Disabled Journalists Have to Fight to Get into Newsrooms
In a recent article by Bailey Martens, she describes the struggles she and others have faced being disabled as journalists and brings light to the
In a recent article by Bailey Martens, she describes the struggles she and others have faced being disabled as journalists and brings light to the
According to a recent report in Healio News, the GLP-1 agonists are medications developed primarily to control blood sugar levels for type two diabetes. About
I’ve always been a nature lover. I like nothing better than going for a hike in the woods or strolling along the beach or gazing
Spinal muscular atrophy (SMA) is a rare disease causing progressive muscular weakness. Severe forms of the disease can be fatal to infants. Apitegromab is an
Written by Faye Amado This is the story of my child who is a brave fighter in her life and continues to fight to survive
In an exciting and heartwarming shift towards inclusivity, the world of sports is embracing a new era of diversity—one where disabled athletes are not only
Written by Audrey Getman September 25, 2020: The day I was diagnosed with myasthenia gravis (MG). One month prior: I was in the emergency room
Written by Bill Clark Part 2 – Our Journey from Liver Failure to Transplant Continued from Part 1 “A new liver.” That was Becky’s answer
Most things in life don’t always go as expected. None of us ever truly prepares for a hardship that throws our life off course. Even
This article was written by and shared with permission from Shannon Wieloch, MS. Shannon is a certified genetic counselor and patient advocate for the Aicardi-Goutiere Syndrome
Patient Worthy’s award-winning podcast “Wait, How Do You Spell That? A Rare Disease Podcast” is back with a new episode. On this episode of the
Eighty-five-year-old Frank Meuers considers his 500th immunoglobulin infusion to be a cause for celebration. Frank has logged details of his doctor’s visits since his first
Acknowledgment: This patient story is sponsored by Ipsen Biopharmaceuticals, Inc. and is promoted through the Patient Worthy Collaborative Content program. We only publish content that
Jean’s life story is one of extraordinary resilience, a testament to the strength of the human spirit in the face of rare and challenging medical
The Riken Center team, headed by Dr. Takaomi Saido and using mice with Alzheimer’s, discovered that dopamine may lessen the brain’s physical symptoms and improve
Meet Liam, a 12-year-old patient at Shriners Children’s St. Louis, born with myelomeningocele, a severe form of spina bifida. This condition affects sensation in his
Holidays with Dystonia bit.ly/49HpZoe #dystonia #chronicillness #chronicpain ... See MoreSee Less
Holidays with Dystonia – Patient Worthy
Over the years, since I was diagnosed I’ve never really thought about it. But I’d have to say that I’ve come to appreciate my life with dystonia. One thing that I appreciate is that my dystonia ...Wishing you all a holiday season full of love, joy, and laughter! 🎄 ... See MoreSee Less
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