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If you are not sure about writing in, but are living with rare disease and willing to chat with others about it, sign up to be contacted below.

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Or if you feel passionate about a particular post, just want to share an experience, a favorite recipe, exercise, product or even an app, tell us all about it by submitting your content below! We’d love to feature your unique perspective on Patient Worthy.

You must be 18 years or older to submit your story to Patient Worthy. If you are under 18, but over 13, and would like to contact us, please click here and fill out the form with your parent or legal guardian’s information. We look forward to hearing from you!

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