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X-WR-CALNAME:Patient Worthy
X-ORIGINAL-URL:https://patientworthy.com
X-WR-CALDESC:Events for Patient Worthy
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DTSTART:20200308T080000
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DTSTART;TZID=America/Chicago:20200926T080000
DTEND;TZID=America/Chicago:20200926T163000
DTSTAMP:20260630T105208
CREATED:20200108T222030Z
LAST-MODIFIED:20200108T222030Z
UID:162347-1601107200-1601137800@patientworthy.com
SUMMARY:CureDuchenne Cares Workshop: Minneapolis\, MN
DESCRIPTION:CureDuchenne Cares Workshops: Hear The Latest From Experts\nSeptember 26th\, 2020\, 8:00 am \nThe Workshops program from CureDuchenne are day-long educational events that are oriented towards caregivers and Duchenne muscular dystrophy patient families. These workshops are facilitated by disease experts and clinicians that can inform attendees about a variety of subjects\, such as clinical trial updates and the latest standards of care. \nTo register for this event\, click here.
URL:https://patientworthy.com/event/cureduchenne-cares-workshop-minneapolis-mn/
LOCATION:JW Marriott Minneapolis Mall of America\, 2141 Lindau Ln\, Minneapolis\, MN\, 55425\, United States
CATEGORIES:Duchenne Muscular Dystrophy
ORGANIZER;CN="CureDuchenne":MAILTO:info@cureduchenne.org
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20200926T110000
DTEND;TZID=America/New_York:20200926T120000
DTSTAMP:20260630T105208
CREATED:20200910T204952Z
LAST-MODIFIED:20200910T204952Z
UID:279226-1601118000-1601121600@patientworthy.com
SUMMARY:The Glut1 Deficiency Foundation's Glut1 Parents Zoom Group
DESCRIPTION:Glut1 Virtual Community Gatherings: Glut1 Deficiency Parents\nPatient Voice in Research – input for survey development to capture patient and family experiences and identify needs\nSeptember 26th\, 2020 \nThe Glut1 Deficiency Foundation is not letting the coronavirus/COVID-19 pandemic stop them from continuing in their mission to build community among patients. Don’t miss these opportunities to speak with others patients and learn valuable information about the disorder using the Zoom platform. \nLeaders: Rob Rapaport and Glenna Steele \nPlease make sure to register for these events beforehand. In addition\, you must also be part of the Family Network to attend. \nSign up for this event here.
URL:https://patientworthy.com/event/glut1-deficiency-foundations-parents-zoom-group/
LOCATION:MN
CATEGORIES:Glut1 Deficiency
ORGANIZER;CN="Glut1%20Deficiency%20Foundation":MAILTO:​info@G1DFoundation.org
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20200926T130000
DTEND;TZID=America/New_York:20200926T140000
DTSTAMP:20260630T105208
CREATED:20200910T193420Z
LAST-MODIFIED:20200910T201808Z
UID:279101-1601125200-1601128800@patientworthy.com
SUMMARY:The Glut1 Deficiency Foundation's Child Glut1 Zoom Group
DESCRIPTION:Glut1 Virtual Community Gatherings: Children with Glut1 Deficiency\nGlut1 Pals\nSeptember 26th\, 2020 \nThe Glut1 Deficiency Foundation is not letting the coronavirus/COVID-19 pandemic stop them from continuing in their mission to build community among patients. Don’t miss these opportunities to speak with others patients and learn valuable information about the disorder using the Zoom platform. \nLeaders: Erin Meisner and Maria Rebbecchi \nPlease make sure to register for these events beforehand. In addition\, you must also be part of the Family Network to attend. \nSign up for this event here.
URL:https://patientworthy.com/event/glut1-deficiency-foundations-child-zoom-group/
LOCATION:MN
CATEGORIES:Glut1 Deficiency
ORGANIZER;CN="Glut1%20Deficiency%20Foundation":MAILTO:​info@G1DFoundation.org
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