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X-WR-CALNAME:Patient Worthy
X-ORIGINAL-URL:https://patientworthy.com
X-WR-CALDESC:Events for Patient Worthy
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TZID:America/New_York
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TZOFFSETFROM:-0500
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TZNAME:EDT
DTSTART:20190310T070000
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DTSTART:20191103T060000
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DTSTART;TZID=America/New_York:20190225T080000
DTEND;TZID=America/New_York:20190225T164500
DTSTAMP:20260630T060830
CREATED:20190201T223511Z
LAST-MODIFIED:20190201T223511Z
UID:122824-1551081600-1551113100@patientworthy.com
SUMMARY:Rare Disease Legislative Advocates' Legislative Conference
DESCRIPTION:Rare Disease Legislative Advocates’ Legislative Conference\nPart of \nRare Disease Week on Capitol Hill 2019\nAll of the events for Rare Disease Week are free to patients\, advocates\, and caregivers. \nThis conference is ideal for rare disease patients\, their families\, caregivers\, and other advocates who want to learn the latest about legislative initiatives that are relevant to the needs and concerns of the rare disease patient community. \nClick here to register for this event.
URL:https://patientworthy.com/event/rare-disease-legislative-advocates-legislative-conference/
LOCATION:Ronald Reagan Building and International Trade Center\, 1300 Pennsylvania Avenue NW\, Washington\, DC\, 20004\, United States
CATEGORIES:Rare Disease
ORGANIZER;CN="Rare%20Disease%20Legislative%20Advocates":MAILTO:jjenkins@everylifefoundation.org
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