Canavan Research Illinois

Canavan Research Illinois (CRI) is the largest and oldest international charitable organization devoted to helping families affected by Canavan disease. We are a nonprofit corporation and 501(c)(3) public charity based in Illinois. The organization was created by an affected family in an effort to help unite and advocate for the patient community. CRI was established in April 2000 to meet a critical need to support medical research to treat, cure, and improve the quality of lives of all children battling Canavan disease, a rare fatal genetic neurological disorder.

Canvavan Research Illinois is also known as Canavan Disease Research. Canavan Disease Research is the international division of Canavan Research Illinois. CRI is leading the fight to cure Canavan disease through private fundraising efforts, networking affected families and launching the first international patient registry.

Canavan disease is a rare inherited genetic disorder that damages the ability of nerve cells (neurons) in the brain to send and receive messages. This disease is one of a group of genetic disorders called leukodystrophies. 

Leukodystrophies disrupt the growth or maintenance of the myelin sheath, which is the covering that protects nerves and promotes the efficient transmission of nerve impulses.

The 21st Annual Canavan Charity Ball will be held October 19, 2019 at the Chicago Marriott Hotel in Schaumburg Illinois featuring dinner, dancing and silent auction.

 

 

Condition Awareness & Advocacy

Here is a list of conditions this partner raises awareness and advocacy for: 

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