As shared on GlobeNewswire, a biotechnology company called ABLi Therapeutics has released encouraging findings from a research study on a potential new Parkinson’s treatment called
As reported on Fierce Biotech, Samsung Electronics has obtained clearance from the U.S. Food and Drug Administration (FDA) for software features that transform select Galaxy
Editor’s Note: This article was shared with us by Jo Kaur. To see it in its original format, please click here. Riaan Singh Digeorge,
As reported on PharmaBiz, Qiagen has received US Food and Drug Administration (FDA) clearance for its QIAstat-Dx BCID GPF Plus AMR Panel, marking the company’s
As reported on MedIndia, England is set to introduce nationwide newborn screening for spinal muscular atrophy (SMA) in October 2027, a move designed to accelerate
Sibeprenlimab-szsi (VOYXACT) slowed estimated glomerular filtration rate decline versus placebo over 24 months in adult patients with primary IgA nephropathy, according to Phase 3 VISIONARY
My name is Stephen Savage. I’m happy to say I’m a cancer survivor. I was diagnosed in February, 2019 with a form of adenocarcinoma: esophageal
As reported of The Manila Times, Health Canada has granted priority review to Chiesi Global Rare Diseases’ new drug submission for FILSUVEZ® (birch triterpenes) topical
As reported on Fierce Biotech, Silence Therapeutics reported positive phase 2 findings for divesiran, an investigational small interfering RNA (siRNA) treatment for polycythemia vera (PV),
As reported on Drugs, Scholar Rock says the US Food and Drug Administration’s review of its biologics license application for apitegromab, an investigational treatment for
Last year, I came down with a severe autoimmune disorder. It came out of nowhere. And it was bad. I was hospitalized three times over
Editor’s Note: We are honored to share this story from our friends at CURE SYNGAP. To see this article in its original format, please click
It was 2013, I was 21 years old, studying abroad in Italy, living the semester every college student dreams about. Then I woke up one
New research presented by Teva Pharmaceuticals at Psych Congress Elevate 2026, and reported on PharmaBiz, adds to the growing body of evidence supporting the use
Living with dystonia, or any chronic condition, places the nervous system under continuous pressure and strain. When symptoms are unpredictable or uncomfortable, the brain learns to
New Treatment Strategy May Eliminate Need for Immediate Organ Removal As reported on Bioengineer, groundbreaking clinical investigation led by researchers at Mayo Clinic suggests that
Editor’s Note: The following recipe was written and shared with us by our friend Julie, the Cancer Dietitian. I cannot tell you how many people
New Research Reveals Protective Link Between Routine Immunizations and Uveitis Prevention A comprehensive analysis of patient health records reported on Medscape has uncovered a promising
Strength doesn't always look like something extraordinary. Sometimes it's making it through a difficult season, adapting to unexpected changes, or finding moments of joy despite the challenges.
What's something this summer that reminded you you're stronger than you thought?
Share your answer in the comments—you never know who might be encouraged by your story!
#chronicillness #raredisease #invisibleillness #commentbelow #shareyourstory #PatientWorthy
Appendix cancer may be rare, but the people living with it deserve to be seen, heard, and understood.
This Appendix Cancer Awareness Month, let’s bring attention to a cancer that can be difficult to recognize and may present differently from person to person. Awareness matters because knowing the signs, understanding the diagnosis, and having meaningful conversations about care can make a difference.
Share knowledge. Support the community. Help make the rare less overlooked. 💙
#AppendixCancer #AppendixCancerAwareness
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