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X-WR-CALNAME:Patient Worthy
X-ORIGINAL-URL:https://patientworthy.com
X-WR-CALDESC:Events for Patient Worthy
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TZID:America/New_York
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TZOFFSETFROM:-0500
TZOFFSETTO:-0400
TZNAME:EDT
DTSTART:20190310T070000
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DTSTART:20191103T060000
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BEGIN:VEVENT
DTSTART;VALUE=DATE:20190918
DTEND;VALUE=DATE:20190921
DTSTAMP:20260628T190925
CREATED:20190429T191831Z
LAST-MODIFIED:20190429T191831Z
UID:138535-1568764800-1569023999@patientworthy.com
SUMMARY:Global Genes' RARE Patient Advocacy Summit
DESCRIPTION:The Global Genes RARE Patient Advocacy Summit\nThis conference will be a convergence of a variety of rare disease stakeholders\, such as rare disease patients\, world renowned experts\, and caregivers. Attendees will leave this event with the skills necessary to be effective rare disease advocates as well as the latest knowledge about the latest in rare disease research and treatment. \n\nTo register for this event\, click here.
URL:https://patientworthy.com/event/global-genes-rare-patient-advocacy-summit/
LOCATION:Sheraton San Diego Hotel & Marina\, 1380 Harbor Island Drive\, San Diego\, CA\, 92101\, United States
CATEGORIES:Rare Disease
ORGANIZER;CN="Global%20Genes":MAILTO:events@globalgenes.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20190918T183000
DTEND;TZID=America/New_York:20190918T193000
DTSTAMP:20260628T190925
CREATED:20190703T152207Z
LAST-MODIFIED:20190703T153455Z
UID:145908-1568831400-1568835000@patientworthy.com
SUMMARY:Staten Island\, NY Live Event: CIDP Patient Speaker Program
DESCRIPTION:Speakers: Lisa Mandolfo\, MSN\nRobert Romine\nTo register for this live event\, click here.  \nFor information on CIDP Webinar Wednesdays with this PW collaborator\, click here. And to register\, click here. \nAcknowledgment: This event post is sponsored by CSL Behring and is promoted through the Patient Worthy Collaborative Content program. We only publish content that embodies our mission of providing relevant\, vetted and valuable information to the rare disease community.
URL:https://patientworthy.com/event/staten-island-event-cidp-patient-speaker-program/
LOCATION:Violette’s Cellar\, 2271 Hylan Boulevard\, Staten Island\, NY\, 10306\, United States
CATEGORIES:Chronic Inflammatory Demyelinating Polyneuropathy,Rare Disease
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20190918T190000
DTEND;TZID=America/New_York:20190918T200000
DTSTAMP:20260628T190925
CREATED:20190703T155620Z
LAST-MODIFIED:20190828T194911Z
UID:145917-1568833200-1568836800@patientworthy.com
SUMMARY:Webinar: CIDP Patient Speaker Program
DESCRIPTION:Speakers: Stephanie Stencil\nLaura Rohe\, RN\, BSN\nTo register for this webinar\, click here. To read more about Webinar Wednesdays\, click here.  \n  \nAcknowledgment: This event post is sponsored by CSL Behring and is promoted through the Patient Worthy Collaborative Content program. We only publish content that embodies our mission of providing relevant\, vetted and valuable information to the rare disease community.
URL:https://patientworthy.com/event/webinar-cidp-patient-speaker-program-5/
LOCATION:CA
CATEGORIES:Chronic Inflammatory Demyelinating Polyneuropathy,Rare Disease
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