As reported on Fierce BioTech, Roche has discontinued development of its investigational T-cell engager (TCE) RG6382 for systemic lupus erythematosus (SLE), following an internal review
Researchers from La Jolla Institute for Immunology (LJI), Scripps Research, and IAVI have reported a major advance in HIV vaccine development, demonstrating an experimental vaccine
Coats disease, is a rare retina condition diagnosed primarily in children. Symptoms may include, eye drift, blurry vision, the appearance of a white or silver
As reported on Stock Titan, the European Medicines Agency’s Committee for Medicinal Products for Human Use (CHMP) has issued a positive opinion recommending approval of
As reported on Reuters, Replimune’s experimental cancer treatment RP1 is facing increased regulatory scrutiny after U.S. Food and Drug Administration (FDA) reviewers expressed concerns about
In my younger years, beginning around the age of 30, I was living fast and careless. I was the party girl, always drinking, never thinking
As reported on Pharmaceutical Technology, Kenvue has received US Food and Drug Administration (FDA) approval for an over-the-counter (OTC) pain medication that combines acetaminophen and
As reported on Science Daily, a novel CRISPR-driven RNA editing strategy could help overcome one of the biggest challenges in prostate cancer treatment: resistance to
As reported on Stock Titan, the European Commission has approved Enhertu® (trastuzumab deruxtecan) as a treatment for adults with previously treated, unresectable or metastatic HER2-positive
Living with chronic pain or other health conditions is, in many ways, an exercise in perpetual, involuntary mindfulness. For those of us navigating long-term conditions—like
As reported on TechTimes, the U.S. Food and Drug Administration (FDA) has granted Premarket Approval to the TorEx® Lung Perfusion System, a new ex vivo
As reported on Clinical Trials Arena, the US Food and Drug Administration (FDA) has released its final guidance on the clinical development of psychedelic therapies,
As reported on PharmaBiz, Alebund Pharmaceuticals has announced the first patient has been enrolled and treated in a global Phase IIb clinical trial evaluating AP306,
As reported on Inside Precision Medicine, scientists have developed a way to spot a specific lung cancer mutation in just minutes instead of weeks, using
As reported on Business Wire, Delcath Systems has announced the enrollment and dosing of the first patient in its global Phase 2 DELUMA clinical trial,
Two of Intellia Therapeutics’ clinical trials that had been on hold since October 2025 have now been released by the FDA. The Agency initially issued
As reported on Pharmaceutical Business Review, Affinia Therapeutics has been granted orphan drug designation by the US Food and Drug Administration (FDA) for AFTX-201, an
As reported on Fierce BioTech, Johnson & Johnson has received U.S. Food and Drug Administration (FDA) clearance for its Ottava Robotic Surgical System, marking a
Living with metastatic castration-resistant prostate cancer (mCRPC) can come with difficult decisions and unique experiences. As research continues to evolve, scientists are studying new approaches that target B7-H3, including targeted antibodies, antibody-drug conjugates (ADCs), and other immune-based therapies.
Every person's journey is different, and every story matters. By sharing experiences, patients and caregivers can help build awareness, foster connection, and remind others they're not navigating this path alone.
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Living with a rare disease or chronic illness can quietly change the way everyday life feels, often in ways others may not see. Over time, you may begin to notice things that once felt automatic, invisible, or unimportant now require more thought and intention. Even something as simple as your energy starts to feel different—you become more aware of when you have it, when you don’t, and how you choose to use it throughout the day. This series explores those subtle shifts and the lived experiences behind them. If this resonates with you, you’re not alone. 💫
#PatientWorthy #RareDisease #ChronicIllness #PatientVoice #LivedExperience #InvisibleIllness #HealthJourney #ShareYourStory
🎉 We’re celebrating a major milestone—10K followers! 🎉
To our incredible rare and chronic illness community, THANK YOU. Your support, engagement, and presence mean everything to us. Every comment, like, share, and story you’ve contributed has helped build a space where patients feel seen, heard, and understood.
Patient Worthy exists because of you! Your journeys, your voices, and your willingness to show up for one another. We’re honored to share this major milestone with you and grateful to be part of such a compassionate, resilient community.
Here’s to continuing to grow together. 💙
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