As reported on Inside Precision Medicine, a large study from Denmark found that children conceived with certain assisted reproductive technologies had a higher relative rate
Final two-year data from the Phase 3 VISIONARY trial indicate that Voyxact (sibeprenlimab-szsi) may significantly slow progression of primary immunoglobulin A nephropathy (IgAN), preserving kidney
One of the most persistent hurdles in biology is the natural, age-related decline of female fertility. As women age, both the quantity and quality of
Patient by Diagnosis. Founder by Decision. By Camden Hill, Founder & CEO of Areluno Health I was 20 years old when my body started quitting
Exercise, yoga, psychological support and other approaches that do not involve medication or surgery may help people with low back pain—and may be cost-effective, according
Editor’s Note: This article, reprinted in full, was originally written and shared with us by Alliance. To see the article in its original format, please
All genetic testing we did for Jay during pregnancy came back normal (though we did the bare minimum). When he was born, he struggled to
A C. diff infection can turn a hospital stay into a much harder experience. The bacterium can cause severe diarrhea, abdominal pain and inflammation of
So, Parkinson’s Disease (PD) vs Functional Neurologic Disorder (FND) seem to join the other medical acronyms. What do these medical acronyms stand for? We have
My journey with inclusion body myositis (IBM) has taught me that even when life takes an unexpected turn, hope, faith, determination, and the support of
As reported on PharmaBiz, the US Food and Drug Administration (FDA) has approved the oral combination of belzutifan (Welireg) and lenvatinib (Lenvima) for adults with
Many people spend very little time contemplating their liver, often ignoring this critical organ until a major medical issue arises. In contrast, health culture in
Editor’s Note: This story was submitted to Patient Worthy by Roger Templeman, Executive Director of Stabilize Revitalize Fort Pierce (SRFP), a grassroots nonprofit in Fort
For decades, patients diagnosed with IgA nephropathy—an autoimmune condition where trapped immune complexes inflame and damage the kidney’s filtering units (glomeruli)—faced a discouraging outlook. Typically
As reported on BioSpace, AstraZeneca has entered a major artificial intelligence-focused research collaboration with biotechnology company insitro, committing up to $1.5 billion in potential payments
Cancelleri’s son, Levi, was diagnosed with Alexander disease as a baby. Above, he smiles widely, wearing the shirt his dad made. Photo courtesy of Tom
Editor’s Note: This story was shared with Patient Worthy by our friends at Elephants & Tea. The article, originally written by Kimberly Oliver, can be
The international study will examine whether MTX325 affects processes linked to Parkinson’s disease, as well as assess its safety and tolerability. As reported in a
Living with a rare or chronic condition can shape your days, but it doesn’t define all that you are. Your hopes, joys, and sense of self are yours to hold and shape... through every chapter. 💙#RareDisease #ChronicIllness #PatientWorthy
Behind every stroke statistic is a person. A parent. A friend. A survivor.
This World Stroke Day we honor the strength of survivors, we support the families who care for them, and we commit to spreading awareness so fewer families have to hear "it's a stroke".
Watch for sudden changes: trouble with balance or vision, face-drooping, one-sided weakness, or speech changes. If you see them, call emergency services immediately. Minutes matter.
Let's turn awareness into action.
#WorldStrokeDay #StrokeAwareness #PatientWorthy
FSGS is a rare kidney disease that causes scarring in the kidney's filtering units, making it harder for the kidneys to do their job. Symptoms can include swelling, foamy urine, fatigue, and unexpected weight gain, while causes may be linked to genetics, underlying health conditions, or unknown factors. The more we understand FSGS, the better equipped we are to advocate for our health and support others in the community.
💙 Follow for more kidney health tips, education, and support resources.
If you or a loved one is living with FSGS and would like to share your story, click the link below.
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#fsgsawareness #kidneydisease #RareDiseaseCommunity #PatientWorthy #kidneyhealth #shareyourstory
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