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X-WR-CALNAME:Patient Worthy
X-ORIGINAL-URL:https://patientworthy.com
X-WR-CALDESC:Events for Patient Worthy
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TZID:America/New_York
BEGIN:DAYLIGHT
TZOFFSETFROM:-0500
TZOFFSETTO:-0400
TZNAME:EDT
DTSTART:20190310T070000
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DTSTART:20191103T060000
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DTSTART;VALUE=DATE:20190328
DTEND;VALUE=DATE:20190331
DTSTAMP:20260630T061644
CREATED:20190123T231642Z
LAST-MODIFIED:20190123T231642Z
UID:119472-1553731200-1553990399@patientworthy.com
SUMMARY:The Cystinosis Research Foundation's Day of Hope Family Conference
DESCRIPTION:The 2019 Cystinosis Research Foundation Day of Hope Family Conference\nThis conference for cystinosis patients and their families is a unique opportunity for attendees to learn the latest in cystinosis research and other topics related to the disease. Hear directly from CRF funded researchers and build community with fellow cystinosis patients. \nRegistration for the event is FREE.
URL:https://patientworthy.com/event/cystinosis-research-foundations-day-hope-conference/
LOCATION:Fashion Island Hotel\, 690 Newport Center Dr.\, Newport Beach\, CA\, United States
CATEGORIES:Cystinosis,Rare Disease
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