Pancreatic Cancer
After the Devastation of Pancreatic Cancer
Some experiences are seen through rose-colored glasses while others are hazy or ambiguous. Many, we try desperately to remember while others we we wish we
Rare Patient News. Well Done.
This New Immunotherapy Could Allow for More Personalized Cancer Treatment
- November 14, 2018
Gene Therapy for Fanconi Anemia Gains IND Clearance From the FDA
$1.4 Million Donated to Help Bring a Gene Therapy For Tay-Sachs Disease to Clinical Trial
Global Genes Rare Patient Advocacy Summit 2018 Highlights
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Leukodystrophy
Proof of Concept Data Highlights Viability of Gene Therapy for Metachromatic Leukodystrophy
According to a story from Market Screener, the genetic medicines company Homology Medicines, Inc., recently announced the presentation of data which revealed that the company’s
Rare Disease
What Do You Do When You Don’t Love Your Doctor?
I hope that you know a wonderful doctor. The type who listens wholly, respects you, validates your concerns and opinions, and goes above and beyond
Acute flaccid myelitis
A Potential Treatment for Polio-Like Disease, Acute Flaccid Myelitis, Disappoints
According to a story from EurekAlert!, researchers have been scrambling to find a useful treatment for acute flaccid myelitis, a rare disease that has been
Systemic Sclerosis
Males are More Likely to Have Severe Scleroderma in the Disease’s Early Stages, Study Finds
According to a story from Scleroderma News, a recent study found that men were more likely to have severe scleroderma early in their diagnosis in
Corticobasal degeneration
Updates on PSP and CBD from the International Research Symposium
Often times it seems that research for the rarest of conditions is brushed aside. Primary attention is given to more common illnesses which affect more
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