Share Your Story

We are in the business of advocating for patients, especially those with rare conditions and chronic illnesses. Sharing stories, cultivating experiences, providing the latest medical findings—connecting people and pioneering production of “Patient Worthy” information is in our DNA. Is it in yours?

If you feel passionate about a particular post, just want to share an experience, a favorite recipe, exercise, product or even an app, tell us about it by contacting

If you or a loved one are living with a rare disease, but aren’t sure about being a regular contributor, if you’re open to chatting with others about it, e-mail

We’d love to feature your unique perspective on Patient Worthy. You must be 18 years or older to submit your story. If you are under 18, but over 13, and would like to contact us, you may e-mail us with your parent or legal guardian’s information. We look forward to hearing from you!

Click here for our Terms of Use.

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