My journey with inclusion body myositis (IBM) has taught me that even when life takes an unexpected turn, hope, faith, determination, and the support of
As reported on PharmaBiz, the US Food and Drug Administration (FDA) has approved the oral combination of belzutifan (Welireg) and lenvatinib (Lenvima) for adults with
Many people spend very little time contemplating their liver, often ignoring this critical organ until a major medical issue arises. In contrast, health culture in
Editor’s Note: This story was submitted to Patient Worthy by Roger Templeman, Executive Director of Stabilize Revitalize Fort Pierce (SRFP), a grassroots nonprofit in Fort
For decades, patients diagnosed with IgA nephropathy—an autoimmune condition where trapped immune complexes inflame and damage the kidney’s filtering units (glomeruli)—faced a discouraging outlook. Typically
As reported on BioSpace, AstraZeneca has entered a major artificial intelligence-focused research collaboration with biotechnology company insitro, committing up to $1.5 billion in potential payments
Cancelleri’s son, Levi, was diagnosed with Alexander disease as a baby. Above, he smiles widely, wearing the shirt his dad made. Photo courtesy of Tom
Editor’s Note: This story was shared with Patient Worthy by our friends at Elephants & Tea. The article, originally written by Kimberly Oliver, can be
The international study will examine whether MTX325 affects processes linked to Parkinson’s disease, as well as assess its safety and tolerability. As reported in a
As reported on Yahoo! News, Bristol Myers Squibb (BMS) has received an expanded approval from the US Food and Drug Administration (FDA) for Camzyos (mavacamten),
The Ebola outbreak in DR Congo was declared in May 2026. As reported in BBC News, authorities in DR Congo recently confirmed that the virus
CAPS, or Cryopyrin-Associated Periodic Syndromes, is a group of rare autoinflammatory diseases caused by a genetic mutation affecting the cryopyrin protein, leading to increased inflammation.
Editor’s Note: This story was originally written by Anne Denneen, and shared on Caring Bridge. So many things happen in life that you don’t even
Nota del editor: Para Patient Worthy es un honor compartir este artículo, que nos fue enviado originalmente por Andrés Contreras. La colangitis biliar primaria (PBC)
Editor’s Note: Patient Worthy is honored to share this article, originally submitted to us by Andres Contreras. Primary biliary cholangitis (PBC) is a long-term liver
Editor’s Note: Patient Worthy is honored to bring you this article, shared with us by our friends at Rareatives. Originally written by Davi Jacobs, the
Diagnosis and year of diagnosis I was diagnosed with epilepsy in 2000, and I have been living with epilepsy for more than 26 years. My
Sixteen years ago, when my daughter was diagnosed with a rare autoimmune disease, I knew I was scared. I knew I was overwhelmed. I knew
Managing & Treating oHCM 💙
Living with obstructive hypertrophic cardiomyopathy (oHCM) can come with challenges, but there are treatment options available to help manage symptoms and improve quality of life. From medications to specialized procedures, treatment plans are personalized based on each person's needs, symptoms, and goals. Staying connected with your healthcare team and understanding your options can help you feel more confident in your care journey.
Click the link below to share your story today.
ow.ly/gyzR50ZZMLP
#oHCM #HypertrophicCardiomyopathy #HeartHealth #PatientEducation #PatientWorthy #HeartDiseaseAwareness #PatientVoice #ShareYourStory 💙
Feeling sleepy isn't always the same as being tired. For some people, excessive drowsiness can interfere with concentration, work, social activities, and the ability to stay alert throughout the day. Somnolence may be associated with certain medical conditions, medications, or sleep disorders. Raising awareness of symptoms like somnolence helps highlight how changes in alertness can affect daily functioning and overall quality of life.
#rarewordoftheweek #raredisease #rarediseaseawareness #PatientWorthy
Today we would like to spotlight Travis, a male breast cancer survivor, advocate, award winning hairstylist and owner of Resilience Beauty Box. If you'd like to share your cancer journey and inspire others, click here: bit.ly/4bG3Yq4#shareyourstory #malebreastcancer #Cancer #PatientWorthy #WHATNEXT
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