A Chicago cancer conference this summer revealed an astounding development – a recent clinical trial of a new therapy, Daraxonrasib, was nearly doubling survival rates
The University of Michigan has opened a $10 million research center dedicated to histotripsy, a technique that uses focused sound waves to destroy tumors. The
Editor’s Note: Patient Worthy is honored to share this story from our friends at Elephants & Tea. Originally written by Mellory Torres, a survivor of
Fabry disease is a rare inherited condition caused by changes in the GLA gene. These changes can lead to low or absent activity of an
Bangladesh did not meet its 2026 measles target due to vaccination gaps in 2024 and 2025 according to a report in Reuters. The following year
IndoUSrare and GORD Foundation are honored to announce the 2026 Abbey Meyers Khushi Bridging RARE Award Honorees: Rare Disease is a global problem, a human
Editor’s Note: Patient Worthy is honored to present this story, originally written by Blyth Lord, founder of Courageous Parents Network. I was asked earlier this
Nota del editor: Para Patient Worthy es un honor compartir este artículo, que nos fue enviado originalmente por Andrés Contreras. El cáncer de hígado es
Editor’s Note: Patient Worthy is honored to share this article, originally submitted to us by Andrés Contreras. Liver cancer is the third leading cause of
My name is Kelli Frederick, M.A., and I have lived with neurofibromatosis for my entire life. I have also undergone more than 50 facial surgeries.
Two papers published in Nature Communications report new findings about roginolisib, an experimental cancer drug being developed by iOnctura. One study describes how the drug
Editor’s Note: Patient Worthy is honored to share this story from our friends at Elephants & Tea. To see the article, originally written by Natalia
Editor’s Note: The following article was submitted to Patient Worthy by Regina Portnoy. “Nothing hurts. I feel fine. Why would I need to see a
Editor’s Note: Patient Worthy is honored to share this patient story, submitted to us by Shelly Glenn. For most of my career, I worked on
Editor’s Note: Patient Worthy is honored to share the following caregiver story, submitted to us by Jon Scheinman of The Epilepsy Foundation. To see the
There are parts of 2024 that I know only through photographs and the stories my sister has told me. In some of the pictures, I
As reported on Inside Precision Medicine, a novel optogenetics-based treatment may offer a new path toward restoring some visual function in people with advanced retinitis
Aspire: “ We aspire to improve the lives of children and adults affected by PANS/PANDAS and other immune-related encephalopathies by closing the gap between symptom
Rare doesn't mean alone, but sometimes social media likes to test that theory. To everyone navigating a rare disease journey: thank you for being the awareness, the advocate, and occasionally the entire hashtag community!
#raredisease #rarebutnotalone #PatientAdvocate #PatientWorthy
💗 Thank you for sharing your breast cancer journey with the Patient Worthy community! Your courage, strength, and willingness to tell your story help others feel seen, supported, and less alone as they navigate their own experiences.
Every story has the power to inspire hope, foster connection, and remind others that they are not alone.
🎀 Have a story to share? We'd love to hear from you.
👉 Click the link below to share your journey.
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Your health story matters. A breast cancer diagnosis doesn't happen from a single test alone. It may involve exams, imaging, and a biopsy, all working together to provide answers. If breast cancer runs in your family or you carry a BRCA mutation, understanding your risk can help you make informed decisions. Stay proactive, stay informed, and remember: early detection can make all the difference.
If you'd like to share your story with breast cancer, click the link below:
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#breastcancer #EarlyDetectionSavesLives #breastcancerawareness #PatientWorthy #PatientEducation
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