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A Promising Approach to Tumor Ablation: Histotripsy
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The Mentor She Wished She Had – How Elizabeth Became a Lifeline for EB Families
This patient story is sponsored by Chiesi Global Rare Diseases and is promoted through the Patient Worthy Collaborative Content program. We only publish content that
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Patients living with chronic or rare diseases and the caregivers coordinating appointments, medications, and daily life often carry a quiet question alongside the medical work:
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The Dravet Syndrome Foundation of Spain’s Annual Meeting 2026
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Breaking Through the Rare Disease Barrier: FDA’s Historic Approval of Denali’s Hunter Syndrome Treatment
The pharmaceutical industry celebrates a significant victory for rare disease patients as the Food and Drug Administration approved Denali Therapeutics’ groundbreaking enzyme replacement therapy for
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FDA clears higher‑dose Wegovy to support long‑term weight management
As reported on PharmaBiz, the US Food and Drug Administration (FDA) has approved Novo Nordisk’s higher‑dose formulation of semaglutide, Wegovy HD (7.2 mg once weekly),
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Major Breakthrough: Discovery of a Pathway that Allows Brain Cells to Move Toxic Material in Huntington’s Disease
Researchers at Florida Atlantic University (FAU) have identified a cellular pathway that allows brain cells to share proteins and other toxic material. The study was
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Lupin Receives FDA Approval for Pitolisant: A Novel Solution for Narcolepsy Management
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Editor’s Note: Patient Worthy is honored to present this article, shared with us by our friends at the Steatotic Liver Foundation (formerly the Fatty Liver
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Fight. I don’t think that those who aren’t in the Huntington’s Disease community understand what the word FIGHT truly means to those of us inside
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Setmelanotide Shows Limited Efficacy in Heterozygous Obesity Gene Carriers
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Illumina and Labcorp Deepen Collaboration to Broaden Access to Precision Oncology Testing
As reported on PharmaBiz, Illumina and Labcorp have announced an expanded strategic collaboration aimed at accelerating precision oncology by applying next-generation sequencing (NGS) technologies more
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Narcolepsy is more than just “feeling tired”—it’s a neurological condition that disrupts the brain’s ability to regulate sleep and wakefulness. People living with narcolepsy may experience excessive daytime sleepiness, sudden sleep attacks, sleep paralysis, vivid hallucinations, and in some cases cataplexy (a sudden loss of muscle control triggered by strong emotions).
While the exact cause isn’t always clear, narcolepsy is often linked to a deficiency of hypocretin (a brain chemical that helps control alertness), and may involve genetic and autoimmune factors. Certain risk factors—like family history or brain injury—can increase susceptibility, while triggers such as stress, lack of sleep, illness, or major life changes can worsen symptoms.
Understanding narcolepsy helps break stigma and encourages earlier diagnosis, better management, and stronger support for those affected. Awareness isn’t just knowledge—it’s empathy in action.
#NarcolepsyAwareness #SleepDisorder #InvisibleIllness #PatientWorthy
April is Stress Awareness Month 💙
Stress looks different for everyone, and so does healing. Small steps, taken consistently, can make a meaningful difference.
Let’s check in on ourselves and each other, reduce stigma, and prioritize wellbeing—this month and beyond.
#StressAwarenessMonth #MentalHealthMatters #SelfCare #PatientWorthy
