HSAN1E Society

HSAN1E Society is a nonprofit organization with the purpose of raising awareness for Hereditary Sensory Autonomic Neuropathy Type 1E (HSAN1E). HSAN1E Society provides emotional support to families affected by HSAN1E. We also help facilitate research through education, contributions and donations. 

Condition Awareness & Advocacy

Here is a list of conditions this partner raises awareness and advocacy for: 

Resources & Support

Connect with the HSAN1E Society

Patient Worthy Posts on HSAN1E & Hereditary Sensory Autonomic Neuropathy

We believe rare disease patients are people, not a diagnosis. Through education, awareness and some humor, we help patients, caregivers and support persons by providing relevant and often inspirational news and stories.
Our goals are to share stories, cultivate strong community, provide the latest medical findings, connect people and pioneer production of patient worthy information. Help us attain these goals by telling us a little bit about yourself!

© Copyright Patient Worthy

Close Menu