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X-WR-CALDESC:Events for Patient Worthy
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DTSTART;TZID=America/Chicago:20200530T083000
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SUMMARY:The Everylife Foundation for Rare Diseases and Global Genes' RARE on the Road Rare Disease Leadership Tour
DESCRIPTION:RARE on the Road: a Rare Disease Leadership Tour\nMarch 28th\, 2020 \nMinneapolis\, MN \nThe Rare Disease Leadership Tour is designed to give insights and education to rare disease advocates\, patients\, and caregivers. Learn how to activate your local rare disease community. The tour is a unique opportunity to connect with other rare disease advocates and patients\, discover ways to tell your story as someone affected by rare disease\, and learn how you can help save lives and have a direct impact on public policy. \nTo learn more about the event\, click here. To register\, click here.
URL:https://patientworthy.com/event/everylife-foundation-rare-diseases-global-genes-road-tour-3/
LOCATION:InterContinental Minneapolis-St. Paul Airport\, 5005 Glumack Drive Terminal 1\, Minneapolis\, MN\, 55425\, United States
CATEGORIES:Rare Disease
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DTSTART;TZID=America/Chicago:20200530T183000
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DTSTAMP:20261003T011245
CREATED:20200108T163514Z
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SUMMARY:CureDuchenne Cares Session: Omaha\, NE
DESCRIPTION:CureDuchenne’s Cares Sessions: Helping Connect and Inform Patient Families\nMay 30th\, 2020\, 6:30 pm \nThe Sessions program from CureDuchenne is geared specifically towards patients and their families as well as caregivers. These casual\, two hour events can help inform patients about the latest in standards of care and other important information related to Duchenne muscular dystrophy. \nThese events are completely free to members of the Duchenne community. Register here.
URL:https://patientworthy.com/event/cureduchenne-cares-session-omaha-ne/
LOCATION:Fleming’s Prime Steakhouse & Wine Bar- Omaha\, 140 Regency Pkwy\, Omaha\, NE\, 68114\, United States
CATEGORIES:Duchenne Muscular Dystrophy
ORGANIZER;CN="CureDuchenne":MAILTO:info@cureduchenne.org
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