As reported on PharmaBiz, a new study published in Cell Stem Cell highlights a promising approach to cancer immunotherapy that combines stem cell technology with
As reported on BioPharmaDive, Moderna captured attention this week with two major developments: a multibillion-dollar financing initiative aimed at expanding its oncology portfolio and regulatory
As reported on PR NewsWire, Orsini has been named a specialty pharmacy partner for Priovant’s LISRAYA™ (brepocitinib), a once-daily oral treatment recently approved by the
As reported on Healio, the phase 3 CARDIO-TTRansform study, the largest clinical trial conducted to date in patients with transthyretin amyloidosis with cardiomyopathy (ATTR-CM), found
For a long time, I knew something was wrong. And then, when whatever had been building inside my body finally came to the surface, it
RASONQUE Represents a Watershed Moment for a Disease That Has Resisted Treatment Since RAS Was Discovered as a Cancer-Causing Gene Pancreatic cancer is among the
A Rare Disease Gets Its First FDA-Approved Medicine—And It Works Differently Than Anything Available Before Imagine your immune system getting the signals completely wrong. Instead
Twenty-plus pills a day. Two biologic injections a month, two more every week. That’s my baseline just to function like a “normie” human and keep
Editor’s Note: Patient Worthy is honored to share this article, originally written by Danviel Villarte . Danviel is part of the Outreach Team at Receptive,
Editor’s Note: Patient Worthy is honored to share this story, submitted to us by Richard Poulin III. Late one night, a seemingly ordinary Facebook post
Editor’s Note: Patient Worthy is honored to share this article, originally written by Renzo Luzzatti, President and CEO of US-Rx Care. The White House recently
As reported on The Hill, Vitruvias Therapeutics has initiated a voluntary nationwide recall of a specific lot of thyroid medication after testing indicated the tablets
As reported on BioSpace, Vera Therapeutics’ newly approved IgA nephropathy (IgAN) treatment, Trutakna, is showing early evidence that it may help preserve kidney function, a
As reported on GlobeNewswire, a newly published set of expert consensus recommendations is seeking to improve the care experience for children diagnosed with neuroblastoma and
As reported on Newsweek, a novel experimental treatment for Guillain-Barré syndrome (GBS) may represent a major advance for patients living with the rare neurological disorder.
As reported on CNN, the U.S. Food and Drug Administration (FDA) has approved the first gene therapy designed to treat a rare inherited form of
As reported on MedicalXpress, researchers have reported that urolithin A, a compound derived from gut metabolism and available as an over-the-counter supplement, enhanced the effectiveness
Today the Tin Soldier Disease has a treatment. A clinical trial showed a 90% reduction in new bone development in adults with FOP. After Decades
Strength doesn’t always come from changing what’s happening around you. Sometimes, it comes from recognizing what you can control—your mindset, your response, and the way you choose to keep moving forward.
For anyone navigating a diagnosis, supporting a loved one, or facing a difficult chapter, remember: you may not be able to control every circumstance, but you can find strength in how you meet it. One day, one decision, one step at a time. 🤍
#Strength #Resilience #InnerStrength #KeepGoing #PatientWorthy
There's something about September that feels like both a beginning 🍂 and an end 🌞. We welcome new routines and fresh starts, while also saying goodbye to slower days, warmer nights, and the memories of summer.
If you're living with a chronic or rare condition, transitions like the change of season can resonate deeply. Change can bring excitement, but it can also bring a sense of loss or uncertainty. It's a reminder that moving forward doesn't mean leaving everything behind, it means carrying what matters with us into what comes next.
New season. New beginnings. One step at a time. 🩵
#september #fall #pumpkinspice #PatientWorthy
This week we're putting hereditary angioedema (HAE) in focus.
Because HAE is rare and its symptoms can be unpredictable, understanding the condition matters. Raising awareness can help more people recognize what HAE looks like, better understand the experiences of those living with it, and encourage meaningful conversations about diagnosis, treatment, and support.
This week we're shining a light on HAE because the more we learn, the more we can help others feel seen, understood and supported.
#HereditaryAngioedema #HAE #HAEawareness #PatientWorthy
© Copyright 2024 Patient Worthy
Sign Up With a Patient Worthy Account and Share Your Rare Story
- OR -
Make a difference, share your experiences and get paid. Opt-in and join Patient Worthy's panel for paid opportunities such as surveys, market research, patient advisory panels and more.
- OR -
Make a difference, share your experiences and get paid. Opt-in and join Patient Worthy's panel for paid opportunities such as surveys, market research, patient advisory panels and more.
