As reported in Business Wire, Vico Therapeutics has initiated patient dosing in an expanded cohort of its Phase 1/2a clinical study evaluating VO659, an antisense
Editor’s Note: This article was shared with us by our friends at Heal Canada. To see the article in its original format, please click here.
AbbVie has announced a landmark regulatory milestone with the US FDA’s approval of a supplemental new drug application (sNDA) for the combination of Venclexta (venetoclax)
As published in Sleep Review Magazine, Axsome Therapeutics has officially begun dosing patients in its Phase 3 CLARITY trial, a study designed to evaluate solriamfetol
Fibrosis, the accumulation of scar tissue in organs, disrupts normal organ function and leads to progressive impairment. Currently, there is no cure, and existing treatments
The relationship between people with type 1 diabetes and their medication has always been complicated. For decades, managing the condition has required constant vigilance including
As reported on PharmaBiz, Harness Therapeutics has selected HRN001 as its lead therapeutic candidate for Huntington’s disease (HD), marking a major milestone for the company
Click here to see Part 1 of of this 3 part pain series. If you suffer with chronic pain, you not only live with the unrelenting
Patients using Zepbound for weight management now have a simpler option for administering their medication. As reported by PharmaLive.com, Eli Lilly received FDA clearance for
On this episode of Wait, How Do You Spell That?, host Bree Clare sits down with Dr. Charles Link, a pioneering oncologist whose career has
At 44 years old, I was ready to hit the reset button. In March of 2025, my partner and I stepped away from our careers.
Ovarian cancer is a serious gynecological cancer with no reliable screening test, resulting in limited treatment options and a low number of survivors. Each year
Regeneron Pharmaceuticals announced that the U.S. Food and Drug Administration has accepted for Priority Review the Biologics License Application (BLA) for garetosmab, marking a significant
AstraZeneca and Daiichi Sankyo’s antibody‑drug conjugate Datroway (datopotamab deruxtecan) has been granted Priority Review by the U.S. Food and Drug Administration (FDA) for use as
As a little girl, I believed miracles only existed in movies. They felt distant, beautiful stories meant for someone else. I never imagined that my
Eli Lilly is making strategic moves to expand its obesity medication Zepbound beyond weight management, demonstrating promising results when combined with its autoimmune therapeutic Taltz
Editor’s Note: This story was submitted to Patient Worthy by Ghulam Ali, Founder & CEO, Muscular Dystrophy Pakistan. I am 35 years old and hold
Editor’s Note: This article was shared with us by our friends at cancerdietitian.com. EtR PROGRAM UPDATES: Welcome to Week 11 of the Eat the Rainbow Fruit
We had the pleasure of meeting Krista in person last week at Rare Disease Week on Capitol Hill! Krista is one of ten 2025 Rare Artist Awardee winners. She is a talented wood-burning artist, advocate, wife, and mom of two. Krista was diagnosed with Usher syndrome, a rare genetic condition that affects her hearing and vision. Her vision loss, caused by retinitis pigmentosa, has narrowed her visual field from the typical 180° to just 5° of central vision. She wears hearing aids and uses a white cane daily to navigate independently!
“My art shares what it looks like to navigate life with dual sensory loss while still choosing creativity, connection, and joy. When I reflect on Rare Disease Month, it means visibility and research. It means community and advocacy. It means being seen, heard, and feeling worthy. I will continue to "wear my stripes" proudly!”
#RareDC2026 #RareDiseaseWeek #PatientWorthy #RareArtist
Getting a diagnosis for Huntington’s disease is rarely simple. It often involves a combination of neurological exams, medical history, genetic testing, and imaging to help doctors understand what’s happening in the brain.
For many families, the process can bring a mix of answers, uncertainty, and difficult decisions—especially when genetic testing is involved. Learning about diagnosis and testing is an important step toward understanding the condition, accessing care, and supporting those affected.
Awareness helps ensure people recognize the signs, seek appropriate evaluation, and receive the support they deserve. If you're interested in sharing your story, click here: bit.ly/4dV7gru
#HuntingtonsDisease #HuntingtonsDiseaseAwareness #ShareYourStory #PatientWorthy
March is Brain Injury Awareness Month. Today and every day, we stand with survivors, caregivers, and the countless individuals navigating life after a brain injury. You are seen, supported, and never alone 💚 #braininjury #BrainInjuryAwarenessMonth #MoreThanMyBrainInjury #BrainHealth
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