Canavan Research Illinois
Canavan Research Illinois (CRI) is a nonprofit corporation and 501(c)(3) public charity based in Illinois. CRI was established in April 2000 to meet a critical need to support medical research to treat, cure, and improve the quality of lives of all children battling Canavan disease, a rare fatal genetic neurological disorder.
Canvavan Research Illinois is also known as Canavan Disease Research. Canavan Disease Research is the international division of Canavan Research Illinois. CRI is leading the fight to cure Canavan disease through private fundraising efforts, networking affected families and launching the first international patient registry.
Condition Awareness & Advocacy
Here is a list of conditions this partner raises awareness and advocacy for:
Connect With Canavan Research Illinois
Patient Worthy Posts on Canavan Disease
Canavan disease is a type of leukodystrophy frequently found in the Ashkenazi Jewish population. It’s a rare genetic condition which is ultimately fatal. It’s all caused by
Cedar Rapids, Iowa is rallying to help a one-year-old girl who has been diagnosed with Caravan disease, a devastating disorder that often leads to premature
Two children from a Brooklyn family were born with an ultra rare genetic disease called Canavan disease. Their parents’ research revealed that gene therapy could
At six years old, Benny was unable to sit up, roll over and scoot like other babies his age. Missing all the major milestones, his
Canavan disease is an isolating condition. It’s a rare disorder caused by a genetic mutation that can be passed on in families. It damages nerve