Treating acute ischemic strokes involves a precarious clinical balance: physicians must dissolve arterial clots to save brain tissue without triggering catastrophic intracranial hemorrhaging. To address
Editor’s Note: Patient Worthy is honored to share the following article, originally published by our friends at CURE SYNGAP1. To see the article in its
A Sustainable Biologic Solution Gains Major Insurance Coverage and Proves Superior to Synthetic Alternatives in Real-World Clinical Data In the world of advanced wound care
As reported on PharmaBiz, a new study published in Cell Stem Cell highlights a promising approach to cancer immunotherapy that combines stem cell technology with
As reported on BioPharmaDive, Moderna captured attention this week with two major developments: a multibillion-dollar financing initiative aimed at expanding its oncology portfolio and regulatory
As reported on PR NewsWire, Orsini has been named a specialty pharmacy partner for Priovant’s LISRAYA™ (brepocitinib), a once-daily oral treatment recently approved by the
As reported on Healio, the phase 3 CARDIO-TTRansform study, the largest clinical trial conducted to date in patients with transthyretin amyloidosis with cardiomyopathy (ATTR-CM), found
For a long time, I knew something was wrong. And then, when whatever had been building inside my body finally came to the surface, it
RASONQUE Represents a Watershed Moment for a Disease That Has Resisted Treatment Since RAS Was Discovered as a Cancer-Causing Gene Pancreatic cancer is among the
A Rare Disease Gets Its First FDA-Approved Medicine—And It Works Differently Than Anything Available Before Imagine your immune system getting the signals completely wrong. Instead
Twenty-plus pills a day. Two biologic injections a month, two more every week. That’s my baseline just to function like a “normie” human and keep
Editor’s Note: Patient Worthy is honored to share this article, originally written by Danviel Villarte . Danviel is part of the Outreach Team at Receptive,
Editor’s Note: Patient Worthy is honored to share this story, submitted to us by Richard Poulin III. Late one night, a seemingly ordinary Facebook post
Editor’s Note: Patient Worthy is honored to share this article, originally written by Renzo Luzzatti, President and CEO of US-Rx Care. The White House recently
As reported on The Hill, Vitruvias Therapeutics has initiated a voluntary nationwide recall of a specific lot of thyroid medication after testing indicated the tablets
As reported on BioSpace, Vera Therapeutics’ newly approved IgA nephropathy (IgAN) treatment, Trutakna, is showing early evidence that it may help preserve kidney function, a
As reported on GlobeNewswire, a newly published set of expert consensus recommendations is seeking to improve the care experience for children diagnosed with neuroblastoma and
As reported on Newsweek, a novel experimental treatment for Guillain-Barré syndrome (GBS) may represent a major advance for patients living with the rare neurological disorder.
What does “normal” mean when your normal keeps changing?
When you live with a rare disease or chronic illness, normal may not be a universal standard. It can be your baseline. The symptoms you’ve learned to recognize. The routine you’ve adapted to. Even the things you once found concerning can eventually become something you simply expect.
And sometimes, a test can come back “normal” while you still don’t feel like yourself.
That’s what makes normal such a complicated word. What feels normal to you may look completely different to someone else—and that’s okay.
Because your normal is not something you have to compare. It’s something you get to define, understand, and recognize when it changes. 🤍
#MyPersonalDictionary #ChronicIllness #RareDisease #PatientWorthy
Hereditary angioedema (HAE) is a rare genetic condition that causes recurring and sometimes severe episodes of swelling. Symptoms can affect different areas of the body and may begin as early as childhood.
Understanding the signs, causes, and who may be affected can help raise awareness of this rare condition. Swipe through to learn more about HAE. If you'd like to share your story with others, click here: ow.ly/XlxT50ZHukW or the link in our bio to learn more!
#HereditaryAngioedema #HAE #raredisease #RareDiseaseAwareness #PatientEducation #shareyourstory #PatientWorthy
Strength doesn’t always come from changing what’s happening around you. Sometimes, it comes from recognizing what you can control—your mindset, your response, and the way you choose to keep moving forward.
For anyone navigating a diagnosis, supporting a loved one, or facing a difficult chapter, remember: you may not be able to control every circumstance, but you can find strength in how you meet it. One day, one decision, one step at a time. 🤍
#Strength #Resilience #InnerStrength #KeepGoing #PatientWorthy
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