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X-WR-CALDESC:Events for Patient Worthy
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DTSTART;VALUE=DATE:20200625
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DTSTAMP:20260425T220325
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SUMMARY:United Leukodystrophy Foundation's Virtual Family Conference
DESCRIPTION:The 2020 Virtual Family Conference\nJune 25-27\, 2020 \nThis event features live streamed webinars featuring leukodystrophy researchers and relevant content for leukodystrophy patients and their families. The conference will also feature pre-recorded videos and text resources. In light of the ongoing coronavirus pandemic\, the event has transitioned from an in-person conference to a virtual one. \nDon’t miss this opportunity to build community and learn about the latest leukodystrophy news and management strategies. Registration for this year’s event will be free. \nFor registration information\, click here.
URL:https://patientworthy.com/event/united-leukodystrophy-foundations-scientific-symposium-family-conference-2/
LOCATION:IL\, United States
CATEGORIES:Leukodystrophy
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DTSTART;TZID=America/Chicago:20200627T083000
DTEND;TZID=America/Chicago:20200627T153000
DTSTAMP:20260425T220325
CREATED:20200214T164730Z
LAST-MODIFIED:20200214T164730Z
UID:165841-1593246600-1593271800@patientworthy.com
SUMMARY:The Everylife Foundation for Rare Diseases and Global Genes' RARE on the Road Rare Disease Leadership Tour
DESCRIPTION:RARE on the Road: a Rare Disease Leadership Tour\nJune 27th\, 2020 \nNew Orleans\, LA \nThe Rare Disease Leadership Tour is designed to give insights and education to rare disease advocates\, patients\, and caregivers. Learn how to activate your local rare disease community. The tour is a unique opportunity to connect with other rare disease advocates and patients\, discover ways to tell your story as someone affected by rare disease\, and learn how you can help save lives and have a direct impact on public policy. \nTo learn more about the event\, click here. To register\, click here.
URL:https://patientworthy.com/event/everylife-foundation-rare-diseases-global-genes-road-tour-4/
LOCATION:Loyola University New Orleans – Danna Student Center\, Audubon Room 6363 St. Charles Ave\, New Orleans\, LA\, 70118\, United States
CATEGORIES:Rare Disease
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