An Invitation From Family Heart Foundation to Celebrate Familial Hypercholesterolemia Foundation Awareness Day
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An Invitation From Family Heart Foundation to Celebrate Familial Hypercholesterolemia Foundation Awareness Day

The Family Heart Foundation has a Mission. There is so much more to accomplish and you can help prevent heart attacks by spreading awareness. This could save future generations by…

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Science Simplified: How to Read a Scientific Paper, Part 3: Tips For Critically Assessing The Article
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Science Simplified: How to Read a Scientific Paper, Part 3: Tips For Critically Assessing The Article

Want to learn about scientific topics without needing a PhD? Check out the Science Simplified blog from TESS Research Foundation! Dr. Tanya Brown, PhD, works with researchers to make science…

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Science Simplified: How to Read a Scientific Paper, Part 2: Breaking Down The Information
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Science Simplified: How to Read a Scientific Paper, Part 2: Breaking Down The Information

Want to learn about scientific topics without needing a PhD? Check out the Science Simplified blog from TESS Research Foundation! Dr. Tanya Brown, PhD, works with researchers to make science…

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Science Simplified: How to Read a Scientific Paper, Part 1; Anatomy of a Research Article
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Science Simplified: How to Read a Scientific Paper, Part 1; Anatomy of a Research Article

Want to learn about scientific topics without needing a PhD? Check out the Science Simplified blog from TESS Research Foundation! Dr. Tanya Brown, PhD, works with researchers to make science…

Continue Reading Science Simplified: How to Read a Scientific Paper, Part 1; Anatomy of a Research Article
Self-Advocacy and Attitude: How Anna Survives (and Thrives) in Her Life with Wegener’s Granulomatosis (Pt. 3)
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Self-Advocacy and Attitude: How Anna Survives (and Thrives) in Her Life with Wegener’s Granulomatosis (Pt. 3)

Before you read, make sure you check out Parts 1 and 2 of our interview. In Part 1, we discussed what Wegener's granulomatosis (GPA) is, Anna's diagnostic journey, and her first episode of symptoms.…

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How Quris is Aiming to Address Fragile X (and Other Rare Diseases) through Bio-AI Drug Development (Pt. 1)

Many people laud the accomplishments of clinical trials – and for, in some cases, good reason. Clinical trials have been crucial in identifying and developing therapeutic options for patients to…

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How “Voices” Offers a New Avenue of Connection for the Chronic Illness and Rare Disease Communities

It’s no secret that being a part of the chronic illness and/or rare disease community can sometimes be lonely and isolating. Many people, while empathetic to the challenges faced within…

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X-Linked Hypophosphatemia: Understanding this hereditary, progressive, and lifelong condition

Acknowledgment: This story is sponsored by Ultragenyx Pharmaceutical Inc. and is promoted through the Patient Worthy Collaborative Content program. We only publish content that embodies our mission of providing relevant,…

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Experimental CAR T-Cell Therapy for Relapsed/Refractory ALL Patients Receives FDA Designations

Targeted Oncology recently published an article describing a group of T cell malignancies associated with blood disorders (hematologic cancers). Currently, a high rate of patient deaths and relapses are occurring…

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New Study Highlights a Protein With the Potential to Predict Cancer Deaths and Type 2 Diabetes Risk

Inside Precision Medicine recently featured an article describing a study that was published in the European journal Diabetologia conducted by a team of Chinese and Swedish researchers. The study suggested…

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August is Stevens-Johnson Syndrome Awareness Month: Spreading Rare Disease Awareness
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August is Stevens-Johnson Syndrome Awareness Month: Spreading Rare Disease Awareness

The month of August is recognized as Stevens-Johnson Syndrome Awareness Month. The goal of this month is to elevate awareness about Stevens-Johnson syndrome among the general public and in the…

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