Event
Upcoming FREE MDS Event in Florida!
Our partner, The MDS Foundation is sponsoring another free MDS Patient & Family/Caregiver Forum. This forum will take place in Jacksonville, Florida When: Saturday, March 30th,
Rare Patient News. Well Done.
FDA Approves Four Novel Therapies for Acute Myeloid Leukemia
- February 19, 2019
First Patient Dosed in Sanfilippo Syndrome Clinical Trial
University of Louisville’s Research Team Discovers Molecule That Protects Against Development of Cancer Cells
Online Gaming Allowed Duchenne Muscular Dystrophy Patient to Transcend Physical Limits
LATEST PATIENT WORTHY ARTICLES
Event
Upcoming FREE MDS Forum in AZ!
Our partner, The MDS Foundation is sponsoring another free MDS Patient & Family/Caregiver Forum. This forum will take place in Phoenix, Arizona. When: Saturday, March
Rare Disease
8-Year-Old Flown to US for Surgery Dies After Rare Reaction to Anesthesia
The Washington Post reported in December of last year that the 8-year-old Matadi Sela Petit had died during surgery in a Los Angeles hospital. The
Ovarian Cancer
Experimental Cancer Drug Displays Potential in a Number of Rare Cancers
According to a story from EurekAlert!, a new type of cancer drug that is being described as a “Trojan horse” that infiltrates cancer tumors is
Systemic Sclerosis
Study May Lead to Earlier Diagnosis of ILD in Systemic Sclerosis
Interstitial Lung Disease in Systemic Sclerosis Systemic sclerosis (SSc), sometimes referred to as systemic scleroderma, is a rare autoimmune condition. It results in the buildup
Cryptococcosis
New Potential Treatment for Cryptococcosis Granted Orphan Drug Designation
Cryptococcosis Cryptococcosis is a disease caused by the Cryptococcus fungus. It can affect the lungs, the spinal cord, or the brain. When the brain is
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