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X-ORIGINAL-URL:https://patientworthy.com
X-WR-CALDESC:Events for Patient Worthy
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DTSTART:20190310T070000
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DTSTART;VALUE=DATE:20190402
DTEND;VALUE=DATE:20190407
DTSTAMP:20260701T055901
CREATED:20190122T210158Z
LAST-MODIFIED:20190122T210158Z
UID:118970-1554163200-1554595199@patientworthy.com
SUMMARY:The American College of Medical Genetics and Genomics' Annual Clinical Genetics Meeting
DESCRIPTION:The 2019 Annual Clinical Genetic Meeting\n“Shaping The Future of Genetics and Genomics” \nThis meeting is an opportunity for the medical genetics community to learn about the latest research\, clinical implementation\, and therapies. \nThis year’s meeting will also feature a joint session with the Society for Inherited Metabolic Disorders (SIMD). The two groups only meet together every four years\, so don’t miss this unique opportunity for education\, networking\, and collaboration. \nFor registration information and pricing\, click here .
URL:https://patientworthy.com/event/american-college-genetics-genomics-genetics-meeting/
LOCATION:Washington State Convention Center\, 705 Pike St\, Seattle\, WA\, 98101\, United States
CATEGORIES:Rare Disease
ORGANIZER;CN="American%20College%20of%20Medical%20Genetics%20and%20Genomics":MAILTO:acmgmeeting@acmg.net
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DTSTART;TZID=America/Denver:20190406T090000
DTEND;TZID=America/Denver:20190406T160000
DTSTAMP:20260701T055901
CREATED:20190118T224617Z
LAST-MODIFIED:20190118T225644Z
UID:118151-1554541200-1554566400@patientworthy.com
SUMMARY:The GBS/CIDP Foundation International’s Colorado Springs One-Day Regional Conference
DESCRIPTION:The 2019 Colorado Springs One-Day Regional Conference\nAre you a GBS or CIDP patient? Then don’t miss this one day patient conference. At this event\, GBS and CIDP patients and their families will have the opportunity to learn from disease experts about the latest in disease research and treatment. Meet and share your experiences with other members of the GBS and CIDP patient community. \nRegistration: $40
URL:https://patientworthy.com/event/gbs-cidp-foundation-colorado-springs-conference/
LOCATION:Doubletree Colorado Springs\, 1775 E Cheyenne Mountain Blvd\, Colorado Springs\, CO\, 80906\, United States
CATEGORIES:Chronic Inflammatory Demyelinating Polyneuropathy,Guillain-Barre Syndrome,Rare Disease
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DTSTART;TZID=America/Phoenix:20190406T160000
DTEND;TZID=America/Phoenix:20190406T170000
DTSTAMP:20260701T055901
CREATED:20190321T202435Z
LAST-MODIFIED:20190404T135806Z
UID:133478-1554566400-1554570000@patientworthy.com
SUMMARY:Phoenix\, AZ Live Event: CIDP Patient Speaker Program
DESCRIPTION:Speakers: Laura Rohe\, RN\nDani Ball\nTo register for this live event\, click here.  \nImportant Safety Information: WARNING: Thrombosis (blood clots) can occur with immune globulin products\, including Hizentra. Please see full safety and prescribing information here: http://bit.ly/HizentraptISI \nFor information on CIDP Webinar Wednesdays with this PW collaborator\, click here. And to register\, click here. \nAcknowledgment: This event post is sponsored by CSL Behring as a part of our Patient Worthy Collaborative Content program. We only publish content that embodies our mission of providing relevant\, vetted and valuable information to the rare community.
URL:https://patientworthy.com/event/live-event-cidp-patient-speaker-program-14/
LOCATION:Seasons 52- Phoenix\, 250 East Camelback Road\, Phoenix\, AZ\, United States
CATEGORIES:Chronic Inflammatory Demyelinating Polyneuropathy,Rare Disease
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