The ALD Life

ALD Life is a patient support group and UK registered charity for patients and families with Adrenoleukodystrophy (ALD) and Adrenomyeloneuropathy (AMN).

ALD Life:

  • Provides practical, emotional and financial support to patients and families with Adrenoleukodystrophy (ALD) and Adrenomyeloneuropathy (AMN)
  • Improves public and medical awareness of both conditions
  • Promotes research, best practice in treatment and improved diagnostics

Some of ALD Life’s notable projects are exploring the link between ALD and Addison’s Disease, Project Bostock and Newborn Screening.

Condition Awareness & Advocacy

Here is a list of conditions this partner raises awareness and advocacy for: 

Resources & Support

Connect With The ALD Life Foundation

Patient Worthy Posts on Adrenoleukodystrophy (ALD)

We believe rare disease patients are people, not a diagnosis. Through education, awareness and some humor, we help patients, caregivers and support persons by providing relevant and often inspirational news and stories.
Our goals are to share stories, cultivate strong community, provide the latest medical findings, connect people and pioneer production of patient worthy information. Help us attain these goals by telling us a little bit about yourself!

© Copyright Patient Worthy

Close Menu