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X-WR-CALDESC:Events for Patient Worthy
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DTSTART:20240310T070000
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DTSTART;TZID=America/New_York:20240406T080000
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UID:3490666-1712390400-1712419200@patientworthy.com
SUMMARY:CureDuchenne's Cares Workshop: Long Island\, NY
DESCRIPTION:CureDuchenne Cares Workshop\nApril 6\, 2024 \nLong Island\, NY\nA FULL DAY EVENT FOCUSED ON IMPROVING THE QUALITY OF LIFE FOR INDIVIDUALS WITH DUCHENNE AND BECKER. \nCureDuchenne Cares is an interactive education and outreach program designed to provide the community with information\, resources and best practices for managing the challenges of Duchenne and Becker to help improve overall quality of life. \nThese one-day events provide an immersive education experience\, where clinicians and experts share their wealth of Duchenne knowledge as well as advancements in the field. \nCaregivers learn about physical therapy\, get valuable updates about clinical trials and learn about best practices in Duchenne care. \nTo get signed up and learn more\, click HERE.
URL:https://patientworthy.com/event/cureduchennes-cares-workshop-long-island-ny/
LOCATION:Marriott Melville Long Island\, 1350 Walt Whitman Road\, Melville\, NY\, 11747\, United States
CATEGORIES:Duchenne Muscular Dystrophy
ORGANIZER;CN="CureDuchenne":MAILTO:info@cureduchenne.org
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DTSTART;TZID=America/New_York:20240406T090000
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UID:3491329-1712394000-1712412000@patientworthy.com
SUMMARY:The MDS Foundation's MDS Patient and Family Forum
DESCRIPTION:MDS Patient & Family Forum\nApril 6\, 2024 \nBaltimore\, MD \nMany patients and caregivers have never met another person diagnosed with MDS until they connected with them at one of our forums. If you’ve never attended one\, you won’t want to miss this opportunity to meet others and to learn more about MDS\, current treatments\, and emerging therapies from leading experts. Not only will you find answers\, support\, and hope for MDS\, but you will learn tips and strategies from patients living with MDS. \nTo register\, click here. 
URL:https://patientworthy.com/event/the-mds-foundations-patient-family-forum/
LOCATION:Sidney Kimmel Comprehensive Cancer Center at John Hopkins\, 401 N Broadway\, Baltimore\, MD\, 21231\, United States
CATEGORIES:Myelodysplastic Syndromes
ORGANIZER;CN="The%20MDS%20Foundation":MAILTO:patientliaison@mds-foundation.org
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