Events for September 4, 2019 › Rare Disease

Events Search and Views Navigation

7:00 pm

Webinar: CIDP Patient Speaker Program

September 4, 2019 @ 7:00 pm - 8:00 pm

Speakers: Estelle Helms Carla Duff, ARNP, CPNP-PC, MSN, CCRP, IgCN To register for this webinar, click here. To read more about Webinar Wednesdays, click here. Acknowledgment: This event post is sponsored by CSL Behring and is promoted through the Patient Worthy Collaborative Content program. We only publish content that embodies our mission of providing relevant, vetted and […]

Find out more »

+ Export Events

We believe rare disease patients are people, not a diagnosis. Through education, awareness and some humor, we help patients, caregivers and support persons by providing relevant and often inspirational news and stories.

Our goals are to share stories, cultivate strong community, provide the latest medical findings, connect people and pioneer production of patient worthy information. Help us attain these goals by telling us a little bit about yourself!

Events for September 4, 2019 › Rare Disease

Events Search and Views Navigation

Events Search

Event Views Navigation

7:00 pm

Webinar: CIDP Patient Speaker Program

The Let’s Chat CAR T One-on-One Mentor Program: Speaking with Someone Who Understands What You Are Going Through

“Shades of Psoriasis”: Plaque Psoriasis and Sharing Your Story

Understanding RSV: Why Combatting Ethnic and Age-Related Health Disparities Could Improve Outcomes

We Need Equity and Diversity Within Rare Disease Research

DNA in Color: How Ronya Nelson is Working to Close the Diversity Gap in Genetics - Part 1

Bridging the Diversity Gap in Healthcare

Congratulations to the 2023 Recipients of the Diversity in Lupus Research Awards!

Welcome to Study of the Week. We go in-depth and select a study we think is of particular interest, discussing details, explaining its importance, who may be impacted and lots more!

Let’s Work Together!

Keep Up to Date

Learn More