Jenny, a 40-year-old nurse with Charcot-Marie-Tooth disease, began her solo voyage from Hawaii with her 6-pound Maltese dog named Romeo aboard in April 2023. She
Did you know that World Duchenne Day is recognized each year on September 7th? This day is dedicated to spreading awareness about Duchenne muscular dystrophy
Written by George Simpson Despite nagging inflation and economic uncertainty (which could include “Will my company make layoffs in the next year? or “Will my
Patient Worthy’s award-winning podcast “Wait, How Do You Spell That? A Rare Disease Podcast” is back with a new episode. This week, Colby is sitting
Researchers at Washington University’s medical school have used a new technique to study brain neurons in a lab setting, allowing them to bypass the need
Rare Community Profiles is a Patient Worthy article series of long-form interviews featuring various stakeholders in the rare disease community, such as patients, their
The U.S. Food and Drug Administration has announced a public meeting set for Wednesday, October 16, 2024 to discuss the creation of a Rare Disease
By: Erin Santos-Primis, Mom to Isabella and Executive Director of the Isabella Santos Foundation Starting a nonprofit in honor of a loved one lost to
Rare Community Profiles is a Patient Worthy article series of long-form interviews featuring various stakeholders in the rare disease community, such as patients, their families,
First established by the International Foundation for Gastrointestinal Disorders (IFFGD) in 2016, Gastroparesis Awareness Month is designed to increase awareness of gastroparesis and how it
After years of research an international team of scientists has unraveled the genetic makeup of 47 strains of known and potential Lyme disease-causing bacteria. The
Fecal microbiota transplants (FMTs) take healthy bacteria from stool provided healthy individuals, and transfer it to a donor with gut microbiome dysbiosis. Typically, fecal transplants
Globally, an estimated 39.9 million people live with human immunodeficiency virus (HIV). HIV is an infection which, over time, damages the immune system. This condition
At Japan’s Fujita University, researchers reported to Inside Precision Medicine that a new risk measurement may add a layer of accuracy in predicting sudden cardiac
As I reflect on over 20 years living with dystonia and pain and other symptoms that changed my life in many ways, I want to
In the hit Amazon superhero series "The Boys," the character Black Noir is depicted as living with #narcolepsy. Read to learn why:
The Origin of Black Noir's Narcolepsy in Hit TV Series 'The Boys' - Patient Worthy
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In the hit superhero series 'The Boys' superhero Black Noir is depicted as living with narcolepsy. Read to learn why.
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