st)
URL:https://patientworthy.com/event/gbs-cidp-foundation-internationals-boston-conference/
LOCATION:Boston Marriott Burlington\, One Burlington Mall Road\, Burlington\, MA\, 01803\, United States
CATEGORIES:Chronic Inflammatory Demyelinating Polyneuropathy,Guillain-Barre Syndrome,Rare Disease
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20191005T100000
DTEND;TZID=America/New_York:20191005T160000
DTSTAMP:20261017T010313
CREATED:20190121T202155Z
LAST-MODIFIED:20190121T202155Z
UID:118596-1570269600-1570291200@patientworthy.com
SUMMARY:The Foundation for Sarcoidosis Research's Toronto Patient Education Conference
DESCRIPTION:The 2019 Toronto Patient Education Conference\nAre you a sarcoidosis patient? Well don’t miss this important patient event. At this conference\, sarcoidosis patients and their families will have the opportunity to learn the latest about clinical care and treatment options for sarcoidosis as well as hear about the latest research initiatives supported by the FSR. \nRegistration for this event will open on July 1st\, 2019. Check this link for the latest updates for this event as they are posted.
URL:https://patientworthy.com/event/foundation-sarcoidosis-toronto-patient-conference/
LOCATION:UT
CATEGORIES:Rare Disease,Sarcoidosis
ORGANIZER;CN="Foundation%20for%20Sarcoidosis%20Research":MAILTO:info@stopsarcoidosis.org
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20191005T123000
DTEND;TZID=America/New_York:20191005T133000
DTSTAMP:20261017T010313
CREATED:20190829T153503Z
LAST-MODIFIED:20190829T153503Z
UID:151331-1570278600-1570282200@patientworthy.com
SUMMARY:Jacksonville\, FL Live Event: CIDP Patient Speaker Program
DESCRIPTION:Speakers: Carla Duff\, ARNP\, CPNP-PC\, MSN\, CCRP\, IgCN\nAppolos Laurore\nTo register for this live event\, click here.  \nFor information on CIDP Webinar Wednesdays with this PW collaborator\, click here. And to register\, click here. \nAcknowledgment: This event post is sponsored by CSL Behring and is promoted through the Patient Worthy Collaborative Content program. We only publish content that embodies our mission of providing relevant\, vetted and valuable information to the rare disease community.
URL:https://patientworthy.com/event/jacksonville-fl-event-cidp-patient-speaker-program/
LOCATION:Seasons 52- Jacksonville\, 5096 Big Island Drive\, Jacksonville\, FL\, 32246\, United States
CATEGORIES:Chronic Inflammatory Demyelinating Polyneuropathy
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