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X-WR-CALDESC:Events for Patient Worthy
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DTSTART;TZID=America/New_York:20200328T083000
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SUMMARY:The Everylife Foundation for Rare Diseases and Global Genes' RARE on the Road Rare Disease Leadership Tour
DESCRIPTION:RARE on the Road: a Rare Disease Leadership Tour\nMay 30th\, 2020 \nRaleigh\, NC \nThe Rare Disease Leadership Tour is designed to give insights and education to rare disease advocates\, patients\, and caregivers. Learn how to activate your local rare disease community. The tour is a unique opportunity to connect with other rare disease advocates and patients\, discover ways to tell your story as someone affected by rare disease\, and learn how you can help save lives and have a direct impact on public policy. \nTo learn more about the event\, click here. To register\, click here.
URL:https://patientworthy.com/event/everylife-foundation-rare-diseases-global-genes-road-tour/
LOCATION:Marbles Kids Museum\, Zanzibar A 201 E Hargett St\, Raleigh\, NC\, 27601\, United States
CATEGORIES:Rare Disease
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DTSTART;TZID=America/New_York:20200328T183000
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DTSTAMP:20260628T020920
CREATED:20200108T143623Z
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SUMMARY:CureDuchenne Cares Sessions: Boston\, MA
DESCRIPTION:CureDuchenne’s Cares Sessions: Helping Connect and Inform Patient Families\nMarch 28th\, 2020\, 6:30 pm \nThe Sessions program from CureDuchenne is geared specifically towards patients and their families as well as caregivers. These casual\, two hour events can help inform patients about the latest in standards of care and other important information related to Duchenne muscular dystrophy. \nThese events are completely free to members of the Duchenne community. Register here.
URL:https://patientworthy.com/event/cureduchenne-cares-sessions-boston-ma/
LOCATION:Morton’s The Steakhouse\, 2 Seaport Ln.\, Boston\, MA\, 02210\, United States
CATEGORIES:Duchenne Muscular Dystrophy
ORGANIZER;CN="CureDuchenne":MAILTO:info@cureduchenne.org
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