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X-WR-CALDESC:Events for Patient Worthy
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DTSTART:20210314T070000
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SUMMARY:The FH Foundation's FH Global Summit: New Frontiers of FH Care
DESCRIPTION:The FH Global Summit\nSession 5: New Frontiers of FH Care\nFebruary 17\, 2021 \nThis session will focus on the future of FH care. Can CRISPR gene editing technology help treat cardiovascular illness? Is it possible to look beyond the known genes associated with FH to determine a personal risk assessment? \nClick here to sign up.
URL:https://patientworthy.com/event/the-fh-foundations-global-summit-frontiers-care/
CATEGORIES:Familial Hypercholesterolemia
ORGANIZER;CN="The%20FH%20Foundation":MAILTO:info@thefhfoundation.org
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DTSTART;TZID=America/Los_Angeles:20210217T130000
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CREATED:20210211T223639Z
LAST-MODIFIED:20210211T223639Z
UID:811130-1613566800-1613572200@patientworthy.com
SUMMARY:Cystic Fibrosis Research\, Inc.'s California Rare Disease Advisory Council Virtual Coalition Meeting
DESCRIPTION:California Rare Disease Advisory Council Virtual Coalition Meeting\nFebruary 17\, 2021 \nLegislation to create a California Rare Disease Advisory Council (RDAC) will be introduced by State Senator Susan Eggman in mid-February.  If you would like to review the proposed bill language\, please email Stacie Reveles at sreveles@cfri.org.  \nOur next coalition meeting will take place in conjunction with California’s Rare Action Network Rare Disease Day Virtual Event. \nClick here to sign up and learn more.
URL:https://patientworthy.com/event/cystic-fibrosis-research-incs-rare-disease-coalition-meeting/
CATEGORIES:Cystic Fibrosis
ORGANIZER;CN="Cystic%20Fibrosis%20Research%20Inc.":MAILTO:cfri@cfri.org 
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