Aspire: “ We aspire to improve the lives of children and adults affected by PANS/PANDAS and other immune-related encephalopathies by closing the gap between symptom
Editor’s Note: Patient Worthy is pleased to share this story, submitted to us by Connie B. What if one diagnosis could change the way an
Two-year University of Arizona study will use human brain-cell models to investigate sex-specific biology and help guide future research and clinical trials. Critical Path Institute
Genetic testing is now more available than ever before. For those who suspect a genetic disorder, the best route is often through a genetic counselor.
My name is A. Sabesan. I am 25 years old, living in Chennai, Tamil Nadu, India. Up until the age of 18, my life was
As reported on BioSpace, the FDA has extended its review of Novo’s investigational hemophilia A therapy denecimig due to manufacturing-related concerns, although the company says
As reported on Inside Precision Medicine, researchers at Stanford Medicine and the VA Palo Alto Health Care System have created a new urine test called
Editor’s Note: The following story was submitted to us by Pam Mason, Patient Speaker & Advocate. If you looked at a picture of me, you
I’ve survived Stage 4 colon cancer for about 10 years. I went to the doctor for a routine colonoscopy. They said I had a long
As reported on Medical Daily, small exploratory analysis suggests that semaglutide, the active ingredient in Wegovy, may substantially reduce liver fat in some adults with
When I was seven, my parents were trying to understand why I was becoming ill. I spent time in hospitals and underwent painful muscle biopsies.
Editor’s Note: Patient Worthy is honored to present this story, shared with us by our friends at the Courageous Parents Network. Originally written by Dr.
As reported on Becker’s Hospital Review, the FDA has approved a first-of-its-kind pulmonary heart valve that can be enlarged after implantation, potentially allowing the device
As reported on Becker’s Hospital Review, an FDA advisory committee has backed Grail’s Galleri blood test, bringing the U.S. closer to potentially having its first
Editor’s Note: Patient Worthy is honored to share this article from our friend Julie Lanford, MPH, RD, CSO, LDN – a.k.a. The Cancer Dietitian. To
Editor’s Note: Patient Worthy is honored to share the following story from our friends at Elephants & Tea, originally written by Michelle Lawrence, a patient
As reported on SciTechDaily, a large research review suggests age-related losses in muscle mass, strength, and physical function may have a stronger association with dementia
Investigational once-monthly therapy significantly reduced proteinuria versus placebo at 37 weeks, according to interim findings from the phase 3 study. As reported on PharmaBiz, Roche
When symptoms can change from one moment or day to the next, managing a health condition can become even more unpredictable. These fluctuations may affect everything from daily routines to how symptoms are tracked and treated. Understanding terms like “labile” can help patients make a little more sense of the language they may encounter in their medical records and care.
#RareWordOfTheWeek #RareDisease #RareDiseaseAwareness #PatientWorthy
Mental health is part of health. 💚
For patients and caregivers, the emotional weight of uncertainty, appointments, symptoms, caregiving, and everyday life can sometimes go unnoticed. World Mental Health Day is a reminder that taking care of yourself emotionally deserves just as much attention as taking care of yourself physically.
You don’t have to carry everything alone.
#WorldMentalHealthDay #MentalHealthMatters #PatientWorthy
Your appointment gets canceled at the last minute, and suddenly you have an unexpected free hour.
What are you doing with the extra time?
☕ Grabbing coffee 📺 Catching up on a favorite show 🚶 Going for a walk 📚 Reading a book 😴 Taking a well-deserved nap
💬 Tell us in the comments: How would you spend your surprise free time?
#PatientCommunity #chronicillnesslife #questionoftheday #PatientWorthy
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