Lung Cancer
Rare Inherited EGFR Mutation Greatly Raises Lung Cancer Risk
People who inherit a rare change in the EGFR gene may be much more likely to develop lung cancer. Their risk is about 25 times
Selcodebart Shows Hematologic Activity in Myelofibrosis-Associated Anemia
- September 30, 2026
Dengue Fever: If Half the World Is at Risk, Why Has No One Prevented It?
Investigational Drug Could Help Against Diabetic Retinopathy
Barb’s Fight Against Stage 4 Lymphoma
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Metabolic dysfunction-associated steatohepatitis
Singapore Approves Wegovy for MASH With Moderate to Advanced Liver Fibrosis
Semaglutide 2.4 mg becomes Singapore’s first approved therapy for adults with noncirrhotic metabolic dysfunction-associated steatohepatitis and F2-F3 fibrosis. As reported on the Manila Times, Singapore’s
Ebola
Ebola – Lessons Learned
The Ebola Outbreak: DR Congo The Ebola outbreak in DR Congo was declared in May 2026. As reported by the BBC, it is now the
Rare Disease
Synapticure: A Nationwide Neurology Network Developed by Utilizing Telehealth
Patients in the United States wait an average of 34 to 50 days (roughly 1 to 1.5 months) for an initial neurology appointment, with wait
Renal Cell Carcinoma
FDA Expands Welireg Use in Kidney Cancer With Lenvima Combination
As reported on FiercePharma, Merck & Co.’s Welireg has secured an expanded FDA approval that moves the drug earlier in the treatment of advanced kidney
Colorectal cancer
A Routine Colonoscopy at 44 Revealed Cancer – Now She’s Raising Awareness
I thought I wanted a second baby. My son was an adult, and despite having an adorable Frenchie, I was ready to take steps to
Phenylketonuria
Boundaries, Securities, and Safety: The Unexpected Challenges of Kevin’s PKU Advocacy
15 years ago I released my first PKU project. I never imagined the day would come when I would need to assert my boundaries this
Rare Disease
Lung Health Starts Early and Needs Protecting Throughout Life
World Lung Day 2026 puts a spotlight on lung health across the life course Lung health begins early in life and needs to remain a
Peripheral Nerve Injury
Organoid Advances Could Open New Paths for Spinal Cord and Peripheral Nerve Repair
As reported on News Medical, researchers are increasingly exploring laboratory-grown organoids as potential tools for repairing damage caused by spinal cord and peripheral nerve injuries.
Rare Disease
Novel Therapies and the FDA
Twenty-six Novel Therapies have been FDA-approved so far this year. Medical journals, including “The Lancet”, see this as a difficult task. The Agency must maintain
Diabetes Type 2
FDA Approves Lilly’s Once-Weekly Onswik Insulin for Adults With Type 2 Diabetes
As reported on PR Newswire, the U.S. Food and Drug Administration has approved Eli Lilly and Company’s Onswik (insulin efsitora alfa-gobe), introducing a once-weekly basal
Rare Disease
The Invisible Kingdom: Reimagining Chronic Illness
Chronic diseases perplex doctors, while leaving patients mysteriously ill Meghan O’Rourke, the author of the best-selling book Invisible Kingdom, recently released an excerpt from this
non-small cell lung cancer
Investigational Immunotherapy Improved Survival in Advanced Squamous NSCLC
As reported on MedPage Today, an experimental immunotherapy called gotistobart helped patients with advanced squamous non-small cell lung cancer (NSCLC) live longer than standard chemotherapy
Gaucher Disease
Sharing Our Stories Is a Gift, and It Costs Us Every Time
Editor’s Note: Patient Worthy is honored to share this essay from Carrie Ostrea. I have been fortunate to share my rare disease daughter’s story for
COVID-19
Nearly Seven Years Later: Why Are So Many Long COVID Patients Still Going Untreated?
A Q&A with Robert Groysman, MD, on why standard tests can miss long COVID—and how individualized care may help patients break the cycle When the
Cancer
Liquid Biopsy and Cancer
The Wall Street Journal opinion editors recently published an article a liquid biopsy test called Galleri, prior to an upcoming FDA review. Key Trial Results
Crohn's disease
The Willem Family’s Medical Challenges
For most of my life, I knew something was wrong with my body. I just never had a name for it. When I was around
Limb-girdle muscular dystrophy
The Speak Foundation Lobbies in Washington: BridgeBio’s Development Hopeful
“For people living with a progressive rare disease, time is measured differently. Research and clinical trials can take years while patients continue to lose strength
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Have you been diagnosed with myelofibrosis and experienced anemia?
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The fact that you're still showing up each day says more than you realize.
#PatientWorthy #PatientCommunity #RareDiseaseCommunity #PatientVoices #HopeAndResilience
Living with myelofibrosis can mean navigating more than the disease itself. Complications like anemia can add another layer to a person’s experience and may influence how they feel from day to day.
Greater awareness can help patients and their loved ones better understand the challenges that may come with MF and encourage more informed conversations about care.
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