Myelodysplastic syndromes
FREE MDS Event in VA!
Our partner, the MDS Foundation, is sponsoring another free event for patients with MDS and caregivers. Event Summary: Whether you are a newly diagnosed patient, a
Rare Patient News. Well Done.
Study Finds That BRAF Inhibitors Could be an Effective Treatment for Some Ovarian Cancer Patients
- August 18, 2018
The Burden of PKD: A Patient Story
So Why DOES Canada have Scarcer Access to Rare Disease Therapies?
Pediatric Cancer Rates are Highest in the Northeast, But No One Knows Why
LATEST PATIENT WORTHY ARTICLES
Rare Disease
Celebrate Children’s Health Day with Incredible and Free Resources from Sesame Street
Elmo and friends are here to help! – thanks to the good people of The National Association of Community Health Centers (NACHC)! For those who have
Neuroendocrine Tumors of Gastroenteric or Pancreatic Origin
What Killed Aretha Franklin? An In-Depth Look at Pancreatic Neuroendocrine Tumors
On August 16th, 2018, Aretha Franklin, the “Queen of Soul,” passed away at age 76. Aretha will be immortalized for generations because of the success
Primary Periodic Paralysis
Teenager with Rare Disease Treks Across the Country with a Very Important Message
Gabriel Low, a 17-year-old from Hawaii, just completed a 3,000-mile bike ride across the country. He’s been riding since June 11th when he embarked from
Dysautonomia
How Getting Diagnosed With POTS Changed My Life: A Patient Story
The Beginning My story began in February 2011. On January 10th, 2011, my husband and I were involved in an accident in which we slid off the side of
Renal Cell Carcinoma
Researchers May be Able to Predict Kidney Cancer Years in Advance
A recent study published in the journal Clinical Cancer Research has found that a certain protein called KIM-1 may be able to predict renal cell carcinoma
TRENDING NOW ON PATIENT WORTHY
POTS and Vasovagal Syncope: A Patient Story - Community Spotlight, POTS, Vasovagal syncope
A Historic New Discovery Could Have Major Implications for Cystic Fibrosis - Cystic Fibrosis, Rare disease, Research
Teenager with Rare Disease Treks Across the Country with a Very Important Message - Primary periodic paralysis, Rare disease, Ride for Rare Diseases, Sponsored
A Woman With Vulvar Cancer Has a Terminal Prognosis. Now She is Spreading Awareness - Community Spotlight, Lichen Sclerosus, Vulvar cancer
Study Finds that Prognosis for Systemic Sclerosis can be Predicted with this Simple Test - Rare disease, Research, Scleroderma, Systemic sclerosis
The Dos and Don'ts of Exercising with Ehlers-Danlos Syndrome - EDS, Ehlers-Danlos syndrome, Hypermobility, Opinion, Resource
How Getting Diagnosed With POTS Changed My Life: A Patient Story - Community Spotlight, Dysautonomia, POTS, Rare disease
10 consejos alimenticios para el Síndrome de Sjögren - Anti-inflammatory diet, Espanol, News, Rare disease, Sjogren's
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