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X-WR-CALNAME:Patient Worthy
X-ORIGINAL-URL:https://patientworthy.com
X-WR-CALDESC:Events for Patient Worthy
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DTSTART;VALUE=DATE:20200921
DTEND;VALUE=DATE:20200924
DTSTAMP:20261113T165204
CREATED:20200325T212211Z
LAST-MODIFIED:20200325T212211Z
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SUMMARY:Global Genes' RARE Patient Advocacy Summit
DESCRIPTION:The Global Genes RARE Patient Advocacy Summit\nSeptember 21-23\, 2020 \nThis conference will be a convergence of a variety of rare disease stakeholders\, such as rare disease patients\, world renowned experts\, and caregivers. Attendees will leave this event with the skills necessary to be effective rare disease advocates as well as the latest knowledge about the latest in rare disease research and treatment. \n\nTo learn more about this event\, click here.
URL:https://patientworthy.com/event/global-genes-rare-patient-advocacy-summit-2/
LOCATION:Sheraton San Diego Hotel & Marina\, 1380 Harbor Island Drive\, San Diego\, CA\, 92101\, United States
CATEGORIES:Rare Disease
ORGANIZER;CN="Global%20Genes":MAILTO:events@globalgenes.org
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DTSTART;TZID=America/New_York:20200923T150000
DTEND;TZID=America/New_York:20200923T170000
DTSTAMP:20261113T165204
CREATED:20200723T195305Z
LAST-MODIFIED:20200723T195305Z
UID:212673-1600873200-1600880400@patientworthy.com
SUMMARY:Boehringer Ingelheim's More Than Scleroderma Educational Webinar
DESCRIPTION:More Than Scleroderma: A Live Educational Event\nSeptember 23\, 2020 at 3:00 PM ET \nJoin us for a webinar about scleroderma \nBecause scleroderma is so rare\, it can be hard to find understandable or comprehensive information\, and difficult to know what it all means. For example\, did you know that most people with scleroderma will develop some fibrosis in their lungs? \nFeaturing Jan Johnson\, RN\, BSN (Speaker) and Amy Macbeth\, BS\, RRT (Host)\nAt this free webinar\, you will: \n\nLearn about scleroderma\nHear from a scleroderma patient\nObtain educational resources and support\n\nClick here to register or call 855-415-7492. \nThis program will last approximately 45 to 60 minutes. A link to access the webinar will be sent to you within two days of the webinar. Please log in five minutes before the start time. \nThis event is sponsored by Boehringer Ingelheim\, Inc. (BIPI) and the featured speakers are affiliated with BIPI. \nAcknowledgment: This event post is sponsored by Boehringer Ingelheim and is promoted through the Patient Worthy Collaborative Content program. We only publish content that embodies our mission of providing relevant\, vetted and valuable information to the rare disease community.
URL:https://patientworthy.com/event/boehringer-ingelheims-more-scleroderma-educational-webinar-6/
LOCATION:CA
CATEGORIES:Scleroderma
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