Share a Lot

We are in the business of advocating for patients, especially those with rare conditions and chronic illnesses. Sharing stories, cultivating experiences, providing the latest medical findings—connecting people and pioneering production of “Patient Worthy” information is in our DNA. Is it in yours?

Patient Worthy is looking for smart, passionate, patients/caregivers/support persons to author original content. Or, if you are just an enthusiastic news junkie looking to curate rare disease news, we welcome you too! We believe in empowerment through education, awareness and dialogue, and we need your help to keep the conversations going.

If this sounds like you, please contact us at

Click here for our Terms of Use.