Hi everyone,
We hope you’re having a peaceful quarantine and taking care of yourself. As we all know, updates about COVID-19 is dominating the news right now. Of course, infomation on the pandemic is useful and important– but it can be mentally exhausting to deal with, and news on other important subjects can be left behind. This week we’ve decided to highlight four articles about rare disease and chronic illness that aren’t directly related to Coronavirus.
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Idiopathic Pulmonary Fibrosis Exacerbated by Bacterial Protein Fragment, Study Finds
The better researchers understand IPF, the easier it will be for doctors to treat it. Understanding how this bacterial protein can worsen symptoms can help control it.
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It Just Makes “Antisense:” Using Genetic Medicine to Treat Rare Diseases
You may have heard that the majority of rare diseases are genetic. Antisense medicines can be tailored to help people with conditions like SMA.
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Wait, How Do You Spell That?: A Rare Disease Podcast
Did you know Patient Worthy has a brand new podcast? We interview rare advocates, talk about story-sharing, and chat about issues related to specific diseases and the rare community at large.
