When standard depression medications fail, patients face a devastating reality. Approximately one-third of people with major depressive disorder do not adequately respond to conventional antidepressants,
As reported on BioPharmaDive, Amgen has announced positive Phase 3 results for a subcutaneous version of its thyroid eye disease (TED) therapy Tepezza, suggesting the
Editor’s Note: Patient Worthy is proud to bring you part 3 of 5 in a series of excerpts written by Dana Langston. Part 3: The
Ollin Biosciences has announced important clinical trial results showing that OLN324, an investigational eye treatment, outperforms an existing therapy in treating two serious retinal diseases
As reported on Business Wire, Alkermes plc has initiated a global phase 3 clinical development program to evaluate alixorexton, an investigational oral therapy for people
Editor’s Note: This is the second part in a series of excerpts written by Dana Langston. Chapter 4: The Internal Shift We are living in
Multiple myeloma, a cancer of plasma cells in the bone marrow, has become an increasingly manageable disease over the past two decades, thanks to successive
As reported on FierceBioTech, Gilead Sciences has closed one of its midstage clinical studies evaluating an experimental HIV regimen, following ongoing safety concerns that prompted
Editor’s Note: The following is the first part of excerpt written and submitted to us by Dana Langston. There is a specific kind of internal
On February 23, 2026, FDA issued a Draft Guidance document, called “Considerations for the use of the Plausible Mechanism Framework to Develop Individualized Therapies that Target Specific
This is Part 3 of three articles I wrote about pain. The first 2 are entitled: Part 1- The real impact of pain that people
My journey with cardiac amyloidosis started shortly after I retired as a firefighter/paramedic in spring 2018. I started with trigger fingers—one in 2018 and two
While surgery has long been the standard for removing solid tumors, a revolutionary technique called histotripsy is offering an alternative, as reported on MedPage Today.
Remix Therapeutics has achieved a significant regulatory milestone with the U.S. Food and Drug Administration granting Fast Track designation to REM-422, a first-in-class small molecule
My whole life growing up, there was this specific buzzing sound that would come alive on the sunniest of days. I’ve been told over the
On 12/12/2025, I was admitted into the ER for a thrombectomy due to a bilateral pulmonary embolism. While I am overweight and sometimes eat like
The American Nutrition Association (ANA) has announced a collaborative initiative with Jazz Pharmaceuticals designed to advance evidence-based nutritional education for individuals living with narcolepsy and
This patient story is sponsored by Chiesi Global Rare Diseases and is promoted through the Patient Worthy Collaborative Content program. We only publish content that
A Breakthrough for the Invisible Affliction: FDA Approves First-Ever Treatment for Cholestatic Itch in Liver Disease bit.ly/3O9dgEH Read now at PatientWorthy.com
#PatientWorthy #cholestaticitch #PrimaryBiliaryCholangitis
Receiving a diagnosis can be a complicated moment. For many people in rare disease and chronic illness communities, it comes after a long period of uncertainty — trying to describe symptoms, searching for answers, and often feeling like the pieces don’t quite fit together yet.
When there is finally a name for what’s been happening, it can bring a sense of validation and context. Experiences that once felt confusing or difficult to explain may start to make more sense, and people are often able to begin learning more about the condition and how it affects their health.
While a diagnosis doesn’t change everything overnight, it can mark the start of a new chapter — one where there is more understanding, more information, and a clearer place to begin moving forward.
If you’re comfortable sharing, what did receiving a diagnosis mean for you?
#RareDisease #RareDiseaseAwareness #ChronicIllness #ChronicIllnessAwareness #PatientWorthy
National Public Health Week reminds us that the health of our communities starts with the choices we make today. From preventing chronic diseases to ensuring access to healthcare for all, every step we take matters. This week, let's celebrate the power of public health in creating healthier, safer, and more equitable communities. Together, we can build a stronger, healthier future. #NationalPublicHealthWeek #HealthEquity #PatientWorthy
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