Merck and Gilead Sciences reported contrasting late-stage outcomes on Monday, pairing a promising advance in HIV treatment with the discontinuation of a high-profile lung cancer
As reported on Business Wire, Stanford Medicine Cancer Center has reported a significant milestone in radiation oncology, completing the world’s first patient treatment using a
Editor’s Note: This article was originally written and shared with us by Nick Leon of Naked Eye, and is shared here with gratitude. To see
As reported by The Manila Times, MediciNova has announced that the U.S. Patent and Trademark Office has issued a Notice of Allowance for a new
According to a recent report on BioSpace, Otsuka Pharmaceutical’s investigational therapy Voyxact is gaining momentum in IgA nephropathy (IgAN) after new Phase 3 results showed
Editor’s Note: This story was submitted to us by Angelina Olivera, the mom of a 14-year-old with Duchenne muscular dystrophy, and the sister of two
As reported in BioPharmaDive, the U.S. Food and Drug Administration (FDA) has postponed its decision on camizestrant, an experimental oral therapy for breast cancer being
As reported on PharmaBiz, HAYA Therapeutics has reached an early clinical milestone with its lead investigational therapy, HTX-001, announcing that the first cohort of participants
The human body is governed by an ancient, rapid-response defense system. When an invader attacks, the innate immune system rushes to the front lines like
Editor’s Note: This story was originally written by Julia Alessandrine—a survivor of Hodgkins Lymphoma—and shared with us by our friends at Elephants & Tea. To
Editor’s Note: This article was submitted to us by Regina Portnoy. A clinical trial may be remembered for a breakthrough treatment, a new therapy, or
Having lived with chronic pain and involuntary muscle contractions from a neurological movement disorder called dystonia since 2001, I felt defeated many times. But I
Looking back, the signs were there long before I was diagnosed with lupus. As a child, I struggled with gastrointestinal issues and a variety of
Imagine being able to turn down the dial on severe pain without taking a single pill or undergoing surgery. Scientists in the UK have just
Editor’s Note: Patient Worthy is honored to present this story, shared with us by our friends at The Mast Cell Disease Society. To see the
By Dr. Avishek Kumar When someone hears there may finally be a breakthrough for pancreatic cancer, the natural reaction is hope. In clinic, however, I
1. A Physical Smoking Gun in the Heart-Brain Connection When people experience cognitive problems, mood drops, or chronic anxiety after surviving a heart attack, the
As reported on PharmaBiz, Infex Therapeutics has announced encouraging results from a phase IIa clinical study of RESP‑X, an investigational monoclonal antibody being developed for
Multifocal Motor Neuropathy (MMN) is a rare neurological condition that primarily affects movement rather than sensation. Because symptoms often begin gradually and may resemble other neuromuscular disorders, understanding the signs can help support earlier recognition and diagnosis. Awareness matters—especially for conditions that many people have never heard of until they or someone they love is affected.
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#mmn #rareneurologicaldisease #PatientWorthy
For many people living with rare diseases, changes in the voice can be more than just hoarseness. Neurological, muscular, and other underlying conditions can affect the ability to speak clearly, communicate comfortably, and be understood by others. Raising awareness of symptoms like these helps highlight the often-overlooked ways rare diseases impact daily life and why every patient deserves to have their voice heard.
#rarewordoftheweek #raredisease #rarediseaseawareness #PatientWorthy
Living with a rare or chronic illness means even “taking it easy” isn’t always easy. Some days, rest helps. Other days, your body has completely different plans.
To everyone navigating flare-ups, fatigue, pain, and the unpredictability that people don’t always see—we see you. 💙
#ChronicIllness #RareDisease #InvisibleIllness #ChronicIllnessWarrior #RareDiseaseAwareness #PatientWorthy
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