
One Mom’s Fight to Change the Language Around Microvillus Inclusion Disease (MVID)
Editor’s Note: Patient Worthy is honored to share this article from our friends at Rareative. To see the article in its original format, please click

Editor’s Note: Patient Worthy is honored to share this article from our friends at Rareative. To see the article in its original format, please click

As reported on PharmaBiz, the FDA has accepted AstraZeneca’s supplemental Biologics License Application for durvalumab plus neoadjuvant enfortumab vedotin in patients with muscle-invasive bladder cancer

As reported on ONC Live, early findings from the phase 1/2 RALLY-MF trial suggest selcodebart may improve hemoglobin levels and reduce dependence on red blood

Once concentrated largely in tropical and subtropical regions, dengue is posing an expanding public health challenge as climate conditions, urbanization and population movement increase the

Diabetic retinopathy affects approximately 30% of adults with diabetes and stands as one of the leading causes of vision loss among working-age individuals worldwide. The

In June 2024, I went to the emergency room because the “flu” I’d been diagnosed with a week earlier had turned into abdominal pain that

People who inherit a rare change in the EGFR gene may be much more likely to develop lung cancer. Their risk is about 25 times

Semaglutide 2.4 mg becomes Singapore’s first approved therapy for adults with noncirrhotic metabolic dysfunction-associated steatohepatitis and F2-F3 fibrosis. As reported on the Manila Times, Singapore’s

The Ebola Outbreak: DR Congo The Ebola outbreak in DR Congo was declared in May 2026. As reported by the BBC, it is now the

Patients in the United States wait an average of 34 to 50 days (roughly 1 to 1.5 months) for an initial neurology appointment, with wait

As reported on FiercePharma, Merck & Co.’s Welireg has secured an expanded FDA approval that moves the drug earlier in the treatment of advanced kidney

I thought I wanted a second baby. My son was an adult, and despite having an adorable Frenchie, I was ready to take steps to

15 years ago I released my first PKU project. I never imagined the day would come when I would need to assert my boundaries this

World Lung Day 2026 puts a spotlight on lung health across the life course Lung health begins early in life and needs to remain a

As reported on News Medical, researchers are increasingly exploring laboratory-grown organoids as potential tools for repairing damage caused by spinal cord and peripheral nerve injuries.

Twenty-six Novel Therapies have been FDA-approved so far this year. Medical journals, including “The Lancet”, see this as a difficult task. The Agency must maintain

As reported on PR Newswire, the U.S. Food and Drug Administration has approved Eli Lilly and Company’s Onswik (insulin efsitora alfa-gobe), introducing a once-weekly basal

Chronic diseases perplex doctors, while leaving patients mysteriously ill Meghan O’Rourke, the author of the best-selling book Invisible Kingdom, recently released an excerpt from this
Myelofibrosis can affect the bone marrow’s ability to produce healthy blood cells, making proper diagnosis an important step in understanding the condition and its impact. From blood tests and imaging to bone marrow biopsies and genetic testing, different tools can help healthcare providers identify myelofibrosis and better understand each person’s disease.
If you or someone you love is living with this condition and you have interest in sharing more, please click on the link below -
ow.ly/m1Xc50ZTMLN
#Myelofibrosis #Anemia
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Your medical record tells part of your story.
It can document diagnoses, medications, test results, and years of appointments. But it can't capture the strength it took to keep going, the challenges you've faced, or the life you've built beyond your condition.
Because you are more than what's written in your chart. 💙
#PatientWorthy #shareyourstory #morethanadiagnosis #HealthcareJourney #RareDiseaseCommunity #chronicillnessawareness
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Imagine looking at the world through a layer of visual “static” that never fully disappears.
For people living with visual snow syndrome, these changes in vision can be a persistent part of everyday life—and an experience that others may not be able to see or understand.
Learning about lesser-known conditions is one step toward helping patients feel seen and heard.
#RareDiseaseOfTheWeek #RareDisease #RareDiseaseAwareness #VisualSnowSyndrome #VisualSnow #PatientAwareness #PatientWorthy
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