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X-WR-CALNAME:Patient Worthy
X-ORIGINAL-URL:https://patientworthy.com
X-WR-CALDESC:Events for Patient Worthy
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DTSTART:20230312T070000
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DTSTART;VALUE=DATE:20231016
DTEND;VALUE=DATE:20231018
DTSTAMP:20260407T113112
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UID:3487973-1697414400-1697587199@patientworthy.com
SUMMARY:National Organization for Rare Disorders' 2023 NORD Breakthrough Summit
DESCRIPTION:2023 NORD Breakthrough Summit\nOctober 16-17\, 2023 \nRegistration is now open for NORD’s Rare Diseases and Orphan Products Breakthrough Summit! On October 16-17 at the Marriott Marquis in Washington\, DC\, join hundreds of rare disease advocates\, experts\, and stakeholders from around the world to tackle the most pressing issues facing the rare disease community. This year’s agenda features topics including the future of gene editing\, the impact of the Inflation Reduction Act\, harnessing the power of AI for diagnosis\, diversity and equity in rare diseases\, and so much more. View the agenda here.
URL:https://patientworthy.com/event/national-organization-rare-disorders-2023-breakthrough-summit/
LOCATION:Marriott Marquis Washington DC\, 901 Massachusetts Ave NW\, Washington\, DC\, 20001\, United States
CATEGORIES:Rare Disease
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DTSTART;TZID=America/New_York:20231017T190000
DTEND;TZID=America/New_York:20231017T200000
DTSTAMP:20260407T113112
CREATED:20230413T205208Z
LAST-MODIFIED:20230413T205208Z
UID:3485848-1697569200-1697572800@patientworthy.com
SUMMARY:The Center for Chronic Illness Living with Cystinosis Virtual Support Group
DESCRIPTION:Web-Based Living with Cystinosis Support Group\nA supportive\, web-based peer support group for those living with cystinosis \nfacilitated by Kerry Heckman\, MSW\, LICSW \n3rd Tuesday of each month 4-5 PM PT/7-8 PM ET \nTo sign up for free\, click here.
URL:https://patientworthy.com/event/center-chronic-illness-cystinosis-virtual-support-group-6/
LOCATION:DC
CATEGORIES:Cystinosis
ORGANIZER;CN="Center%20for%20Chronic%20Illness":MAILTO:info@thecenterforchronicillness.org
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