Rare Disease Day 2016 is almost upon us!
Rare Disease Day is an international movement organized by Eurordis and supported by 41 Official Global Partners. Whether official or not- Patient Worthy is an un-official partner– participation is encouraged of all advocates.
Rare Disease Day began in Europe back in 2008 and has grown every year since. The ultimate goal is to raise awareness about rare diseases. To learn more about the global initiatives supported through Rare Disease Day, please visit rarediseaseday.org. Resources and materials like email signatures, a countdown clock, and the poster below are all available for immediate download.
There are several ways to participate in this year’s Rare Disease Day, but Handprints Across America is by far the easiest way to join the rare disease community in celebrating awareness across the nation.
How do I participate in Handprints Across America 2016?
1. Click here
2. Print out this year’s flier
3. Take a selfie or a group pic with the flier.
4. Submit your photo, fill out the form, share your rare story here
Want your rare story to be featured on Patient Worthy?
We certainly want to feature your rare story! Patient Worthy currently publishes information about 26 rare diseases and associated syndromes and chronic conditions. By year end, we will cover 150+. But we need your help!
You can upload your selfie and your story here. Actually, you can upload any content there. Someone from our team will be in touch with you if you leave your contact info.
