Cerebral Palsy
“Just Like You” Dolls for Conditions like Cerebral Palsy
Just Like You Dolls Just Like You Dolls is a family owned business based in Australia. They design dolls to match their child owner as
Rare Patient News. Well Done.
Ganaxolone Shows Potential in Treating CDKL5 and Reveals Biomarker in PCDH19 Epilepsy
- December 10, 2018
SmartZyme and Hemoshear Form Joint Venture for Enzyme Therapy
PKU and Living Medicines: Spotlight Synlogic
“Many Faces of NF”: Artist Highlights Tumor-Causing Genetic Disorder
LATEST PATIENT WORTHY ARTICLES
Cerebral Palsy
34 Years After Bhopal Disaster, Chronic Health Conditions Persist
COPYSCAPE SCORE: 5% Earlier this month marked a solemn 34 years since the horrendous Bhopal disaster. The worst industrial disaster in human history killed over
Duchenne Muscular Dystrophy
The Patriots Raise Awareness for Sickle Cell Anemia and Duchenne Muscular Dystrophy
This past Sunday, December 2nd, during the Patriot’s game against the Minnesota Vikings, 20 players wore customized cleats to spread awareness for various philanthropic causes.
Rare Disease
Madeline’s Spinal Muscular Dystrophy Story: A Wheelchair Can’t Slow Her Down
“This is what I have to work with. I’m going to make the best out of it.” That’s Madeline Schott’s motto. The 18 year old was
Osteogenesis Imperfecta
Pawn Shop Owner has Donated 580 Motorized Wheelchairs to People in Need
Phil Pavone owns a pawn shop in Norwich, Connecticut. It’s called AZ Pawn. Now, in addition to being a businessman, he’s practically created his own
mycosis fungoides
Early Trial Data Released for Potential Mycosis Fungoides Treatment
According to a story from biotech-finances.com, the biopharmaceutical company miRagen Therapeutics, Inc., recently announced the release of data from a Phase 1 clinical trial of
TRENDING NOW ON PATIENT WORTHY
Raising a Son While Managing POTS, EDS, and Gastroparesis: Lindsay's Story - Dysautonomia, Ehlers-Danlos syndrome, Gastroparesis, Original, POTS
"Many Faces of NF": Artist Highlights Tumor-Causing Genetic Disorder - Many Faces of NF, Neurofibromatosis, NF 1, NF-2
The Dos and Don'ts of Exercising with Ehlers-Danlos Syndrome - EDS, Ehlers-Danlos syndrome, Hypermobility, Opinion, Resource
Remembering President George Bush and His Links to the Rare Disease Community - Bush, George Bush, George H W Bush, Leukemia, Parkinson's, Parkinsonism, President, Vascular Parkinsonism
10 consejos alimenticios para el Síndrome de Sjögren - Anti-inflammatory diet, Espanol, News, Rare disease, Sjogren's
Are Chiropractors Safe for People with Ehlers-Danlos Syndrome? - Chiropractic care, Ehlers-Danlos, Ehlers-Danlos awareness
Holding on to Faith and Hope: Leah’s Story, Part 2 - Lyme, MCAS, Original, POTS
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