Trigeminal neuralgia
Jonathan’s Trigeminal Neuralgia Story
My name is Jonathan Eskenas and I live in Los Angeles with my wife and our dogs. I’m an executive producer of television series and
Rituximab May Help Stabilize or Reduce Calcinosis in Dermatomyositis, Small Case Series Suggests
How I Learned to Live the Hard Days Differently
FDA Begins Review of uniQure Gene Therapy Candidate for Huntington’s Disease
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Breast Cancer
More Than 1,000 Patients Enrolled in Major UK Trial Testing One-Week Breast Cancer Radiotherapy
As reported on PharmaBiz, a major UK breast cancer study has passed a significant recruitment milestone, with more than 1,000 patients now participating in research
Breast Cancer
Advancing Precision Oncology: Digital Twins and Symbolic AI in Triple-Negative Breast Cancer
In a collaborative effort between University College Institute (UCL) and the University of Cambridge, researchers have engineered personalized computational frameworks—often termed tumor “digital twins”—to forecast
Metabolic dysfunction-associated steatohepatitis
Open-Source Image Analysis Tool Provides Quantitative Assessment of MASH in Mouse Models
As published in Sage Journals, researchers have developed an accessible, machine learning-driven histopathology workflow that enables quantitative evaluation of metabolic dysfunction-associated steatohepatitis (MASH) in laboratory
Rare Disease
Genomics England World Leading Research Study
The Genomics England Research Study listed approximately two hundred rare treatable conditions of children five years old or younger. Genomics has had, and continues to
Ichthyosis
Living in My Skin: A Young Man’s Life with Ichthyosis
My name is Sami Yusuf Baker. I am 19 years old, and I live in a small village in the Kurdistan Region of Iraq. I
Pulmonary veno-occlusive disease
I Am Rare, I Am Here
My name is Rim Wafaa Bendjaada. I am 22 years old, a rare disease and pulmonary hypertension advocate from Algeria, living with pulmonary veno-occlusive disease
Rare Disease
All the Warm Blankets
Editor’s Note: The following is an excerpt from Bird’s Eye View: Stories of a Life Lived in Health Care by Sue Robins. I remember every single
Metabolic dysfunction-associated steatohepatitis
Spatial Mapping Study Uncovers Distinct Molecular Changes Across Liver Regions in MASH
As reported on Bioengineer and ScienMag, a new spatial transcriptomics study has provided fresh insight into how different regions of the liver are remodeled during
Cervical Dystonia
The Struggle Beneath the Struggle: Letting Go of Resistance
When life changes in a way we never wanted or expected, there are often two struggles taking place: the hardship itself and our struggle against
Breast Cancer
Personalizing Endocrine Therapy Plans: Help Patients with Early-Stage, HR+ Breast Cancer Find Clarity About What’s Next
Editor’s Note: The following article was originally written and shared with us by Adriana Olivo, NP, Memorial Sloan Kettering Cancer Center. For many people with
Fibrodysplasia Ossificans Progressiva (FOP)
The Road to Diagnosis – Holly’s FOP Story
Editor’s Note: The following story was originally written and shared with us by Holly M. LaPrade. Thirty years ago, a small army of doctors cautiously
Clear cell renal cell carcinoma
New Molecular Scan Shows Promise for Mapping Clear Cell Kidney Cancer
Clear cell renal cell carcinoma (ccRCC) is the most common type of kidney cancer. It begins in the kidney’s filtering cells and gets its name
Rare Disease
Alentis Deepens ADC Strategy Through New Claudin-1 Collaboration With PinotBio
As reported on Pharmaceutical Technology, Alentis Therapeutics has expanded its efforts in claudin-1-targeted cancer therapeutics through a newly announced partnership with PinotBio, aimed at generating
Cancer
Danish Study Examines Childhood Cancer After Fertility Treatment
As reported on Inside Precision Medicine, a large study from Denmark found that children conceived with certain assisted reproductive technologies had a higher relative rate
IgA Nephropathy
Otsuka’s Phase 3 VISIONARY Study Suggests Voyxact May Alter Disease Course in IgA Nephropathy
Final two-year data from the Phase 3 VISIONARY trial indicate that Voyxact (sibeprenlimab-szsi) may significantly slow progression of primary immunoglobulin A nephropathy (IgAN), preserving kidney
Rare Disease
Reinvigorating the Biological Clock: How a Diabetes Target Could Help Combat Ovarian Aging
One of the most persistent hurdles in biology is the natural, age-related decline of female fertility. As women age, both the quantity and quality of
Myasthenia Gravis
The Space Between Appointments
Patient by Diagnosis. Founder by Decision. By Camden Hill, Founder & CEO of Areluno Health I was 20 years old when my body started quitting
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Behind every lung cancer diagnosis is a person, a story, a family, and a life that extends far beyond the disease.
Lung cancer doesn't look the same for everyone, and no two experiences are identical. This month, we recognize those navigating a diagnosis, honor those we've lost, and stand alongside the families and caregivers who walk this journey with them.
Awareness is more than knowing the name of a disease. It's about listening, understanding, breaking down stigma, and making sure every person's story deserves to be heard.
This Lung Cancer Awareness Month, let's make room for more awareness, more compassion, and more support. 💙
#LungCancerAwarenessMonth #LungCancerAwareness #PatientWorthy
Myositis is more than muscle weakness.
For those living with myositis, everyday activities that once felt simple can become challenging. From navigating fatigue and muscle pain to adjusting daily routines, the impact of this condition can extend far beyond what others see.
Raising awareness helps build understanding, encourage earlier recognition of symptoms, and remind those affected that their experiences matter. If you're interested in sharing your story, click here: ow.ly/uTwy5103vBx
#myositis #myositisawareness #autoimmunedisease #chronicillness #rarediseaseawareness #shareyourstory #PatientWorthy
For the millions of people living with epilepsy, every day can bring unique challenges, triumphs, and moments of resilience. During Epilepsy Awareness Month, we celebrate the strength of the community while working to increase understanding and inspire meaningful change. 💜 #epilepsyawarenessmonth #EpilepsyAdvocacy #epilepsy #PatientWorthy
