<\/p>\n
M\u00eame une vid\u00e9o habituelle de jumelles se faisant un c\u00e2lin peut \u00eatre attrayante et mignonne, mais il existe au Royaume-Uni deux jumelles dont le lien fera chaud au c\u0153ur.<\/p>\n
Alice et Verity Castle sont tous deux n\u00e9s en 2017. Juste apr\u00e8s leur naissance, Verity \u00e9tait engageante et \u00ab\u00a0pleine de vie\u00a0\u00bb, tandis que sa s\u0153ur Alice \u00e9tait tr\u00e8s faible et ne r\u00e9pondait pas. Elle a m\u00eame d\u00fb recevoir une sonde d’alimentation parce qu’elle ne pouvait pas avaler. Enfin, apr\u00e8s des semaines d\u2019essais, on a diagnostiqu\u00e9 chez elle un syndrome de Prader-Will<\/a>i pouvant entra\u00eener des retards de d\u00e9veloppement et de comportement, ainsi que de l\u2019ob\u00e9sit\u00e9.<\/p>\n Le Prader-Willi est une maladie g\u00e9n\u00e9tique qui emp\u00eache certains g\u00e8nes de fonctionner et peut pr\u00e9senter des sympt\u00f4mes imm\u00e9diatement \u00e0 la naissance. Les nouveau-n\u00e9s atteints du syndrome, comme Alice, ont souvent des muscles faibles, des probl\u00e8mes d’alimentation et des probl\u00e8mes de d\u00e9veloppement.<\/p>\n Ce syndrome r\u00e9sulte de la suppression d\u2019une partie du chromosome 15 du p\u00e8re, qui se produit lors de la formation de l\u2019ovule et du sperme. Il n’existe actuellement aucun traitement curatif, mais un traitement pr\u00e9coce peut aider \u00e0 am\u00e9liorer les r\u00e9sultats. Les enfants atteints du syndrome ont souvent constamment faim, ce qui peut entra\u00eener l’ob\u00e9sit\u00e9 et le diab\u00e8te de type 2. Habituellement, \u00e0 trois ans, une surveillance alimentaire stricte est requise, ainsi qu’un programme d’exercices.<\/p>\n Il faudra probablement administrer \u00e0 Alice une dose quotidienne d’hormones de croissance pendant le reste de sa vie.<\/p>\n Alice suit actuellement une th\u00e9rapie chaque semaine afin de faire le plus de progr\u00e8s possible et de mener la vie la plus normale possible. Selon sa m\u00e8re, la plus grande motivation d’Alice semble \u00eatre sa tendre jumelle Verity. Les deux peuvent \u00eatre vus montrant un peu d’amour sororal \u00e0 ce lien ci.<\/a><\/p>\n <\/p>\n M\u00eame une vid\u00e9o habituelle de jumelles se faisant un c\u00e2lin peut \u00eatre attrayante et mignonne, mais il existe au Royaume-Uni deux jumelles dont le lien fera chaud au c\u0153ur. Alice et Verity Castle sont tous deux n\u00e9s en 2017. Juste apr\u00e8s leur naissance, Verity \u00e9tait engageante et \u00ab\u00a0pleine de vie\u00a0\u00bb, tandis que sa s\u0153ur […]<\/p>\n","protected":false},"author":109,"featured_media":153750,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"ocean_front_end_style_editor":"no","ocean_post_layout":"","ocean_both_sidebars_style":"","ocean_both_sidebars_content_width":0,"ocean_both_sidebars_sidebars_width":0,"ocean_sidebar":"0","ocean_second_sidebar":"0","ocean_disable_margins":"enable","ocean_add_body_class":"","ocean_shortcode_before_top_bar":"","ocean_shortcode_after_top_bar":"","ocean_shortcode_before_header":"","ocean_shortcode_after_header":"","ocean_has_shortcode":"","ocean_shortcode_after_title":"","ocean_shortcode_before_footer_widgets":"","ocean_shortcode_after_footer_widgets":"","ocean_shortcode_before_footer_bottom":"","ocean_shortcode_after_footer_bottom":"","ocean_display_top_bar":"default","ocean_display_header":"default","ocean_header_style":"","ocean_center_header_left_menu":"0","ocean_custom_header_template":"0","ocean_custom_logo":0,"ocean_custom_retina_logo":0,"ocean_custom_logo_max_width":0,"ocean_custom_logo_tablet_max_width":0,"ocean_custom_logo_mobile_max_width":0,"ocean_custom_logo_max_height":0,"ocean_custom_logo_tablet_max_height":0,"ocean_custom_logo_mobile_max_height":0,"ocean_header_custom_menu":"0","ocean_menu_typo_font_family":"0","ocean_menu_typo_font_subset":"","ocean_menu_typo_font_size":0,"ocean_menu_typo_font_size_tablet":0,"ocean_menu_typo_font_size_mobile":0,"ocean_menu_typo_font_size_unit":"px","ocean_menu_typo_font_weight":"","ocean_menu_typo_font_weight_tablet":"","ocean_menu_typo_font_weight_mobile":"","ocean_menu_typo_transform":"","ocean_menu_typo_transform_tablet":"","ocean_menu_typo_transform_mobile":"","ocean_menu_typo_line_height":0,"ocean_menu_typo_line_height_tablet":0,"ocean_menu_typo_line_height_mobile":0,"ocean_menu_typo_line_height_unit":"","ocean_menu_typo_spacing":0,"ocean_menu_typo_spacing_tablet":0,"ocean_menu_typo_spacing_mobile":0,"ocean_menu_typo_spacing_unit":"","ocean_menu_link_color":"","ocean_menu_link_color_hover":"","ocean_menu_link_color_active":"","ocean_menu_link_background":"","ocean_menu_link_hover_background":"","ocean_menu_link_active_background":"","ocean_menu_social_links_bg":"","ocean_menu_social_hover_links_bg":"","ocean_menu_social_links_color":"","ocean_menu_social_hover_links_color":"","ocean_disable_title":"default","ocean_disable_heading":"default","ocean_post_title":"","ocean_post_subheading":"","ocean_post_title_style":"","ocean_post_title_background_color":"","ocean_post_title_background":0,"ocean_post_title_bg_image_position":"","ocean_post_title_bg_image_attachment":"","ocean_post_title_bg_image_repeat":"","ocean_post_title_bg_image_size":"","ocean_post_title_height":0,"ocean_post_title_bg_overlay":0.5,"ocean_post_title_bg_overlay_color":"","ocean_disable_breadcrumbs":"default","ocean_breadcrumbs_color":"","ocean_breadcrumbs_separator_color":"","ocean_breadcrumbs_links_color":"","ocean_breadcrumbs_links_hover_color":"","ocean_display_footer_widgets":"default","ocean_display_footer_bottom":"default","ocean_custom_footer_template":"0","ocean_post_oembed":"","ocean_post_self_hosted_media":"","ocean_post_video_embed":"","ocean_link_format":"","ocean_link_format_target":"self","ocean_quote_format":"","ocean_quote_format_link":"post","ocean_gallery_link_images":"off","ocean_gallery_id":[]},"categories":[13986],"tags":[14698],"_links":{"self":[{"href":"https:\/\/patientworthy.com\/fr\/wp-json\/wp\/v2\/posts\/153904"}],"collection":[{"href":"https:\/\/patientworthy.com\/fr\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/patientworthy.com\/fr\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/patientworthy.com\/fr\/wp-json\/wp\/v2\/users\/109"}],"replies":[{"embeddable":true,"href":"https:\/\/patientworthy.com\/fr\/wp-json\/wp\/v2\/comments?post=153904"}],"version-history":[{"count":0,"href":"https:\/\/patientworthy.com\/fr\/wp-json\/wp\/v2\/posts\/153904\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/patientworthy.com\/fr\/wp-json\/wp\/v2\/media\/153750"}],"wp:attachment":[{"href":"https:\/\/patientworthy.com\/fr\/wp-json\/wp\/v2\/media?parent=153904"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/patientworthy.com\/fr\/wp-json\/wp\/v2\/categories?post=153904"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/patientworthy.com\/fr\/wp-json\/wp\/v2\/tags?post=153904"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}
\nC\u2019est notre meilleur essaie pour traduire des infos sur les maladies rares dans votre langue. Nous savons qu\u2019il est possible que cette traduction ne saisisse pas avec pr\u00e9cision toutes les nuances de votre langue maternelle, donc si vous avez des corrections ou des suggestions, veuillez nous les envoyer \u00e0 l\u2019adresse suivante : contribute@patientworthy.com<\/span><\/a>.<\/h4>\n","protected":false},"excerpt":{"rendered":"