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X-WR-CALDESC:Events for Patient Worthy
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DTSTART:20210314T070000
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DTSTART:20211107T060000
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DTSTART;TZID=America/New_York:20210325T110000
DTEND;TZID=America/New_York:20210325T120000
DTSTAMP:20260627T074611
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UID:806974-1616670000-1616673600@patientworthy.com
SUMMARY:Angel Aid Cares' Journaling and Resilience Workshop
DESCRIPTION:Journaling and Resilience Workshop\nPamela Alma Weymouth will lead an hour long session of reflection and journaling. Learn self-acceptance and gratitude while writing about your week to cultivate resilience and joy. \nThis workshop will be held every Thursday at 11 AM PST. \nClick here to sign up.
URL:https://patientworthy.com/event/angel-aid-cares-journaling-and-resilience-workshop-7/
CATEGORIES:Rare Disease
ORGANIZER;CN="Angel%20Aid%20Cares":MAILTO:info@angelaidcares.org
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DTSTART;TZID=America/New_York:20210325T140000
DTEND;TZID=America/New_York:20210325T150000
DTSTAMP:20260627T074611
CREATED:20210309T212303Z
LAST-MODIFIED:20210309T212303Z
UID:923164-1616680800-1616684400@patientworthy.com
SUMMARY:NORD's The Rare Sibling Experience Webinar
DESCRIPTION:The Rare Sibling Experience\nMarch 25\, 2021 \nRare disease impacts extend beyond the patient themselves and can have a profound effect on families. Siblings of rare patients are placed in an unusual position replete with its own challenges. This program will investigate the role of rare siblings with input from multiple experts on the subject including: \n\nEden Van Alstine\, MS\, CCLS\, Child Life Specialist\, Children’s Hospital of Philadelphia\nKate McGowen\, MEd\, CCLS II\, Child Life Specialist\, Children’s Hospital of Philadelphia\nDr. David Rintell\, Ed.D\, Psychologist\, VP and Head of Patient Advocacy\, BridgeBio\nHannah Raskin-Gross\, Rare Sibling Advocate\, Congenital Hyperinsulinism\n\nClick here to sign up.
URL:https://patientworthy.com/event/nords-rare-sibling-experience-webinar/
CATEGORIES:Rare Disease
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