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X-WR-CALNAME:Patient Worthy
X-ORIGINAL-URL:https://patientworthy.com
X-WR-CALDESC:Events for Patient Worthy
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TZID:America/New_York
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TZOFFSETFROM:-0500
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TZNAME:EDT
DTSTART:20190310T070000
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DTSTART:20191103T060000
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DTSTART;VALUE=DATE:20190711
DTEND;VALUE=DATE:20190713
DTSTAMP:20260630T001229
CREATED:20190429T210634Z
LAST-MODIFIED:20190429T210634Z
UID:138569-1562803200-1562975999@patientworthy.com
SUMMARY:The Glut1 Deficiency Foundation's 8th Biennial Conference
DESCRIPTION:The 2019 Biennial Conference\nThe Glut1 Deficiency Foundation’s biennial conference is an event that you won’t want to miss. The conference will feature a variety of sessions related to various topics related to Glut1 deficiency. The 2019 conference will also include special sessions dedicated to the adult patient experience of Glut1 deficiency. \n\nRegistration for Glut1 deficiency patients is FREE. For more registration information\, click here.
URL:https://patientworthy.com/event/glut1-deficiency-foundations-8th-biennial-conference/
LOCATION:Hilton Crystal City\, 2399 JEFFERSON DAVIS HIGHWAY\, Arlington\, VA\, 22202\, United States
CATEGORIES:Glut1 Deficiency,Rare Disease
ORGANIZER;CN="Glut1%20Deficiency%20Foundation":MAILTO:​info@G1DFoundation.org
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20190711T190000
DTEND;TZID=America/New_York:20190711T200000
DTSTAMP:20260630T001229
CREATED:20190703T150945Z
LAST-MODIFIED:20190703T150945Z
UID:145882-1562871600-1562875200@patientworthy.com
SUMMARY:Metairie\, LA Live Event: CIDP Patient Speaker Program
DESCRIPTION:Speakers: William Blouin\, ARNP\nRobert Romine\nTo register for this live event\, click here.  \nFor information on CIDP Webinar Wednesdays with this PW collaborator\, click here. And to register\, click here. \nAcknowledgment: This event post is sponsored by CSL Behring and is promoted through the Patient Worthy Collaborative Content program. We only publish content that embodies our mission of providing relevant\, vetted and valuable information to the rare disease community.
URL:https://patientworthy.com/event/metairie-la-event-cidp-patient-speaker-program/
LOCATION:Andrea’s Restaurant\, 3100 19th Street\, Metairie\, LA\, 70002\, United States
CATEGORIES:Chronic Inflammatory Demyelinating Polyneuropathy,Rare Disease
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