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Chronic Lymphocytic Leukemia

The Weight of Thank You

Editor’s Note: Patient Worthy is honored to share the following story from our friends at Elephants & Tea, originally written by Michelle Lawrence, a patient

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Brain Cancer

Perpetually Healing

Editor’s Note: Patient Worthy is proud to share the following story from our friends at Elephants & Tea, originally written by Dillon Groover, a brain

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#advocacy #adrenal Danny's Dose-changing Emergency Medical Protocols for Rare Medical Needs EveryLife Foundation for Rare DiseasesAn exciting opportunity from our friends and partner, Danny's Dose!!

~Living with or supporting someone with a hashtag#RareDisease / hashtag#ChronicIllness?
~Angry with care and access issues?
~Work in hashtag#Healthcare & see changes that need made?

Join us for a 4-Part Advocacy Education Series where you will learn proven information and insights to starting or strengthening your advocacy journey. {Registration is required - lnkd.in/gXxtJe7B

Session 1 - Wed, Sept 23 -- Finding Purpose in Your Journey
Session 2 - Wed, Oct 21 -- Building Your Foundation
Session 3 - Wed, Nov 18 -- Becoming an Effective Advocate
Session 4 - Wed, Dec 16 -- Advocacy Fundamentals

{Noon Eastern / 11 Central Time / 10 Mountain / 9 Pacific}
Each session is 30 minutes + 30 minutes for Q-n-A & brainstorming your personal issues.

**Provided by funding from EveryLife Foundation for Rare Diseases!**

#ShapeTheFuture #ChampionChange #SaveLives #Educate
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#advocacy #adrenal  Dannys Dose-changing Emergency Medical Protocols for Rare Medical Needs  EveryLife Foundation for Rare Diseases
19 hours ago

What an incredible Saturday at the Here for the Girls, Inc. 5K! 💗🎀**

There’s something so powerful about coming together as a community. Especially when that community is united by strength, hope, and the shared mission of supporting those affected by breast cancer.

We were honored to connect with so many incredible patients, hear their stories, and learn from their journeys. Every conversation was a reminder of why patient voices matter and why creating spaces where people feel seen, heard, and empowered is so important.

We’re proud to stand alongside the breast cancer community and help amplify the voices and experiences that inspire change. 💕

A huge THANK YOU to Here For The Girls, for putting on such an incredible event and giving us the opportunity to support such an amazing community.💗🎀🏃‍♀️

#HereForTheGirls #H4TG #BreastCancerAwarenessMonth #BreastCancerCommunity #PatientWorthy #PatientEmpowerment #BreastCancerSupport #5K #RunForTheHills
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What an incredible Saturday at the Here for the Girls, Inc. 5K! 💗🎀**

There’s something so powerful about coming together as a community. Especially when that community is united by strength, hope, and the shared mission of supporting those affected by breast cancer.

We were honored to connect with so many incredible patients, hear their stories, and learn from their journeys. Every conversation was a reminder of why patient voices matter and why creating spaces where people feel seen, heard, and empowered is so important.

We’re proud to stand alongside the breast cancer community and help amplify the voices and experiences that inspire change. 💕 

A huge THANK YOU to Here For The Girls, for putting on such an incredible event and giving us the opportunity to support such an amazing community.💗🎀🏃‍♀️

#HereForTheGirls #H4TG #BreastCancerAwarenessMonth #BreastCancerCommunity #PatientWorthy #PatientEmpowerment #BreastCancerSupport #5K #RunForTheHillsImage attachmentImage attachment+Image attachment

Living with myelofibrosis and anemia can look different from person to person. Treatment may focus on managing anemia, easing symptoms, reducing complications, and addressing the underlying disease. Understanding available treatment approaches can help patients and caregivers have more informed conversations with their healthcare team.
Click the link below to share your story with us today!
ow.ly/ST3r50ZTSZG
#myelofibrosis #anemia #raredisease #bloodcancer #PatientWorthy
... See MoreSee Less

Living with myelofibrosis and anemia can look different from person to person. Treatment may focus on managing anemia, easing symptoms, reducing complications, and addressing the underlying disease. Understanding available treatment approaches can help patients and caregivers have more informed conversations with their healthcare team.
Click the link below to share your story with us today!
https://ow.ly/ST3r50ZTSZG
#Myelofibrosis #Anemia #RareDisease #BloodCancer #PatientWorthyImage attachmentImage attachment
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