New Treatment Strategy May Eliminate Need for Immediate Organ Removal As reported on Bioengineer, groundbreaking clinical investigation led by researchers at Mayo Clinic suggests that
Editor’s Note: The following recipe was written and shared with us by our friend Julie, the Cancer Dietitian. I cannot tell you how many people
New Research Reveals Protective Link Between Routine Immunizations and Uveitis Prevention A comprehensive analysis of patient health records reported on Medscape has uncovered a promising
Editor’s Note: The following patient story was submitted to us by Daniel S.—an animal lover, sports fan, and former IIH patient. When you think about
As reported on MedScape, gradually extending the interval between belimumab doses may allow carefully selected patients with systemic lupus erythematosus (SLE) in long-term remission to
As reported on PR Newswire, the US Food and Drug Administration has granted Breakthrough Therapy designation to Kowa’s investigational therapy K-808 (pemafibrate) for primary biliary
As reported on The ASCO Post, perioperative treatment with enfortumab vedotin-ejfv plus pembrolizumab resulted in superior event-free survival, overall survival, and pathologic response rates compared
As reported by the BBC, the Ebola outbreak in DR Congo was declared in May 2026 and is now the second worst on record with
Editor’s Note: The following article was originally written by Dr. Linda Bluestein. Linda Bluestein, MD, is a board-certified anesthesiologist and internationally recognized expert in hypermobility
As reported on Gizmodo, Samsung has announced that its Galaxy Ring will soon support an FDA-cleared sleep apnea risk detection feature, making it the first
Editor’s Note: The following patient story was submitted to us by Christoph Muth, a 52-year-old German man currently residing in Thailand. I am living with
As reported by The Manila Times, Axsome Therapeutics has announced the initiation of its Phase 3 CLARITY clinical trial evaluating solriamfetol as a potential treatment
According to a press release from Texas A &M, researchers are using artificial intelligence to narrow drug choices and make shared data easier to use. Tuberculosis drug
A team from Minnesota University has created a synthetic cell that includes lifeless chemicals and created a synthetic cell that will grow, reproduce, and even
Editor’s Note: Patient Worthy is honored to share this article from our friends at Elephants & Tea, originally written by Kiki Khan, a leukemia survivor.
Editor’s Note: This post was written and submitted to us by Jon Scheinman, and originally shared on LinkedIn. To see the article in its original
As reported on Drugs, Eli Lilly has reported positive topline findings from two additional Phase 3 trials of retatrutide, its investigational triple hormone receptor agonist
As reported on PharmaBiz, AstraZeneca has reached an important regulatory milestone in Europe after the European Medicines Agency’s Committee for Medicinal Products for Human Use
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We often celebrate major milestones, but sometimes the most meaningful victories are much quieter. Choosing to keep going, to be present, and to take things one day at a time deserves recognition, too.
Here's your reminder: showing up counts, and it always will.
#PatientWorthy #RareDisease #chronicillness #PatientVoice #livedexperience #invisibleillness #HealthJourney #RareDiseaseCommunity #chronicillnessawareness
Today, we recognize International Myalgic Encephalomyelitis Awareness Day by shining a light on a complex neurological disease that can profoundly impact every aspect of a person's life. For many, even routine daily activities can come at a significant physical cost, yet the challenges of living with ME often remain invisible to others.
Awareness begins with listening, learning, and believing the experiences of those affected. By increasing understanding, supporting research, and advocating for timely diagnosis and compassionate care, we can help create a future where no one living with ME feels overlooked.
💙 Together, let's raise awareness, foster empathy, and stand with the individuals, families, and caregivers impacted by myalgic encephalomyelitis.
#MyalgicEncephalomyelitis #MEAwareness #PatientWorthy
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