In a collaborative effort between University College Institute (UCL) and the University of Cambridge, researchers have engineered personalized computational frameworks—often termed tumor “digital twins”—to forecast
As published in Sage Journals, researchers have developed an accessible, machine learning-driven histopathology workflow that enables quantitative evaluation of metabolic dysfunction-associated steatohepatitis (MASH) in laboratory
The Genomics England Research Study listed approximately two hundred rare treatable conditions of children five years old or younger. Genomics has had, and continues to
My name is Sami Yusuf Baker. I am 19 years old, and I live in a small village in the Kurdistan Region of Iraq. I
My name is Rim Wafaa Bendjaada. I am 22 years old, a rare disease and pulmonary hypertension advocate from Algeria, living with pulmonary veno-occlusive disease
Editor’s Note: The following is an excerpt from Bird’s Eye View: Stories of a Life Lived in Health Care by Sue Robins. I remember every single
As reported on Bioengineer and ScienMag, a new spatial transcriptomics study has provided fresh insight into how different regions of the liver are remodeled during
When life changes in a way we never wanted or expected, there are often two struggles taking place: the hardship itself and our struggle against
Editor’s Note: The following article was originally written and shared with us by Adriana Olivo, NP, Memorial Sloan Kettering Cancer Center. For many people with
Editor’s Note: The following story was originally written and shared with us by Holly M. LaPrade. Thirty years ago, a small army of doctors cautiously
Clear cell renal cell carcinoma (ccRCC) is the most common type of kidney cancer. It begins in the kidney’s filtering cells and gets its name
As reported on Pharmaceutical Technology, Alentis Therapeutics has expanded its efforts in claudin-1-targeted cancer therapeutics through a newly announced partnership with PinotBio, aimed at generating
As reported on Inside Precision Medicine, a large study from Denmark found that children conceived with certain assisted reproductive technologies had a higher relative rate
Final two-year data from the Phase 3 VISIONARY trial indicate that Voyxact (sibeprenlimab-szsi) may significantly slow progression of primary immunoglobulin A nephropathy (IgAN), preserving kidney
One of the most persistent hurdles in biology is the natural, age-related decline of female fertility. As women age, both the quantity and quality of
Patient by Diagnosis. Founder by Decision. By Camden Hill, Founder & CEO of Areluno Health I was 20 years old when my body started quitting
Exercise, yoga, psychological support and other approaches that do not involve medication or surgery may help people with low back pain—and may be cost-effective, according
Editor’s Note: This article, reprinted in full, was originally written and shared with us by Alliance. To see the article in its original format, please
Myositis is more than muscle weakness.
For those living with myositis, everyday activities that once felt simple can become challenging. From navigating fatigue and muscle pain to adjusting daily routines, the impact of this condition can extend far beyond what others see.
Raising awareness helps build understanding, encourage earlier recognition of symptoms, and remind those affected that their experiences matter. If you're interested in sharing your story, click here: ow.ly/uTwy5103vBx
#myositis #myositisawareness #autoimmunedisease #chronicillness #rarediseaseawareness #shareyourstory #PatientWorthy
For the millions of people living with epilepsy, every day can bring unique challenges, triumphs, and moments of resilience. During Epilepsy Awareness Month, we celebrate the strength of the community while working to increase understanding and inspire meaningful change. 💜 #EpilepsyAwarenessMonth #EpilepsyAdvocacy #epilepsy #PatientWorthy
Born unique. Heard loud and clear. Microtia may shape an ear differently, but it doesn't define your potential. Microtia Awareness Day is on November 9th so now is the time to learn more about this rare condition and how you can support impacted individuals!
If you'd like to share your experience with Microtia, click the link below.
ow.ly/9hoA51038r8
#rarediseaseoftheweek #PatientWorthy #microtia
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