
When “Normal Labs” Are Not Normal: What Thyroid Patients Need to Know
Editor’s Note: Patient Worthy is pleased to share part 5 of 10 in an ongoing series of blog posts, provided to us by Elena Genik.


Editor’s Note: Patient Worthy is pleased to share part 5 of 10 in an ongoing series of blog posts, provided to us by Elena Genik.

A trio of Swiss biotechnology companies is advancing diverse therapeutic pipelines, with recent developments spanning inflammatory skin disease, immune‑mediated hair loss, and hard‑to‑treat cancers. Together,

As reported on BioSpace, Moderna has entered a commercialization agreement with Recordati valued at up to $160 million to support late‑stage development and future market

Scientists find polymer-coated nanoparticles together with therapeutic drugs offer promise for cancer treatment, including treatment for ovarian cancer. According to Science Daily, these nanoparticles may

A UCLA Health study published on UCLAHealth.org suggests that numbers already used to gauge heart health may also offer an early warning for serious eye

As reported on ScienceDaily, a research team at the Icahn School of Medicine at Mount Sinai has unveiled a novel immunotherapy that tackles metastatic cancer

Editor’s Note: We’re honored to share part 4 of 10 of an ongoing blog series, originally written by Elena Genik. When You Go to a

As reported on drugs.com, REGENXBIO has disclosed that the U.S. Food and Drug Administration has halted clinical testing of its investigational gene therapies RGX‑111 and

Editor’s Note: Patient Worthy is honored to share this patient story, provided to us by our friends at Heal Canada, and originally written for the

Roche has announced encouraging results from its Phase II trial of CT-388, an experimental obesity treatment that achieved placebo-adjusted weight loss of 22.5% over 48

The European Medicines Agency (EMA) has issued a positive opinion recommending that retifanlimab (Zynyz) be approved for an expanded indication to treat adults with advanced

Editor’s Note: Patient Worthy is honored to share part 3 in an ongoing 10-part series, written and shared with us by Elena Genik. When My

Researchers have developed an innovative deep learning model capable of accurately differentiating thyroid eye disease (TED) from orbital myositis using computed tomography (CT) imaging, potentially

As reported on Drugs.com, REGENXBIO has announced that the U.S. Food and Drug Administration (FDA) has halted clinical testing of its investigational gene therapies RGX‑111

Several highly esteemed Institutes such as the Mayo Clinic and CONICET have identified critical elements contributing to the aggressiveness of Pancreatic cancer. The survival rate

Moderna and Merck have announced promising five-year data for a groundbreaking personalized cancer treatment that combines mRNA technology with immunotherapy to prevent melanoma from returning

As reported on Science Daily, a breast cancer vaccine tested more than 20 years ago is drawing renewed scientific interest after researchers discovered that every

Editor’s Note: Patient Worthy is honored to share part 2 in an ongoing 10-part series, written and shared with us by Elena Genik. Before the
#battendisease You are not alone #coffeechat BDSRA FoundationThe Batten disease journey is overwhelming. If you’re feeling lost, have questions, and/or just need to chat, you’re invited to join our Director of Family Support, Heather Dainiak, for a Coffee Chat this Friday at 12 PM EST. Learn more: ow.ly/HUZt50Y92qG
Want more programming like this? Please donate to the BDSRA Foundation: ow.ly/z1ah50Y92qF
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Aplastic Anemia and MDS International FoundationParents often wonder, "How did my child get Aplastic Anemia? Or PNH? Or MDS?
These experts explain this process and the treatments for bone marrow failure here:
www.aamds.org/share/webinar/781
#aplasticanemia #SAA #PNH #MDS #pediatric
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@CureSyngap1"When she was missing nearly all her milestones at 9 months old, her pediatrician told us to 'wait and see.' Fortunately, we didn’t listen!" 💜💙💚
February is #RareDisease Month, and we have another unique, yet relatable, #Warrior Story to share.
Read more about Sloane's journey 👉 cureSYNGAP1.org/Warrior 💪
We are all the collective voices for those suffering from #SYNGAP1 across the globe! Share your story and help #CURESYNGAP1 spread awareness!
#WednesdayWarrior 🧬
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