According to recent reports, assistant pediatric professor at the Boston Children’s Hospital, Prof. Meenakshi Rao, noted that infections associated with Clostridioides difficile (C. Diff.) are difficult to eradicate. Nonetheless,
For more than 20 years, I had a treatment routine that worked. My specialty pharmacy delivered the medications I needed and coordinated trained nurses who
The Ebola outbreak in DR Congo was declared in May 2026. It is now the second worst on record with estimates that the death toll
As shared on GlobeNewswire, a biotechnology company called ABLi Therapeutics has released encouraging findings from a research study on a potential new Parkinson’s treatment called
As reported on Fierce Biotech, Samsung Electronics has obtained clearance from the U.S. Food and Drug Administration (FDA) for software features that transform select Galaxy
Editor’s Note: This article was shared with us by Jo Kaur. To see it in its original format, please click here. Riaan Singh Digeorge,
As reported on PharmaBiz, Qiagen has received US Food and Drug Administration (FDA) clearance for its QIAstat-Dx BCID GPF Plus AMR Panel, marking the company’s
As reported on MedIndia, England is set to introduce nationwide newborn screening for spinal muscular atrophy (SMA) in October 2027, a move designed to accelerate
Sibeprenlimab-szsi (VOYXACT) slowed estimated glomerular filtration rate decline versus placebo over 24 months in adult patients with primary IgA nephropathy, according to Phase 3 VISIONARY
My name is Stephen Savage. I’m happy to say I’m a cancer survivor. I was diagnosed in February, 2019 with a form of adenocarcinoma: esophageal
As reported of The Manila Times, Health Canada has granted priority review to Chiesi Global Rare Diseases’ new drug submission for FILSUVEZ® (birch triterpenes) topical
As reported on Fierce Biotech, Silence Therapeutics reported positive phase 2 findings for divesiran, an investigational small interfering RNA (siRNA) treatment for polycythemia vera (PV),
As reported on Drugs, Scholar Rock says the US Food and Drug Administration’s review of its biologics license application for apitegromab, an investigational treatment for
Last year, I came down with a severe autoimmune disorder. It came out of nowhere. And it was bad. I was hospitalized three times over
Editor’s Note: We are honored to share this story from our friends at CURE SYNGAP. To see this article in its original format, please click
It was 2013, I was 21 years old, studying abroad in Italy, living the semester every college student dreams about. Then I woke up one
New research presented by Teva Pharmaceuticals at Psych Congress Elevate 2026, and reported on PharmaBiz, adds to the growing body of evidence supporting the use
Living with dystonia, or any chronic condition, places the nervous system under continuous pressure and strain. When symptoms are unpredictable or uncomfortable, the brain learns to
Hi! My name is Kime. In 2019, I was diagnosed with Inflammatory Breast Cancer (IBC) with Hormone Receptors; a rare, fast growing, and aggressive type of breast cancer. Unlike other breast cancers, this type of cancer may not cause a lump in the breast. Regular breast exams and mammograms often fail to catch it early. Because it grows so fast, it usually has already spread by the time it's diagnosed. Remember, I never had any signs. No lumps, no pain, no discomfort. I just love myself enough to take care of my body with yearly exams, checkups, and physicals. With that dedication, it was caught early enough to fight, fight, fight! Every day I'm fighting to stay alive, and you should too!
Kime is the Founder of LuvnKime Giving Hands that support women and men during their Breast Cancer diagnosis, treatment, and recovery. The goal of LuvnKime Giving Hands is to put a smile on you or your loved one’s face by supplying care packages to brighten the journey. They offer local drop off and U.S. shipping.
Donations are accepted and greatly appreciated. Please contact us to donate non-monetary items. www.luvnkimegivinghands.com/ #giftbaskets #IBC #patientworthy #whatnext #InflammatoryBreastCancer #shareyourstory If you are interested in sharing your breast cancer journey, click the link: bit.ly/4dV7gru
Treatment for spinal muscular atrophy has changed what’s possible for many people living with SMA.
Today, care can include disease-modifying therapies that target the underlying cause of SMA, along with physical, occupational, respiratory, nutritional and supportive care tailored to each person’s needs.
Early treatment and ongoing care can help preserve function, support independence, manage complications and improve quality of life.
SMA may be a lifelong condition, but treatment continues to create new possibilities for the people living with it. 🤍
Click the link below to share today -
ow.ly/OYp050ZyeJY
#SpinalMuscularAtrophy #SMA #NeuromuscularDisease #PatientWorthy
Living with ongoing exhaustion can affect every part of daily life. Neurasthenia is a term associated with persistent mental and physical fatigue that may impact concentration, energy, and overall functioning.
Learning medical terminology can help make complex health conditions a little easier to understand!
#rarewordoftheweek #raredisease #rarediseaseawareness #neurasthenia #PatientWorthy
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