Rare Disease
The Importance of Whole Person Care During Treatment and Beyond
Editor’s Note: This article was written and submitted to us by Victoria Barghout, CEO and Founder Viver Health. Sixteen years ago, I was diagnosed with
When Past Medical Experiences Shape Future Healthcare Decisions: Understanding Medical Trauma, Finding My Voice, and Moving Forward Together
- November 8, 2026
Study Finds a Shared Weak Point in Some Cancers With BAF Mutations
Merz Completes Enrollment for Phase 3 XEOMIN Migraine Studies Ahead of Schedule
A Ray of Hope for Improving CAR-T for AML
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Glioblastoma
Experimental Ultrasound-Based Gene Therapy Shows Promise Against Glioblastoma
As reported on ScienceDaily, researchers at the University of Virginia (UVA) have developed an experimental treatment strategy that could address two of the biggest challenges
Metabolic dysfunction-associated steatohepatitis
They Say You Can’t Recover from Cirrhosis. Is That Really True?
Editor’s Note: This article was written by Wayne Eskridge, founder of the Fatty Liver Foundation. When we are diagnosed with F4 MASH (cirrhosis) we are
Lymphoma
When Cancer Comes With a Mortgage: How One Florida Town Turned a Beach Concert Into a Lifeline
Editor’s Note: This story was submitted to Patient Worthy by Roger Templeman, Executive Director of Stabilize Revitalize Fort Pierce (SRFP), a grassroots nonprofit in Fort
Endometrial cancer
International Study Targets Endometrial Cancer
According to recent international studies reported by MedicalXpress, the drug sac-TMT (sacituzumab tirumotecan) has been found to reduce recurrence or death from endometrial cancer. The
Dermatomyositis
Rituximab May Help Stabilize or Reduce Calcinosis in Dermatomyositis, Small Case Series Suggests
Calcinosis remains one of the most difficult complications to manage in patients with dermatomyositis (DM) and juvenile dermatomyositis (JDM), often causing pain, disability, and reduced
Cervical Dystonia
How I Learned to Live the Hard Days Differently
People often tell me how positive I am, and for the most part, I think that’s true. But after living with dystonia for more than
Huntington's disease
FDA Begins Review of uniQure Gene Therapy Candidate for Huntington’s Disease
As reported by the Manila Times, the FDA has formally accepted uniQure’s biologics license application for ifezuntirgene inilparvovec (AMT-130), an experimental gene therapy being developed
Trigeminal neuralgia
Jonathan’s Trigeminal Neuralgia Story
My name is Jonathan Eskenas and I live in Los Angeles with my wife and our dogs. I’m an executive producer of television series and
Breast Cancer
More Than 1,000 Patients Enrolled in Major UK Trial Testing One-Week Breast Cancer Radiotherapy
As reported on PharmaBiz, a major UK breast cancer study has passed a significant recruitment milestone, with more than 1,000 patients now participating in research
Breast Cancer
Advancing Precision Oncology: Digital Twins and Symbolic AI in Triple-Negative Breast Cancer
In a collaborative effort between University College Institute (UCL) and the University of Cambridge, researchers have engineered personalized computational frameworks—often termed tumor “digital twins”—to forecast
Metabolic dysfunction-associated steatohepatitis
Open-Source Image Analysis Tool Provides Quantitative Assessment of MASH in Mouse Models
As published in Sage Journals, researchers have developed an accessible, machine learning-driven histopathology workflow that enables quantitative evaluation of metabolic dysfunction-associated steatohepatitis (MASH) in laboratory
Rare Disease
Genomics England World Leading Research Study
The Genomics England Research Study listed approximately two hundred rare treatable conditions of children five years old or younger. Genomics has had, and continues to
Ichthyosis
Living in My Skin: A Young Man’s Life with Ichthyosis
My name is Sami Yusuf Baker. I am 19 years old, and I live in a small village in the Kurdistan Region of Iraq. I
Pulmonary veno-occlusive disease
I Am Rare, I Am Here
My name is Rim Wafaa Bendjaada. I am 22 years old, a rare disease and pulmonary hypertension advocate from Algeria, living with pulmonary veno-occlusive disease
Rare Disease
All the Warm Blankets
Editor’s Note: The following is an excerpt from Bird’s Eye View: Stories of a Life Lived in Health Care by Sue Robins. I remember every single
Metabolic dysfunction-associated steatohepatitis
Spatial Mapping Study Uncovers Distinct Molecular Changes Across Liver Regions in MASH
As reported on Bioengineer and ScienMag, a new spatial transcriptomics study has provided fresh insight into how different regions of the liver are remodeled during
Cervical Dystonia
The Struggle Beneath the Struggle: Letting Go of Resistance
When life changes in a way we never wanted or expected, there are often two struggles taking place: the hardship itself and our struggle against
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