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X-WR-CALDESC:Events for Patient Worthy
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DTSTART;TZID=America/Chicago:20200912T080000
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DTSTAMP:20260629T100850
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SUMMARY:CureDuchenne Cares Workshop: Kansas City\, MO
DESCRIPTION:CureDuchenne Cares Workshops: Hear The Latest From Experts\nSeptember 12th\, 2020\, 8:00 am \nThe Workshops program from CureDuchenne are day-long educational events that are oriented towards caregivers and Duchenne muscular dystrophy patient families. These workshops are facilitated by disease experts and clinicians that can inform attendees about a variety of subjects\, such as clinical trial updates and the latest standards of care. \nTo register for this event\, click here.
URL:https://patientworthy.com/event/cureduchenne-cares-workshop-kansas-city-mo/
LOCATION:Kansas City Marriott Downtown\, 200 W 12th St\, Kansas City\, MO\, 64105\, United States
CATEGORIES:Duchenne Muscular Dystrophy
ORGANIZER;CN="CureDuchenne":MAILTO:info@cureduchenne.org
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DTSTART;TZID=America/New_York:20200912T100000
DTEND;TZID=America/New_York:20200912T163000
DTSTAMP:20260629T100850
CREATED:20200821T152115Z
LAST-MODIFIED:20200821T152115Z
UID:241531-1599904800-1599928200@patientworthy.com
SUMMARY:CureGRIN Foundation's GRIN Virtual Conference
DESCRIPTION:The GRIN Virtual Conference\nSeptember 12\, 2020 \nDon’t miss the CureGRIN Foundation’s GRIN Virtual Conference. The event will be packed with valuable information for the GRIN disorder patient community. \nParticipants will hear stories from patient families\, get an overview of critical information about the disorder\, hear about the latest research discoveries\, learn about symptoms\, and learn about possible management strategies. \nThis free event presents a unique opportunity for patients impacted by this rare disease. If you are ready to sign up\, click here.
URL:https://patientworthy.com/event/curegrin-foundations-grin-virtual-conference/
LOCATION:MO
CATEGORIES:GRIN disorder
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