Compassion Corner: When Families are Involved with the Care of Their Critically-Ill Loved Ones
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Compassion Corner: When Families are Involved with the Care of Their Critically-Ill Loved Ones

Compassion [kuhm-pash-uhn] noun A feeling of deep sympathy and sorrow for another who is stricken by misfortune, accompanied by a strong desire to alleviate the suffering. Compassion Corner is a…

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The Secret Sauce for Bringing Innovative Therapies to Patients with Rare Diseases Faster
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The Secret Sauce for Bringing Innovative Therapies to Patients with Rare Diseases Faster

Written by Lori Lawter, MPH We’ve heard a lot about bringing drugs to market lately, especially in light of the COVID-19 vaccine.  You might wonder, “Is there a ‘secret sauce’…

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Indian Government to Place Regulative Measures on Crowdfunding for Rare Diseases
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Indian Government to Place Regulative Measures on Crowdfunding for Rare Diseases

Rare disease therapies are often difficult to access, whether that is due to price, a patient's location, or another factor. Because of these obstacles, many rare disease patients find themselves…

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Improving Rare Disease Clinical Trials
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Improving Rare Disease Clinical Trials

Clinical trials face many obstacles regardless of which disease they aim to investigate. However, rare disease trials face additional problems that don't typically impact studies for more common conditions. Small…

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Partnership Develops mRNA-3351 for Crigler-Najjar Syndrome Type 1
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Partnership Develops mRNA-3351 for Crigler-Najjar Syndrome Type 1

From certain partnerships can emerge not only a better understanding of rare diseases but potential therapeutic options. As described by BioProcess International, a nonprofit organization called the Institute for Life…

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