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X-WR-CALNAME:Patient Worthy
X-ORIGINAL-URL:https://patientworthy.com
X-WR-CALDESC:Events for Patient Worthy
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TZID:America/New_York
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TZOFFSETFROM:-0500
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TZNAME:EDT
DTSTART:20190310T070000
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DTSTART:20191103T060000
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BEGIN:VEVENT
DTSTART;VALUE=DATE:20190620
DTEND;VALUE=DATE:20190624
DTSTAMP:20260630T021627
CREATED:20190524T150700Z
LAST-MODIFIED:20190524T150700Z
UID:141555-1560988800-1561334399@patientworthy.com
SUMMARY:The APS Type 1 Foundation's International APS Type 1 Symposium
DESCRIPTION:The 3rd International APS Type 1 Symposium\nNational Harbor\, Maryland \nin partnership with the Immune Deficiency Foundation’s IDF National Conference. \nAre you a autoimmune polyendocrine syndrome (APS) type 1 patient? Well don’t miss this important patient event. At this conference\, APS type 1 patients and their families will have the opportunity to learn the latest about clinical care and treatment options for APS type 1 as well as hear about the latest research initiatives. \nFor registration information\, click here.
URL:https://patientworthy.com/event/the-aps-type-1-foundations-international-aps-type-1-symposium/
LOCATION:Gaylord National Resort and Convention Center\, 201 Waterfront Street\, National Harbor\, MD\, 20745\, United States
CATEGORIES:APS Type 1,Rare Disease
ORGANIZER;CN="APS%20Type%201%20Foundation":MAILTO:Todd.talarico@apstype1.org
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BEGIN:VEVENT
DTSTART;VALUE=DATE:20190621
DTEND;VALUE=DATE:20190624
DTSTAMP:20260630T021627
CREATED:20190429T193808Z
LAST-MODIFIED:20190429T193808Z
UID:138542-1561075200-1561334399@patientworthy.com
SUMMARY:The National Organization for Rare Disorders' Living Rare\, Living Stronger NORD Patient & Family Forum
DESCRIPTION:The 2019 Living Rare\, Living Stronger NORD Patient & Family Forum\nfeaturing the \nRare Impact Awards 2019 \nThis rare disease patient forum brings together health professionals\, physicians\, patients\, and medical researchers to learn from the latest scientific findings and form community together. \nThis event will also include the Rare Impact Awards\, an event that is meant to celebrate individuals that have made considerable contributions to the well-being and quality of life for rare disease patients and their caregivers. \nFor registration information\, click here.
URL:https://patientworthy.com/event/national-organization-rare-disorders-rare-awards/
LOCATION:Hilton Americas Houston\, 1600 Lamar Street\, Houston\, TX\, 77010\, United States
CATEGORIES:Rare Disease
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20190621
DTEND;VALUE=DATE:20190625
DTSTAMP:20260630T021627
CREATED:20190508T211501Z
LAST-MODIFIED:20190508T211501Z
UID:139660-1561075200-1561420799@patientworthy.com
SUMMARY:The Oley Foundation's Oley Foundation and University of Illinois at Chicago Conference
DESCRIPTION:The 2019 Oley Foundation and University of Illinois at Chicago Annual Conference\nThe Essentials of Home Parenteral and Enteral Nutrition: What Consumers and Clinicians Need to Know \nAre you a rare disease patient that requires tube feeding or intravenous nutrition? Well this is a great event for you to attend. Learn the basics about conducting tube feeding or intravenous nutrition in the home setting. Are you a clinician? Then you shouldn’t miss this event either. Learn from colleagues and experts about tube feeding and intravenous nutrition and become a better resource for your patients. \nRegistration for consumers (people who use tube feeding or intravenous nutrition)\, family members\, and children is FREE. To register\, click here.
URL:https://patientworthy.com/event/oley-foundations-university-of-illinois-chicago-conference/
LOCATION:Lincolnshire Marriott Resort\, Ten Marriott Drive\, Lincolnshire\, IL\, 60069\, United States
CATEGORIES:Rare Disease
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20190621
DTEND;VALUE=DATE:20190624
DTSTAMP:20260630T021627
CREATED:20190524T155938Z
LAST-MODIFIED:20190524T155938Z
UID:141573-1561075200-1561334399@patientworthy.com
SUMMARY:The Alpha-1 Foundation's Alpha-1 National Conference
DESCRIPTION:The 28th Annual Alpha-1 National Conference\nOrlando\, Florida \nAre you an alpha-1 antitrypsin deficiency patient? Well don’t miss this important patient event. At this conference\, alpha-1 antitrypsin deficiency patients and their families will have the opportunity to learn the latest about clinical care and treatment options for alpha-1 antitrypsin deficiency as well as hear about the latest research initiatives. \nFor registration information\, click here.
URL:https://patientworthy.com/event/the-alpha-1-foundations-alpha-1-national-conference/
LOCATION:Omni Orland Resort at ChampionsGate\, 1500 Masters Boulevard\, ChampionsGate\, FL\, 33896\, United States
CATEGORIES:Alpha-1 antitrypsin deficiency,Rare Disease
ORGANIZER;CN="Alpha-1%20Foundation":MAILTO:info@alpha-1foundation.org
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20190622
DTEND;VALUE=DATE:20190624
DTSTAMP:20260630T021627
CREATED:20180403T201315Z
LAST-MODIFIED:20190531T214045Z
UID:86984-1561161600-1561334399@patientworthy.com
SUMMARY:PURA Syndrome Foundation's Annual PURA Syndrome Conference
DESCRIPTION:4th Annual PURA Syndrome Conference\nThe conference will be an opportunity for patient families and medical experts to meet and learn about the latest in PURA syndrome research. \nAdditionally\, families will be able to consult with health professionals\, build communities\, and exchange ideas. \nFor registration information\, click here.
URL:https://patientworthy.com/event/pura-syndrome-foundations-annual-pura-syndrome-conference/
LOCATION:Boston Marriott Quincy\, 1000 Marriott Drive\, Quincy\, MA\, 02169\, United States
CATEGORIES:PURA Syndrome,Rare Disease
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