Colorectal cancer
Becky’s Journey with Metastatic Colon Cancer
I’ve survived Stage 4 colon cancer for about 10 years. I went to the doctor for a routine colonoscopy. They said I had a long
Body Bound by Earth, Mind Master of the Cosmos: My Journey with LGMD2R
- October 7, 2026
FDA Delays Decision on Novo’s Hemophilia A Therapy Over Manufacturing Concerns
Bladder Cancer May Be Getting Easier to Detect
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Metabolic dysfunction-associated steatohepatitis
Wegovy Linked to Normal Liver Fat Levels in Small Analysis of Adults With Obesity
As reported on Medical Daily, small exploratory analysis suggests that semaglutide, the active ingredient in Wegovy, may substantially reduce liver fat in some adults with
Limb-girdle muscular dystrophy
I Live With LGMD. I Want Patients to Help Shape What Comes Next.
When I was seven, my parents were trying to understand why I was becoming ill. I spent time in hospitals and underwent painful muscle biopsies.
Rare Disease
My Big Sister
Editor’s Note: Patient Worthy is honored to present this story, shared with us by our friends at the Courageous Parents Network. Originally written by Dr.
Rare Disease
FDA Clears First Expandable Heart Valve for Pediatric Patients
As reported on Becker’s Hospital Review, the FDA has approved a first-of-its-kind pulmonary heart valve that can be enlarged after implantation, potentially allowing the device
Cancer
Galleri Moves Closer to FDA Decision as Evidence on Multi-Cancer Blood Testing Evolves
As reported on Becker’s Hospital Review, an FDA advisory committee has backed Grail’s Galleri blood test, bringing the U.S. closer to potentially having its first
Cancer
Myth Buster: You Don’t Need a High Protein Diet
Editor’s Note: Patient Worthy is honored to share this article from our friend Julie Lanford, MPH, RD, CSO, LDN – a.k.a. The Cancer Dietitian. To
Chronic Lymphocytic Leukemia
The Weight of Thank You
Editor’s Note: Patient Worthy is honored to share the following story from our friends at Elephants & Tea, originally written by Michelle Lawrence, a patient
Dementia
Muscle Loss May Be More Closely Linked to Dementia Risk Than Body Weight, Review Finds
As reported on SciTechDaily, a large research review suggests age-related losses in muscle mass, strength, and physical function may have a stronger association with dementia
IgA Nephropathy (IgAN)
Phase 3 IMAgINATION Trial of Sefaxersen Meets Primary Endpoint in IgA Nephropathy
Investigational once-monthly therapy significantly reduced proteinuria versus placebo at 37 weeks, according to interim findings from the phase 3 study. As reported on PharmaBiz, Roche
Brain Cancer
Perpetually Healing
Editor’s Note: Patient Worthy is proud to share the following story from our friends at Elephants & Tea, originally written by Dillon Groover, a brain
Microvillus Inclusion Disease
One Mom’s Fight to Change the Language Around Microvillus Inclusion Disease (MVID)
Editor’s Note: Patient Worthy is honored to share this article from our friends at Rareative. To see the article in its original format, please click
Muscle invasive bladder cancer
FDA Grants Priority Review to Imfinzi-Enfortumab Vedotin Regimen for Muscle-Invasive Bladder Cancer
As reported on PharmaBiz, the FDA has accepted AstraZeneca’s supplemental Biologics License Application for durvalumab plus neoadjuvant enfortumab vedotin in patients with muscle-invasive bladder cancer
Myelofibrosis
Selcodebart Shows Hematologic Activity in Myelofibrosis-Associated Anemia
As reported on ONC Live, early findings from the phase 1/2 RALLY-MF trial suggest selcodebart may improve hemoglobin levels and reduce dependence on red blood
Dengue Fever
Dengue Fever: If Half the World Is at Risk, Why Has No One Prevented It?
Once concentrated largely in tropical and subtropical regions, dengue is posing an expanding public health challenge as climate conditions, urbanization and population movement increase the
Diabetic retinopathy
Investigational Drug Could Help Against Diabetic Retinopathy
Diabetic retinopathy affects approximately 30% of adults with diabetes and stands as one of the leading causes of vision loss among working-age individuals worldwide. The
Diffuse Large B-cell Lymphoma
Barb’s Fight Against Stage 4 Lymphoma
In June 2024, I went to the emergency room because the “flu” I’d been diagnosed with a week earlier had turned into abdominal pain that
Lung Cancer
Rare Inherited EGFR Mutation Greatly Raises Lung Cancer Risk
People who inherit a rare change in the EGFR gene may be much more likely to develop lung cancer. Their risk is about 25 times
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Living with Metabolic Dysfunction-Associated Steatohepatitis (MASH) affects more than your liver.
It can bring worry about the future, frustration with lifestyle changes, uncertainty about treatment options, and feelings of being overwhelmed by it all. If you've ever felt anxious, discouraged, hopeful, frustrated, or all of the above at the same time, you're not alone.
What emotion has been the hardest part of your MASH journey?
Share in the comments below.
If you would like to share your story living with MASH, click the link provided or the link in bio.
ow.ly/tsv150ZV3vb
#Mash #fattyliverdisease #liverhealth #PatientWorthy #ShareYourStory #youarenotalone
Your experience could help make an impact.
We’re looking to connect with people living with Metabolic dysfunction-associated steatohepatitis (MASH) who are interested in sharing their experiences and helping bring greater awareness to the patient journey.
By lending your voice, you can help others feel seen, heard, and less alone — while contributing to a better understanding of what it’s really like to live with this diagnosis.
Interested in getting involved? Learn more here: ow.ly/rahp50ZV82c or through the link in our bio.
#MASH #MASHAwareness #ShareYourStory #PatientWorthy
At 64 years old, Becky was diagnosed with stage 4 colon cancer. Ten years later, she is sharing her story with Patient Worthy and WHATNEXT to encourage others to advocate for themselves, to be persistent, and to hold out hope. Thanks for sharing with us, Becky!
Read her full article here: ow.ly/bZfX50ZV6r6
#coloncancer #ColorectalCancer #PatientStories #PatientWorthy #WHATNEXT
