A recent article by Dr. Rosalie Greenberg explores the possible relationship of infections caused by ticks and psychiatric conditions in children, including PANS or PANDA
Abeona Therapeutics Inc. has announced a significant expansion in access to ZEVASKYN, marking the activation of Children’s Hospital of Philadelphia (CHOP) as the sixth Qualified
As reported on PharmaBiz, Regenxbio has announced encouraging topline findings from the pivotal Phase III portion of its ongoing AFFINITY DUCHENNE clinical program evaluating RGX-202,
Biossil, based in Toronto and co-founded by Dr. Alexander Mosa (Chair, CSO and co-founder) and Anthony Mouchantaf (CEO and co-founder), is making headway for rare
As reported on PharmaTimes, Poolbeg Pharma has secured a Canadian patent protecting the use of p38 MAPK inhibitors, including its lead candidate POLB 001, for preventing
Editor’s Note: This story was originally published on Linked-In and is shared with permission by Olga Lucia Torres. She waited an hour and fifteen minutes to
As reported on Healio, emerging real-world evidence suggests that glucagon-like peptide-1 (GLP-1) receptor agonists—and related dual agonists—may play a significant role in lowering the risk
I remember the day I realized something was wrong, as clearly as if it happened this past weekend. It was a beautiful morning in June.
Systemic lupus erythematosus punishes patients twice. First comes the disease itself, an autoimmune disorder where the body attacks its own tissues, causing debilitating fatigue, joint
As reported on BioSpace, the U.S. Food and Drug Administration (FDA) has approved Partner Therapeutics’ bispecific antibody Bizengri for adults with cholangiocarcinoma harboring an NRG1
Editor’s Note: Patient Worthy is honored to share this submission from Katie DiLorenzo, SVP, Patient and Pharmacy Services, PANTHERx® Rare. If you’re living with a
Mesenchymal stromal cells (MSCs) have tantalized the medical world for years. These versatile immune-modulating cells offer genuine hope for diseases ranging from epidermolysis bullosa, a
Patient Worthy is honored to reprint this selection from The Cancer Dietitian, by Julie Lanford MPH, RD, CSO, LDN. It’s important to know that no single
I am sharing my journey to give a voice to patients who suffer from extreme poly-pathology and are often left behind by the medical system.
For decades, colorectal cancer treatment has followed the same playbook: surgeons remove the tumor, then patients endure months of chemotherapy hoping to catch any remaining
AskBio Inc., a gene therapy company operating independently under Bayer AG, has taken a key step forward in the development of its investigational Parkinson’s disease
Editor’s Note: This story was originally published on Linked-In and is shared with permission by Olga Lucia Torres. In college, a clinician told me I
Enpatoran offers hope for millions suffering from lupus skin manifestations Pharmaceutical company Merck KGaA has announced a significant milestone in lupus treatment research. As reported
Genetic Engineering & Biotechnology News
How Gut Bacteria Apply Reversible Epigenetic “Bet-Hedging” Strategy to Adapt to Change
hubs.li
Researchers say epigenetic phase variation mechanism may explain microbiome resilience and variability and could guide the next generation of probiotics.
Today on Behçet’s Awareness Day, we’re recognizing the strength of those living with a rare and often misunderstood disease.
Behçet’s disease can affect many parts of the body and looks different for everyone living with it — which is why awareness, understanding, and support matter so much.
To everyone navigating flares, symptoms, appointments, and the unknown: your experiences are valid, and your story matters.
#BehçetsDisease #BehçetsDiseaseAwareness #RareDiseaseOfTheWeek #RareDisease #RareDiseaseAwareness #PatientWorthy
TREND CommunityJoin us for an honest (and free) conversation about uncertainty in rare disease, and practical ways to feel more grounded with psychologist and rare disease advocate, Dr. Albert Freedman. 🤍
What to expect:
🧰 Practical tools for "what if" thinking and anxiety about the unknown
🤍 Permission to feel overwhelmed and how to work through it
🧭 Strategies for navigating transitions and the unexpected
Ready to register?
When: May 21 at 12pm EST
Sign up: shorturl.at/bp4mk
© Copyright 2024 Patient Worthy
Sign Up With a Patient Worthy Account and Share Your Rare Story
- OR -
Make a difference, share your experiences and get paid. Opt-in and join Patient Worthy's panel for paid opportunities such as surveys, market research, patient advisory panels and more.
- OR -
Make a difference, share your experiences and get paid. Opt-in and join Patient Worthy's panel for paid opportunities such as surveys, market research, patient advisory panels and more.
