- Rare Disease News
Meet Our Team
Meet our Patient Worthy Contributors
While we rely on the perspective of our amazing Patient Worthy Contributors and readers to publish content for the rare community, we want you to meet some of our team, essential to making the magic happen!
Bree Clare, Director. Bree comes to Patient Worthy after many years as a Patient Advocate and Recruiter, where she spent her days connecting patients with opportunities to share their stories to affect change in the pharmaceutical industry. Prior to that, Bree’s professional background is mostly in fashion marketing, but making the shift to patient advocacy ignited a passion for bringing the patient perspective to the spotlight. Bree is also the mother of a child with a rare disease, so her commitment to her work is more than just a job.
Kathryn Devanny, Director of Advocacy Relations. Listening to patients and incorporating their needs and perspectives, as to what really matters in health care is Kathryn’s primary goal. She encourages efforts to empower patients and those hoping to make new treatments, and supportive services available to them. She has worked in primary care planning, community health education, hospital administration and occupational medicine prior to concentrating in rare disease research and advocacy. She holds graduate degrees in Anthropology and Public Health Planning and Administration.
Colby Rogers, Editor and Director of Social Strategy. Colby’s background is in journalism and healthcare. Prior to joining Patient Worthy, he also worked as a health educator and registered EMT. Colby believes that patients can be their own best advocates and fully tell their stories when they have access to the information they need.
Jessica Lynn, Content and Community Manager. Jessica has a varied background including marketing and writing, all of which have given her a deeper appreciation for storytelling. She was diagnosed with a rare disease – Kawasaki disease – as a child and, though she has since recovered, feels honored to help others within this space share their own stories and experiences. Jessica’s mission is to empower patients and to raise awareness of the scope of the rare disease community. In her spare time, Jessica enjoys traveling and writing poetry.
James Moore, Lead Editor, Community and Content Specialist. James has an educational background focused on history and the nonprofit sector. Since beginning work at Patient Worthy, he has developed a strong passion for writing stories that center on the voices of rare disease patients and also keeps them informed of the latest developments. James also believes strongly in the value of learning about patients’ experiences at rare disease conferences and other events firsthand.
Kenneth Kim, Senior Digital Strategist. Kenneth Kim has a background working with web experience in higher education and the museum industry. Prior to working at Patient Worthy, Kenneth did work in web design, development, and digital marketing. Kenneth is excited to provide his skills to help patients tell their stories and experiences through the web.
