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Rare Disease

Ultrasounds and Pain

Imagine being able to turn down the dial on severe pain without taking a single pill or undergoing surgery. Scientists in the UK have just

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Rare Disease

Heart Attacks and Your Brain

1. A Physical Smoking Gun in the Heart-Brain Connection When people experience cognitive problems, mood drops, or chronic anxiety after surviving a heart attack, the

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Still time to join!Get Moving for GRI is in full swing, and our in person community is growing! We are thrilled to announce a brand new Live Event happening THIS SATURDAY, JUNE 6th in Colorado.

If you want to move alongside other incredible GRI families, check out our full lineup of established Live Events below:

COLORADO (New!) – Hosted by the Page Family this Saturday, June 6. Please contact Jindy at [email protected] for more details.

MASSACHUSETTS – Hosted by the LeBlanc Family on June 13: bit.ly/4dfe5Eu

NEW JERSEY – Hosted by the Ambler Family on June 14: bit.ly/3R0gtaC

NEW SOUTH WALES, AUS - Trek for Amarli hosted by Amarli's Army on Sep 12. Contact Britt at [email protected] for more details.

Whether you are a veteran participant or this is your first time, these amazing host families would love to have you join their crew!

Can’t make it to CO, MA, NJ or AUS?
It’s not too late to host your own informal, local Get Moving for GRI meetup. Contact Brittany at [email protected] and we will help you get it set up.

👉 Register or donate today: bit.ly/4tZzsRl

#GetMovingForGRI #CureGRIN #GRIStrong #RareDiseaseAwareness #CommunitySupport
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14 hours ago

Navigating healthcare as a patient can feel like an Olympic event- complex, time-consuming, and full of obstacles.

If navigating healthcare were an Olympic sport, what would you medal in? 🏅

Share your event in the comments 👇

#HealthcareNavigation #patientexperience #HealthcareAccess #HealthEquity #PatientWorthy
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