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Everyone processes their rare disease (or really ANY disease) diagnosis differently. When 23-year-old Blaide Woodburn was diagnosed with phenylketonuria, it sparked in him an interest
Any Noles fans? Well, prepare to love them even more. Last weekend, players on the Florida Statue University Seminoles football team participated in FSU’s annual “Lift
Antiphospholipid syndrome (APS) causes various complications, one of which is thrombosis. Researchers are looking at ways to assess an APS patient’s risk of thrombosis, which
July is national Cleft And Craniofacial awareness and prevention Month! While one of the fruits of summers is time off from school, shortened summer hours,
Some of us here may have heard of Camp Sunshine — which provides retreats “combining respite, recreation and support, while enabling hope and promoting joy,
This is a great story about people coming together for a young boy with a rare disease, reported by a local tv news affiliate. Members
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