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Pulmonary veno-occlusive disease

I Am Rare, I Am Here

My name is Rim Wafaa Bendjaada. I am 22 years old, a rare disease and pulmonary hypertension advocate from Algeria, living with pulmonary veno-occlusive disease

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Rare Disease

All the Warm Blankets

Editor’s Note: The following is an excerpt from Bird’s Eye View: Stories of a Life Lived in Health Care by Sue Robins. I remember every single

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