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LATEST PATIENT WORTHY ARTICLES

Duchenne Muscular Dystrophy

Amondys 45 Approved for DMD

According to a February 25 press release, Amondys 45 (casimersen), a therapeutic option for patients with Duchenne muscular dystrophy (DMD), recently became FDA-approved. The therapy

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UPCOMING EVENTS

  1. National Institutes of Health’s Virtual Rare Disease Day

    March 1 @ 10:30 am - 5:30 pm
  2. Global Genes and the EveryLife Foundation’s Rare on the Road 2021: A Rare Disease Leadership Interactive Webinar

    March 3 @ 11:00 am - 1:30 pm
  3. Angel Aid Cares’ Journaling and Resilience Workshop

    March 4 @ 11:00 am - 12:00 pm
  4. Angel Aid Cares’ Rare Mother Meetup

    March 10 @ 6:00 pm - 7:00 pm
  5. Angel Aid Cares’ Journaling and Resilience Workshop

    March 11 @ 11:00 am - 12:00 pm

RARE CLASSROOM

Welcome to the Rare Classroom, a new series from Patient Worthy. Rare Classroom is designed for the curious reader who wants to get informed on some of the rarest, most mysterious diseases and conditions. This series is an opportunity to learn the basics about some of the diseases that almost no one hears much about.

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