“For people living with a progressive rare disease, time is measured differently. Research and clinical trials can take years while patients continue to lose strength
For World CML Day (September 22nd), Nancie Steinberg reflects on living with chronic myeloid leukemia and how a cancer diagnosis ultimately led her from patient
Editor’s Note: Patient Worthy is honored to share this article from our friends at the Aplastic Anemia and MDS International Foundation. To see the article
One-time treatment provides a new option for pediatric patients with a rare, progressive genetic disorder As announced in a recent press release, the U.S. Food
I want to share this to give some ideas I have found that help me move through difficult days with more steadiness and self compassion,
As reported on Radiology Business, the American Society for Radiation Oncology (ASTRO) has released its inaugural clinical practice guideline dedicated to the use of radiation
As reported on Healio, the U.S. Food and Drug Administration has approved finerenone (Kerendia; Bayer) for adults with chronic kidney disease (CKD) associated with type
To start, a few words about the immune system: The immune system is comprised of cells, molecules, and biochemicals, and works to maintain human health.
Editor’s Note: Patient Worthy is honored to share this article, originally written by Linda Chase of Able Hire. Accessible travel planning means building a trip
For new caregivers supporting a parent, partner, or relative at home, the days can turn into an unbroken string of decisions, vigilance, and worry. The
When I was 39 years old, my life changed in an instant. I was a father of two young children, my daughter was six and
As reported on News-Medical, an experimental treatment for idiopathic pulmonary fibrosis (IPF), rentosertib, was associated with shifts toward younger biological age profiles across multiple protein-based
As reported on PharmaBiz, the U.S. Food and Drug Administration has accepted Takeda’s New Drug Application for the investigational oral therapy zasocitinib (TAK-279) and assigned
My name is Terri, and I live in the small town of Searcy, Arkansas, where I’ve proudly connected with countless people and their families over
As reported on Fierce Biotech, the U.S. Food and Drug Administration (FDA) has launched a new pilot program designed to streamline the investigational new drug
Editor’s Note: This story was originally written and submitted to us by Anthony Clark. “Okay, Michael, hold the ball up to your ear, then throw
The condition Dupuytren disease, also called Dupuytren contracture, is a chronic disorder of connective tissue in the palm. Tissue gradually becomes thickened and tight, forming
As reported on PharmaBiz, the US Food and Drug Administration (FDA) has authorized Acepodia to proceed with clinical testing of ACE723, an investigational antibody-drug conjugate
In the world of chronic illness, “better” doesn’t always mean completely well.
Sometimes, better means having fewer symptoms.
✨ Better than yesterday.
✨ Better than your worst day.
✨ Better managed.
✨ Better understood.
✨ Better, even when symptoms are still there.
Progress doesn’t have to mean everything is resolved. Sometimes, better is enough to recognize. 💛
#ChronicIllness #RareDisease #PatientWorthy
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