Latest Articles

Glioblastoma

-
0
Rare Disease

-
0
Guttate Psoriasis

-
0
Rare Disease

-
0
IPF

-
0
Cataplexy

-
0
Rare Disease

-
0
Hypoplasminogenemia or Type 1 Plasminogen Deficiency

-
0
Alpha-1
Alpha-1 Antitrypsin Deficiency (A1AD)

-
0
a flower made out of carrots, peas, and corn. gastroparesis
Gastroparesis

-
0
SCD
Rare Disease

-
0
Gastroparesis

-
0
Rare Disease

-
0
Achondroplasia

-
0
Hypopituitarism

-
0
sherlock holmes psoriatic arthritis
Psoriatic Arthritis

-
0

Today's Featured Meme

meme

-
0

SIGN UP FOR OUR NEWSLETTER
SCD
Rare Disease

-
0
Gastroparesis

-
0
Rare Disease

-
0
Achondroplasia

-
0
Hypopituitarism

-
0
sherlock holmes psoriatic arthritis
Psoriatic Arthritis

-
0
Rare Disease

-
0
Rare Disease

-
0
Glioblastoma

-
0
Rare Disease

-
0
rare disease
Rare Disease

-
0
Cystic Fibrosis

-
0
Hyponatremia
Hyponatremia

-
0
Progressive Familial Intrahepatic Cholestasis (PFIC)

-
0
hypernatremia
Hypernatremia

-
0
Chronic Lymphocytic Leukemia

-
0
Hepatocellular Carcinoma

-
0
sickle cell anemia
Rare Disease

-
0
cystinosis
Cystinosis

-
0
Mucolipidosis 3

-
0
Rare Disease

-
0
Load more

TRENDING NOW...#patientworthy

Candace's family in a car
CVID

-
11
Candace gathered her cards, launched "Oceans" in the background, and pressed play as she began to record a video explanation of her rare, frequently...
Rare Disease

-
0
At first the running was exercise, a way to lose a few pounds. Running soon became the way Beth Markesino forgot her diagnosis of trigeminal...
rare disease
Rare Disease

-
0
One of the first things many people do after being diagnosed with a rare disease is search online to find out more about it. I...
baby feet

rare disease

blogging on a computer

We believe rare disease patients are people, not a diagnosis. Through education, awareness and some humor, we help patients, caregivers and support persons by providing relevant and often inspirational news and stories.

Our goals are to share stories, cultivate strong community, provide the latest medical findings, connect people and pioneer production of patient worthy information. Help us attain these goals by telling us a little bit about yourself!

Share your personal story. Comment on a post. Tag us @PatientWorthy. Become a contributor.

                                                     
© Copyright Patient Worthy