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X-WR-CALNAME:Patient Worthy
X-ORIGINAL-URL:https://patientworthy.com
X-WR-CALDESC:Events for Patient Worthy
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DTSTART:20200308T070000
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DTSTART;TZID=America/New_York:20200919T110000
DTEND;TZID=America/New_York:20200919T120000
DTSTAMP:20260817T160712
CREATED:20200910T202420Z
LAST-MODIFIED:20200910T202420Z
UID:279189-1600513200-1600516800@patientworthy.com
SUMMARY:The Glut1 Deficiency Foundation's Spanish Glut1 Zoom Group
DESCRIPTION:Glut1 Virtual Community Gatherings: Spanish Language Group\nQ&A with Adult Patients & Families\nSeptember 19th\, 2020 \nThe Glut1 Deficiency Foundation is not letting the coronavirus/COVID-19 pandemic stop them from continuing in their mission to build community among patients. Don’t miss these opportunities to speak with others patients and learn valuable information about the disorder using the Zoom platform. \nLeaders: Chantal Sanchez and Sandra Ojeda \nPlease make sure to register for these events beforehand. In addition\, you must also be part of the Family Network to attend. \nSign up for this event here.
URL:https://patientworthy.com/event/glut1-deficiency-foundations-spanish-zoom-group/
CATEGORIES:Glut1 Deficiency
ORGANIZER;CN="Glut1%20Deficiency%20Foundation":MAILTO:​info@G1DFoundation.org
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DTSTART;TZID=America/New_York:20200919T183000
DTEND;TZID=America/New_York:20200919T203000
DTSTAMP:20260817T160712
CREATED:20200108T224451Z
LAST-MODIFIED:20200108T224451Z
UID:162350-1600540200-1600547400@patientworthy.com
SUMMARY:CureDuchenne Cares Session: Chicago\, IL
DESCRIPTION:CureDuchenne’s Cares Sessions: Helping Connect and Inform Patient Families\nSeptember 19th\, 2020\, 6:30 pm \nThe Sessions program from CureDuchenne is geared specifically towards patients and their families as well as caregivers. These casual\, two hour events can help inform patients about the latest in standards of care and other important information related to Duchenne muscular dystrophy. \nThese events are completely free to members of the Duchenne community. Register here.
URL:https://patientworthy.com/event/cureduchenne-cares-session-chicago-il/
LOCATION:Fleming’s Prime Steakhouse & Wine Bar- Chicago\, 25 E. Ohio St\, Chicago\, IL\, 60611\, United States
CATEGORIES:Duchenne Muscular Dystrophy
ORGANIZER;CN="CureDuchenne":MAILTO:info@cureduchenne.org
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