September is Pulmonary Fibrosis Awareness Month: Spreading Rare Disease Awareness
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September is Pulmonary Fibrosis Awareness Month: Spreading Rare Disease Awareness

According to a story from Newswise, September is recognized as Pulmonary Fibrosis Awareness Month. This includes idiopathic pulmonary fibrosis (IPF), or disease without an identifiable cause. In the midst of…

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First Ever Test Which can Predict Progression in Idiopathic Pulmonary Fibrosis is Making Progress
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First Ever Test Which can Predict Progression in Idiopathic Pulmonary Fibrosis is Making Progress

Idiopathic Pulmonary Fibrosis Progression Veracyte has just signed a deal with Yale University which will help them develop the very first test which can predict disease progression for idiopathic pulmonary…

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New Genetic Test Can Predict Disease Progression of Idiopathic Pulmonary Fibrosis
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New Genetic Test Can Predict Disease Progression of Idiopathic Pulmonary Fibrosis

Predicting the disease progression of idiopathic pulmonary fibrosis (IPF) is extremely important, as this condition progresses differently depending on the affected individual. Knowing if one has a poor outcome while…

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A Recent Study from Yale Tracks the Progression of Scarring in Idiopathic Pulmonary Fibrosis
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A Recent Study from Yale Tracks the Progression of Scarring in Idiopathic Pulmonary Fibrosis

According to a story from EurekAlert!, a collaborative study headed by researchers from Yale University has furthered the understanding of the mechanisms and progression of fibrosis (scarring) in patients with…

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A Potential Treatment for Idiopathic Pulmonary Fibrosis Earns Orphan Drug Designation
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A Potential Treatment for Idiopathic Pulmonary Fibrosis Earns Orphan Drug Designation

According to a story from Financial Buzz, the biotherapeutics company Bellerophon Therapeutics Inc. has recently announced that it has earned Orphan Drug designation from the US Food and Drug Administration…

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This Idiopathic Pulmonary Fibrosis Clinic is Improving Patient Quality of Life
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This Idiopathic Pulmonary Fibrosis Clinic is Improving Patient Quality of Life

According to a story from Medical Xpress, the Alberta Health Services' Kaye Edmonton Interstitial Lung Disease Clinic is taking a more patient-centered approach to palliative care for patients with idiopathic…

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FDA Clears Phase 2 Trial for Possible Idiopathic Pulmonary Fibrosis Drug

According to a story from BioPortfolio, the biopharmaceutical company Genkyotex has recently announced that the US Food and Drug Administration (FDA) has approved the company's Investigational New Drug (IND) application.…

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Presentations at the ATS Conference Demonstrate the Value of the Pulmonary Fibrosis Foundation’s Patient Registry

At the 2019 American Thoracic Society Conference this year multiple presentations demonstrated the importance of the Pulmonary Fibrosis Foundation's Patient Registry. About the Registry This registry was created by the Pulmonary…

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Patient Registry Reveals Critical Information About Idiopathic Pulmonary Fibrosis

According to a story from blogs.biomedcentral.com, the findings from the IPF-PRO Registry, which is a US-based registry for idiopathic pulmonary fibrosis patients, were recently published. Patient registries are a critical…

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Cognitive Bias in Idiopathic Pulmonary Fibrosis Management and Steps We Can Take to Avoid It
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Cognitive Bias in Idiopathic Pulmonary Fibrosis Management and Steps We Can Take to Avoid It

Cedric Rutland, a pulmonologist at Pacific Pulmonary Medical Group has shared his experience, research, and thoughts on cognitive bias in an effort to spread awareness for the issue, and hopefully,…

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Orphan Drug Designation Granted for Potential Duchenne Muscular Dystrophy Treatment

For years FibroGen has been investigating a drug called pamrevlumab. They believe it could be an effective treatment for Duchenne muscular dystrophy (DMD), pancreatic cancer, and idiopathic pulmonary fibrosis (IPF).…

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Biomarker Identified Which Can Determine Severity of Idiopathic Pulmonary Fibrosis

Nigam Shah and Purvesh Khatri, professors at Stanford University, along with graduate student Madeleine Scott have just announced results from a research study which could be pivotal for those living…

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Vogmask Offers a Stylish Face Mask for Those Living with Immunodeficiencies

Vogmask is a San Francisco, California based company founded in 2011. They create stylish facial masks to protect wearers from inhalation of particulate and allergens. These types of masks can…

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