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X-WR-CALNAME:Patient Worthy
X-ORIGINAL-URL:https://patientworthy.com
X-WR-CALDESC:Events for Patient Worthy
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TZID:America/New_York
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TZOFFSETFROM:-0500
TZOFFSETTO:-0400
TZNAME:EDT
DTSTART:20190310T070000
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DTSTART:20191103T060000
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DTSTART;VALUE=DATE:20190626
DTEND;VALUE=DATE:20190630
DTSTAMP:20260630T011058
CREATED:20190514T151634Z
LAST-MODIFIED:20190514T151634Z
UID:140343-1561507200-1561852799@patientworthy.com
SUMMARY:The United Mitochondrial Disease Foundation's Mitochondrial Medicine 2019
DESCRIPTION:Mitochondrial Medicine 2019\nMitochondrial Medicine 2019 is the annual symposium hosted by the United Mitochondrial Disease Foundation\, an event that has been widely regarded by patient families\, researchers\, and physicians as the premiere annual event dedicated to mitochondrial disease research and treatment. \nWhile this event is focused on scientific research\, patients and their families are encouraged to attend to build community with each other and learn about the latest developments. \nFor registration information\, click here.
URL:https://patientworthy.com/event/united-mitochondrial-disease-foundations-mitochondrial-2019/
LOCATION:Hilton Alexandria Mark Center\, 5000 Seminary Road\, Alexandria\, VA\, 22311\, United States
CATEGORIES:Mitochondrial Disease,Rare Disease
ORGANIZER;CN="United%20Mitochondrial%20Disease%20Foundation":MAILTO:info@umdf.org
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BEGIN:VEVENT
DTSTART;VALUE=DATE:20190628
DTEND;VALUE=DATE:20190701
DTSTAMP:20260630T011058
CREATED:20190515T210531Z
LAST-MODIFIED:20190515T210531Z
UID:140567-1561680000-1561939199@patientworthy.com
SUMMARY:Association for X and Y Variations' AXYS Family Conference
DESCRIPTION:The 2019 AXYS Family Conference\nAtlanta\, Georgia \nAre you or one of your family members affected by Trisomy X or other X and Y chromosome variations? Then this conference is for you. Don’t miss this opportunity to hear from world-renowned researchers and experts about X and Y chromosome conditions like Trisomy X. \nLearn practical information about a variety of different conditions and the effects they can have at various ages. \nFor registration info\, click here.
URL:https://patientworthy.com/event/association-x-y-variations-axys-family-conference/
LOCATION:Emory Conference Center and Hotel\, 1615 Clifton Road\, Atlanta\, GA\, United States
CATEGORIES:Rare Disease,Trisomy X
ORGANIZER;CN="Association%20for%20X%20and%20Y%20Chromosome%20Variations":MAILTO:info@genetic.org
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20190628
DTEND;VALUE=DATE:20190702
DTSTAMP:20260630T011058
CREATED:20190515T212343Z
LAST-MODIFIED:20190515T212343Z
UID:140571-1561680000-1562025599@patientworthy.com
SUMMARY:Cure SMA's Annual SMA Conference
DESCRIPTION:The 2019 Annual SMA Conference\nAnaheim\, California \nCure SMA’s annual conference is the largest conference in world focused on spinal muscular atrophy. The event includes and event for both patient families and researchers\, allowing for a unique environment of collaboration and comradery. \nDon’t miss this opportunity to learn the latest about spinal muscular atrophy\, build community\, and share with each other. \nFor registration information\, click here.
URL:https://patientworthy.com/event/cure-smas-annual-sma-conference-2/
LOCATION:Disneyland Hotel\, 1150 Magic Way\, Anaheim\, CA\, 92802\, United States
CATEGORIES:Rare Disease,Spinal Muscular Atrophy
ORGANIZER;CN="Cure%20SMA":MAILTO:familysupport@curesma.org
END:VEVENT
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