
Jimi’s Fight Against Bladder Cancer
I was born in Long Island, New York, and raised in Southern California, where I grew up surrounded by sunshine and the beauty of the


I was born in Long Island, New York, and raised in Southern California, where I grew up surrounded by sunshine and the beauty of the

Diabetic macular edema represents a silent threat to working professionals across America. The condition, which causes fluid accumulation in the macula, the eye’s central focusing

As reported on PharmaBiz, ModeX Therapeutics, a clinical-stage biotechnology company within OPKO Health, has begun dosing patients in a first-in-human clinical trial evaluating MDX2003, a

A New Shield for the Blood Supply: Grifols Earns FDA Approval for Malaria Test Grifols has reached a significant milestone in transfusion medicine with the

The aesthetic skincare market has long overlooked a fundamental principle: skin preparation matters as much as the procedure itself. According to PharmaBiz.com, Galderma’s Alastin brand

As reported on Business Wire, Motif Neurotech has received clearance from the U.S. Food and Drug Administration (FDA) to initiate its first clinical study evaluating
For patients with rare diseases and the caregivers in healthcare who support them, skin changes often become a daily friction point rather than a simple

Pancreatic cancer remains one of medicine’s most formidable challenges, and recent clinical developments suggest a potential turning point. Revolution Medicines presented compelling evidence this week

Early Phase III data suggest C5 complement inhibition may alter disease course in IgAN In a recent press release, AstraZeneca reported that Ultomiris (ravulizumab) has

Yoga is often celebrated for its ability to help people find their “zen,” but new research shows it might be doing some heavy lifting for

AskBio Inc., a gene therapy subsidiary of pharmaceutical giant Bayer AG, has taken a significant step forward in advancing treatment options for Parkinson’s disease. According

For nearly two decades, I’ve been building and maintaining a global online community for individuals and families affected by Moebius syndrome, a rare neurological condition

Fernando Mendoza’s journey to becoming the Las Vegas Raiders’ first overall NFL Draft pick is not a typical underdog narrative, it’s a testament to resilience,

Editor’s Note: Patient Worthy is honored to share this piece from our friends at Elephants & Tea, originally written by Katie Newbaum. To see the

As reported on NBC News, an ophthalmologist with a history of criticizing the U.S. government’s Covid-19 vaccine strategy is emerging as a leading contender to

My name is Maha, and I had the privilege of being my father’s — my Baba’s — caregiver. I’ll be blunt; it was tough. When

Johnson & Johnson announced promising long-term efficacy and safety data for Icotyde (icotrokinra), the first and only targeted oral peptide that precisely blocks the IL-23

As reported on PharmaBiz, Roche has secured CE mark approval for its Elecsys Neurofilament Light Chain (NfL) assay, a blood-based test designed to help detect
Blue Faery: The Adrienne Wilson Liver Cancer Association𝗟𝗲𝘁'𝘀 𝗧𝗮𝗹𝗸 𝗔𝗯𝗼𝘂𝘁 𝗟𝗶𝘃𝗲𝗿 𝗛𝗲𝗮𝗹𝘁𝗵
Asian American and Pacific Islander communities face some of the highest liver cancer rates in the U.S. In some cases, these rates are higher than 𝟯 𝘁𝗶𝗺𝗲𝘀 𝗵𝗶𝗴𝗵𝗲𝗿 than those of other groups.
One major reason for this is hepatitis B. It affects up to 𝟭 𝗶𝗻 𝟭𝟬 Asian Americans and can lead to liver cancer if it isn't treated.
That's why getting the right information is so important.
Join Blue Faery for a free 𝗟𝗼𝘃𝗲 𝗬𝗼𝘂𝗿 𝗟𝗶𝘃𝗲𝗿 event during AAPI Heritage Month. This bilingual session is available in 𝗘𝗻𝗴𝗹𝗶𝘀𝗵 𝗮𝗻𝗱 𝗧𝗿𝗮𝗱𝗶𝘁𝗶𝗼𝗻𝗮𝗹 𝗖𝗵𝗶𝗻𝗲𝘀𝗲. We will cover the risks of liver cancer, how to prevent it, and steps you can take today to stay healthy.
Register now: vist.ly/426ez
𝗪𝗲 𝗳𝗶𝗴𝗵𝘁 𝗳𝗼𝗿 𝗮 𝘄𝗼𝗿𝗹𝗱 𝘄𝗶𝘁𝗵𝗼𝘂𝘁 𝗹𝗶𝘃𝗲𝗿 𝗰𝗮𝗻𝗰𝗲𝗿!
#liverhealth #livercancer #liverdisease #AAPIHeritageMonth #LoveYourLiver #livercancersupport
... See MoreSee Less

OPMD Association Non-Profit for Oculopharyngeal Muscular Dystrophy ... See MoreSee Less

MDA Spotlight On: Oculopharyngeal Muscular Dystrophy | Muscular Dystrophy Association
www.mda.org
Meet Our Presenter: Dr. Wicklund is a Neurologist and Vice Chair of Research at the University of Texas at San Antonio. He is director of the Muscular Dystrophy Care Center and has extensive experienc...
© Copyright 2024 Patient Worthy
Sign Up With a Patient Worthy Account and Share Your Rare Story
- OR -
Make a difference, share your experiences and get paid. Opt-in and join Patient Worthy's panel for paid opportunities such as surveys, market research, patient advisory panels and more.
What best describes you when it comes to rare disease? (check all that apply)
- OR -
Make a difference, share your experiences and get paid. Opt-in and join Patient Worthy's panel for paid opportunities such as surveys, market research, patient advisory panels and more.