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X-WR-CALNAME:Patient Worthy
X-ORIGINAL-URL:https://patientworthy.com
X-WR-CALDESC:Events for Patient Worthy
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DTSTART:20190310T080000
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DTSTART;TZID=America/Chicago:20190508T080000
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DTSTAMP:20260630T032329
CREATED:20190423T213334Z
LAST-MODIFIED:20190423T213334Z
UID:137875-1557302400-1557327600@patientworthy.com
SUMMARY:Rare Alabama's Rare Disease Advocacy Day
DESCRIPTION:Rare Disease Advocacy Day\nMay 8th\, 2019 \nAre you a patient from Alabama? Well this is your opportunity to speak with lawmakers directly about your concerns and what you think they should do for the rare disease patient community. \nDon’t know what to say? No worries. The day will start with advocacy training so that you will be able to communicate with your representatives as effectively as possible. \nRegistration is FREE. Lunch provided.
URL:https://patientworthy.com/event/rare-alabamas-rare-disease-advocacy-day/
LOCATION:Alabama State House\, 11 A Union St #738\, Montgomery\, AL\, United States
CATEGORIES:Rare Disease
ORGANIZER;CN="Rare%20Alabama":MAILTO:alabamarare@gmail.com
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DTSTART;TZID=America/New_York:20190508T190000
DTEND;TZID=America/New_York:20190508T200000
DTSTAMP:20260630T032329
CREATED:20190322T185358Z
LAST-MODIFIED:20190424T191736Z
UID:133716-1557342000-1557345600@patientworthy.com
SUMMARY:Webinar: CIDP Patient Speaker Program
DESCRIPTION:Speakers: Carla Duff ARNP\, CPNP-PC\, MSN\nEstelle Helms\nTo register for this webinar\, click here. To read more about Webinar Wednesdays\, click here.  \n  \nAcknowledgment: This event post is sponsored by CSL Behring and is promoted through the Patient Worthy Collaborative Content program. We only publish content that embodies our mission of providing relevant\, vetted and valuable information to the rare disease community.
URL:https://patientworthy.com/event/webinar-cidp-patient-speaker-program-31/
LOCATION:AL
CATEGORIES:Chronic Inflammatory Demyelinating Polyneuropathy,Rare Disease
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