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Cystic Fibrosis

Updates on MRT5005 Trial

Translate Bio has been moving forward with the development of their new drug candidate, MRT5005. This mRNA therapy was created to address the underlying cause

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UPCOMING EVENTS

  1. The FH Foundation’s FH Global Summit: Lp(a) and Drivers of Inherited Risk

    January 27 @ 12:00 pm - 1:30 pm
  2. Rare Disease Legislative Advocates’ January Webinar

    January 28 @ 12:00 pm - 1:00 pm
  3. The IWMF’s Global Educational Webinar: Why Clinical Trials Matter and How to Find the Right One for You

    February 9 @ 1:30 pm - 2:30 pm
  4. Burning Nights’ Online CRPS Support Group

    February 10 @ 2:00 pm - 4:30 pm
  5. The FH Foundation’s FH Global Summit: New Frontiers of FH Care

    February 17 @ 12:00 pm - 1:30 pm

RARE CLASSROOM

Welcome to the Rare Classroom, a new series from Patient Worthy. Rare Classroom is designed for the curious reader who wants to get informed on some of the rarest, most mysterious diseases and conditions. This series is an opportunity to learn the basics about some of the diseases that almost no one hears much.

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