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PATIENT WORTHY SERIES

Rare Classroom: 15q24 Microdeletion Syndrome

Welcome to the Rare Classroom, a new series from Patient Worthy. Rare Classroom is designed for the curious reader who wants to get informed on

Study of the Week: A Worm Model of CMTX6?

Welcome to Study of the Week from Patient Worthy. In this segment, we select a study we posted about from the previous week that we

Compassion Corner: This Patient Didn’t Let a Hurtful Incident Ruin Her Appreciation for the Compassionate Care She Received From Other Nurses

Compassion [kuhm–pash-uhn] noun A feeling of deep sympathy and sorrow for another who is stricken by misfortune, accompanied by a strong desire to alleviate the

Rare Classroom: Xeroderma Pigmentosum

Welcome to the Rare Classroom, a new series from Patient Worthy. Rare Classroom is designed for the curious reader who wants to get informed on

paroxysmal nocturnal hemoglobinuria

Study: Pozelimab Shows Positive Results in the Treatment of Paroxysmal Nocturnal Hemoglobinuria

Regeneron Pharmaceuticals has recently announced the results of Phase 2 of their study of pozelimab, which is an experimental treatment for paroxysmal nocturnal hemoglobinuria.

Cholangiocarcinoma

New Diagnostic Tool For Cholangiocarcinoma is FDA Approved

The FDA has recently approved a new diagnostic tool to help determine which IDH1-mutated cholangiocarcinoma patients may be a good fit for the novel IDH1

Thyroid Cancer

Trial Data Shows Promise in CABOMETYX for Differentiated Thyroid Cancer

In the past, Exelixis’ drug CABOMETYX (cabozantinib) has been approved for use in a variety of patients. For example, the treatment is approved for patients

Chronic Kidney Disease

Study Finds Metabolic Syndrome is Not Associated with Death for Chronic Kidney Disease Patients

A recent study has investigated the association between cardiovascular disease risk factors and fat distribution. Researchers used linear regression analyses and adjusted for insulin sensitivity

Panzyga is the first approved IVIg for patients with CIDP

COVID-19

Organ Transplants Face Unprecedented Issues in the Age Of COVID

According to a recent article at Medical XPress, the number of intensive care units around the world overwhelmed by critically ill patients suffering from COVID-19

Atypical hemolytic uremic syndrome

From Patient to Nurse: An aHUS Journey

Written by Carly In 2018, I was a new college graduate with a passion for serving others and a desire to see the world. I

Friedreich ataxia

Fara 5K: Raising Money for Freidreich Ataxia

Recently, hundreds of people celebrated the 12th Annual Fara 5k in Providence, Rhode Island. This race was organized over a decade ago in an effort

Psoriatic Arthritis

What’s the Relationship Between Back Pain and Psoriatic Arthritis?

An estimated 30% of patients with psoriasis go on to develop psoriatic arthritis (PsA), a type of inflammatory arthritis that can affect joints throughout the

Achondroplasia

Angela’s Achondroplasia Story: Raising a Son That Towers Over Her

Angela Singletary is the proud mother of three children: Aidan, DL, and Angela. One of them sticks out from the rest – literally. DL is

pulmonary arterial hypertension

FDA Clears IND Application for Phase II Pulmonary Arterial Hypertension Trial

According to a story from news.cision.com, the US Food and Drug Administration (FDA) has cleared the investigational new drug (IND) application for CS1, an investigational

Anaplasmosis

Tick-Borne Illnesses and How to Best Prevent Them

After a case of the rare tick-borne illness, Powassan virus, was reported in Providence, Rhode Island in June, Patch released an article detailing the different