Rare Community Profiles: The Third Elephant on the Ramp to the Ark: How Carl’s Advocacy Affected His iMCD Journey
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Rare Community Profiles: The Third Elephant on the Ramp to the Ark: How Carl’s Advocacy Affected His iMCD Journey

  Rare Community Profiles is a Patient Worthy article series of long-form interviews featuring various stakeholders in the rare disease community, such as patients, their families, advocates, scientists, and more.…

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8th Annual Rare Disease Day Genomics Symposium: Dr. Fajgenbaum’s Unique Perspective
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8th Annual Rare Disease Day Genomics Symposium: Dr. Fajgenbaum’s Unique Perspective

As part of ongoing events surrounding Rare Disease Day, which is officially recognized on the last day of the month of February, Patient Worthy attended sessions of the 8th Annual…

Continue Reading 8th Annual Rare Disease Day Genomics Symposium: Dr. Fajgenbaum’s Unique Perspective