Investigational once-monthly therapy significantly reduced proteinuria versus placebo at 37 weeks, according to interim findings from the phase 3 study. As reported on PharmaBiz, Roche
Editor’s Note: Patient Worthy is proud to share the following story from our friends at Elephants & Tea, originally written by Dillon Groover, a brain
Editor’s Note: Patient Worthy is honored to share this article from our friends at Rareative. To see the article in its original format, please click
As reported on PharmaBiz, the FDA has accepted AstraZeneca’s supplemental Biologics License Application for durvalumab plus neoadjuvant enfortumab vedotin in patients with muscle-invasive bladder cancer
As reported on ONC Live, early findings from the phase 1/2 RALLY-MF trial suggest selcodebart may improve hemoglobin levels and reduce dependence on red blood
Once concentrated largely in tropical and subtropical regions, dengue is posing an expanding public health challenge as climate conditions, urbanization and population movement increase the
Diabetic retinopathy affects approximately 30% of adults with diabetes and stands as one of the leading causes of vision loss among working-age individuals worldwide. The
In June 2024, I went to the emergency room because the “flu” I’d been diagnosed with a week earlier had turned into abdominal pain that
People who inherit a rare change in the EGFR gene may be much more likely to develop lung cancer. Their risk is about 25 times
Semaglutide 2.4 mg becomes Singapore’s first approved therapy for adults with noncirrhotic metabolic dysfunction-associated steatohepatitis and F2-F3 fibrosis. As reported on the Manila Times, Singapore’s
The Ebola Outbreak: DR Congo The Ebola outbreak in DR Congo was declared in May 2026. As reported by the BBC, it is now the
Patients in the United States wait an average of 34 to 50 days (roughly 1 to 1.5 months) for an initial neurology appointment, with wait
As reported on FiercePharma, Merck & Co.’s Welireg has secured an expanded FDA approval that moves the drug earlier in the treatment of advanced kidney
I thought I wanted a second baby. My son was an adult, and despite having an adorable Frenchie, I was ready to take steps to
15 years ago I released my first PKU project. I never imagined the day would come when I would need to assert my boundaries this
World Lung Day 2026 puts a spotlight on lung health across the life course Lung health begins early in life and needs to remain a
As reported on News Medical, researchers are increasingly exploring laboratory-grown organoids as potential tools for repairing damage caused by spinal cord and peripheral nerve injuries.
Twenty-six Novel Therapies have been FDA-approved so far this year. Medical journals, including “The Lancet”, see this as a difficult task. The Agency must maintain
Jeanmarie is a two-time kidney transplant recipient who was diagnosed with lupus nephritis at age 15. Her kidneys failed by the time she was 22, and in 2006, she received a living-donor kidney transplant from her father. Over the years, she experienced multiple rejection episodes and underwent extensive treatments to preserve the transplant. Her father’s kidney ultimately lasted nearly 20 years before chronic rejection caused it to fail. Highly sensitized, unable to pursue dialysis, and facing very limited treatment options, Jeanmarie received a second kidney transplant from a deceased donor in September 2025.After spending much of her life quietly managing kidney disease, Jeanmarie found her advocacy voice a few years ago. She knew she had nearly 30 years of knowledge and lived experience to share, and she now helps patients become active advocates in their own care. Jeanmarie serves as Community Manager for Transplant Lyfe and Kidney Lyfe, where she hosts podcasts and creates patient-centered social media content. She is also a ReMend peer mentor for people living with kidney disease and dialysis, a UNOS Ambassador, an American Kidney Fund Kidney Health Coach, and a volunteer speaker with Lifesharing. Through Lifesharing, she teaches high school students, first responders, and healthcare professionals about organ donation. Her advocacy has also included a Letter to the Editor published in The New York Times. Through her work, Jeanmarie hopes to help patients feel heard, supported, and less alone.
Instagram: @Jeanmaries_photos
Facebook: facebook.com/jeanmarie.ferguson.1
LinkedIn: linkedin.com/in/jeanmarieferguson
If you are interested in sharing your healthcare journey, click the link: bit.ly/4dV7gru
#LN #LupusNephritis #TransplantCommunity #patientworthy #shareyourstory
For many patients, getting a possible diagnosis can bring both relief and uncertainty. It may offer a name for what they’ve been experiencing, while still leaving questions that require more testing, appointments, and time to answer. For those navigating rare or complex conditions, this in-between stage can be an important—and sometimes difficult—part of the journey toward a confirmed diagnosis.
#RareWordOfTheWeek #RareDisease #RareDiseaseAwareness #PatientWorthy
Chronic illness can come with a lot of well-meaning advice—some more helpful than others.
Sometimes, you don’t need another reminder to “stay positive.” You need people who listen, believe your experience, and understand that managing a chronic condition is a lot more complicated than mindset alone!
#ChronicIllness #ChronicIllnessQuote #Quote #HumorQuote #PatientWorthy
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