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PATIENT WORTHY SERIES

THE LATEST FROM PATIENT WORTHY

Gastrointestinal Stromal Tumors

ICYMI: QINLOCK Approved in UK for GISTs

In late December 2021, biopharmaceutical company Deciphera Pharmaceuticals, Inc. (“Deciphera”) shared that its therapy QINLOCK (ripretinib) was approved in the United Kingdom. The treatment is

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rare disease
Spinocerebellar Ataxia

Family Raises SCA3 Awareness

The Klassen family is no stranger to the rare disease community. According to the Denver Post, Greg Klassen was first diagnosed with spinocerebellar ataxia type

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UPCOMING EVENTS

  1. International Pain Foundation’s AVAIYA University: Conquering Chronic Pain.

    January 19 - January 26
  2. The Center for Chronic Illness Web-Based Rare Chronic Illness Support Group

    February 1 @ 7:00 pm - 8:00 pm
  3. Angel Aid Cares’ Rare Mother Meetup

    February 9 @ 6:00 pm - 7:00 pm
  4. The Oley Foundation’s Tube Feeding/TPN Support Group for Patients and Caregivers

    February 10 @ 6:30 pm - 7:30 pm
  5. The Center for Chronic Illness WA State Rare Chronic Illness Support Group

    February 11 @ 1:30 pm - 2:30 pm

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